Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Sher No, I have no word on Gwynne. I imagine/hope Leanne will try to contact tomorrow. I know her family has so many things to deal with right now even if she's doing great but I'm sure concerned and not sure anyone realizes how much collective worrying is taking place. > > > > > > > > Sher, > > > > I'm happy to hear the doctors have switched your diagnosis. NSIP > > > is definitely preferable to IPF, the life expectancy is much longer > > > and as a bonus, it does not always progress. As a matter of fact, > > > Dr. on at Duke just told me last month that he's seen patients > > > with NSIP who have been " stable for decades. " I mean I know that my > > > experience may be different but anything that gives us hope is > > > helpful! > > > > Have they switched your dx based on the behavior of the disease or > > > also on the ct scan results? NSIP is usually very identifiable by CT > > > scan. To identify the type of NSIP (fibrotic, cellular or mixed) you > > > would need a biopsy. But at this point it probably doesn't matter as > > > long as your stable. I understand why you wouldn't put yourself > > > through that. I don't regret my biopsy but I totally get why you've > > > chosen not to go down that road. > > > > In the meantime, celebrate stability!! Stable is my happy word!! > > > > Beth > > > > Age 48 Fibrotic NSIP 06/06 > > > > > > > > Change everything. Love and Forgive > > > > > > > > > > > > > > > > Caro > ASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 > Mississippi > ____________ _________ _________ _________ _________ __ > Quote Link to comment Share on other sites More sharing options...
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