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Hi Barbara,

It's so good to hear from you again. 2,000 messages, sheesh, I haven't even gotten that far behind so I guess your are the "Queen" AGAIN!!!

Anyhow, I'm glad you are on the path to being "Marange Queen" again. I'm sure the hospital with cooperate with you on the food and give you extra veggies or salad. I'm not fond of hospital food but when I'm hungry I can sure make do.

Get that extra weight to start coming off and your convalescence will go that much better. A pretty good incentive I would say. And how wonderful it will be to have our "Gramma Barb" back on her feet again.

Love Mom Pudge, the waddling one

pudge@...

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  • 1 year later...

Excellent job Sue - keep up the good work!! deb in NE

I'm back

I lift the group on the 11th not thinking I wouldn't be able to say see you

all after surgery.

Well I had my surgery Dec 17th. Every thing went well except I couldn't

get any gases out at either end. Which made me sick to my stomach. But Doc took

care of that, and after 6 days in the hospital I'm home.

I did have a lot of complaints about the hospital staff. But that is

another story.

I go back to dr. Dec 31st. So I kind of feel like I will really be starting

my year brand new. I am still so existed.

I am having a hard time fixing food for the kids and doing the adds for

food bargains. Also not eating any thing is hard some times. But I remember from

the group it is just mind hunger and I have to change my mind. sue

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  • 1 year later...

Hi Jeannie,

Sounds like you had a great time at the coast, I love to walk on the beach, but

no longer can. I will check on our coast line to see if they have that here.

Tell your granddaughter congradulations, you have to be very proud of her. Glad

you are back, Sandy

I'm back

Hi Group,

I haven't posted for some time, it has been a busy summer. I have been

catching up on reading my e-mail. Glad to hear you are improving Dale. Sorry

to hear Geo left group, hope he comes back to us. Very sad to hear of Annie

Hill's passing, I will keep her and her family in my prayers. Sorry to hear of

your fall Eva, and June-bugs scare too, and if I've missed anyone, I apologize.

Remember back in the winter I was asking if anyone knew of a way I could get

down to the waters edge if I went to the beach, Cause I knew I couldn't walk in

the sand and M. in Florida posted about the handicapped wheelchairs they

have available at the state beaches in Florida. Thank you so much . We did

some research up this way, and found some N.J. beaches also offer them. We went

down and met my daughter and grandkids. She got one of these beach wheelchairs,

no cost for the day, put me in and off we went down to the waters edge. In came

the first little wave of water and touched my feet, it was so cold it took my

breath away. Here came the next wave across the top of my feet not as cold as

the first, and then the next and it felt great! It was a wonderful day, granted

I wasn't out there jumping the waves with the grandkids, but I was never very

good at that before I had PLS!!!!! I highly recommend this to anyone that

needs a spirit lifter. Ronnie you gotta try this if you haven't already (I'm

glad your Mom is home). P.S. My grandaughter made it to Nationals for roller

skating and took first place out of 22 girls in her event. Made the cover of

the USARS magazine..tomorrow she has Ice skating competition.......gotta

run...Love to all.....Jeannie/N.J.

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Glad to hear about your great time!

I'm back

>

> Hi Group,

>

> I haven't posted for some time, it has been a busy summer. I have

> been catching up on reading my e-mail. Glad to hear you are improving

> Dale. Sorry to hear Geo left group, hope he comes back to us. Very sad

> to hear of Annie Hill's passing, I will keep her and her family in my

> prayers. Sorry to hear of your fall

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  • 2 weeks later...

Hi #11

I'm not sure if I remember your posts, I have been diagnosed with PLS since

November of 2003, before that they thought I had MS. Anyway welcome back,

Sandy in Oregon

i'm back

for the few people that might remember me, i'm paul from hollywood

ca. i've been away for about 4 months because my family and i moved

back to rochester n.y. in april so i'm just trying to settle in. we

moved back east to be closer to family and raise our son jack in a

better and safer environment than hollywood. most of my family is

hear and my wife's family is in pennsylvania. my brother just moved

back to rochester from new hampshire in june and they a boy 6 months

younger than jack, so as you can see it's all good.

as some of you might remember im 37 and have pls and my wife has MS

and i've had symptoms for over 6 years knowand was diagnosed in 8/01.

in los angeles we just felt isolated from our family and felt we

were missing quality for jack and the family. my wife, molly just

got a job if all goes well, at the university of rochester as an

event coordinator so that is good news and i applied for ssdi in

january and just started to recieve checks last month. i had a

workers comp. settlement so my check isn't as much as it should be,

but the offset period ends this month so hopefully i'll get " the

full shot " as they called it. thats it for now, i'm glad to be back

and hope that everyone is doing good.

God Bless and take good care.

paul #11

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  • 3 years later...

Hi everyone - new and old,

I've been away for awhile because of a modem problem and other stuff.

Life is pain and pain is life, you know the drill. For those of you

who were on my e-card list, I'm sorry that I haven't kept up with

that. I promise to get back on track.

I have missed the group and pray that everyone has had at least one

day of little to no stress and less pain since the first of the year.

(((gentle hugs)))

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