Re: The outpouring of support here..... my gosh..My 2 cents

[Guest guest]

I'm also a parent of a special needs child.

She is adopted and has FASD.

Also dxed with ADHD, ARBD (alcohol related birth defect and has 10

surgeries),

Attachment Disorder, Separation and Anxiety Disorder

and will most likely receive a Tourette's dx this coming Friday when

are seen at the TS clinic.

I have a niece pretty much in the same condition as 's child.

She has FASD and can' walk, talk, etc. She's blind. She can sing some

songs.

She's 4 1/2. She has the biggest funniest laugh too.

Elaine

>

> I have a 14yr. old daughter w/CP. She confined to a whelchair and bed.

> She can't talk

> walk or even crawl BUT she is the happiest child in the world. She is

> innocent to the world and will never know sin, She special in many

> ways!!! I've been changing diapers for 14yrs. now but I don't mind.

> She is my Sunshine she makes me happy even when skys are gray, please

> dom't take my sunshine away...well you should know the song.

> I sing to her evreyday and she just laughs away.

> GOD Bless ! ! ! . . . ...................... . . . s

> 2 cents

>

> To: Fibromyalgia_Support_Group@...

> <mailto:Fibromyalgia_Support_Group%40yahoogroups.comFrom>:

> bonnie090196@...

> <mailto:bonnie090196%40yahoo.com.auDate>: Sat, 19 Jan 2008 02:04:42

> -0800Subject: Re: The outpouring of support here..... my gosh..

>

> DebraHang in there, I have 2 autistic kids and whilst they are never

> 'normal " can I say they do change and the things you wrestle with

> today will not be what you wrestle with later on. At 7 my little boy

> lived under a blanket in a pram refusing to get out, he did not walk

> or talk or interact with anyone at anytime. At 12 I told him I had a

> lump in my breast and he asked could he touch it ? I replied " no their

> my privates " his reply " damn, so close but yet so far " .As I said not

> exactly the " normal response " butttttttt??????? Gotta laugh

> sometimes. The outpouring of support

> here..... my gosh..I really so much appreciate the outpouring of

> support and information here since I have had questions about my 5

> year old. I feel a little bad about taking up the site with this

> because it is a fibro support site. I will try to keep most of the

> future email about this on a private basis. Not because I don't want

> to share it, but because I do not want to stray too far away from the

> purpose of this support site. I will tell you that my heart has been

> overwhelmed by the knowledge and outpouring of support here on this

> topic.. That is what is so special about this group... we have people

> from EVERY walk of life imaginable. When it all boils down, we are all

> just human beings who connect and can share what the miseries of

> fibromyalgia can bring to our lives. Thanks so much. And may I say, I

> hope that all of you are doing as well as can be today because you all

> suffer from a horrible illness just as I do. Alot of you worse than

> me. Agape,Debra V.---------------------------------Be a better friend,

> newshound, and know-it-all with Yahoo! Mobile. Try it now.[Non-text

> portions of this message have been removed]1. While it is wonderful to

> share our experiences with everyone on the list as to what treatments

> do and don't work for us, pls always check with your dr. Some

> treatments are dangerous when given along with other meds as well as

> to certain health conditions or just dangerous in general.2. If you

> are in a difficult situation (doesn't matter what it is) pls don't be

> afraid to ask for help. It is the first step to trying to make that

> situation better.3. To unsubscribe the e-mail is:

> Fibromyalgia_Support_Group-unsubscribe@...

> <mailto:Fibromyalgia_Support_Group-unsubscribe%40yahoogroups.com4>.

> Also, it is not uncommon for more than one member to be feeling bad at

> the same time when it comes to flares and b/c of that potentially take

> something another member says the wrong way. And that includes the

> things that one member may find funny (even if it's laughing at fibro

> itself) even though we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.5. Pls let's be

> gentle with each other, and if you are having a bad day pls let us

> know so that we can do our best to offer our support.Have a nice day

> everyone.