Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 You don't have to read anything...just keep us apprised of how you're doing. > > > Hi friends, > Today is only the second peek I've taken at any > e-mails. OMG I'll have to skip some. While I'm away, > the surest way to see that I'll read them in a timely way > is to email me directly. We have wireless service in > the apartment here in San . My brother and > sis-in -law visited this weekend and gave the kids > some time off. My brother is an excellent cook and > made dinner the last few nights. The kids are doing a > great job with everything - medications, food, laundry, > cooking, trips to various stores and pharmacy, and > anything else you can think of. > > My apt. address is: > 7733 Louis Pasteur, #321 > San , TX 78229 > > My pain was more tolerable today, so I took fewer pain > meds. The last two nights and mornings I actually got > some pretty good sleep. I'm very shakey. I'm on Norco, > Prograf, Cellcept (same as my pre-tx dosage), and 45 mg. > Prednisone ( which they hope to taper down 5mg a week > until Also Sporanox, Valcyte, Avelox, Surfak, > Protonics, Reglan, Cytogam by IV drip at hospital 2 more > times, Boniva, Multivitamin, & Advair for the bad lung. > > We've got plenty of room - I've got a bedroom and nice > bathroom with a perfect walk-in shower and shower > bench. I'm supposed to let water run over the incision > once a day. There's a nice kitchen, 2 other bedrooms and > baths, and a living/dining room with a comfy sofa. My > brother bought me a recliner which is getting delivered > tomorrow - can't wait. We've got cable tv and On Demand > movies. I'm not up to reading yet, but I was given an > electronic book from Amazon that is very cool. You choose > what you want to read and it shows it on the screen in the > font size you want. > I have exercises to do 3 times a day, plus just walking around > the apartment. The shower takes a lot out of me. I try to > change locations throughout the day to get out of bed. > I'm shaking too much to write. My appetite's finally back to > normal, after losing 10 pounds in the hospital. There are > quite a few dietary restrictions, most of which I was already > doing. It's a low fat, low carb, low sugar diet. The meds did > raise my blood sugar to where I had to have several units > of insulin several times in the hospital. Hopefully that will > dissipate - we'll see. > > I go in for clinic - chest x-ray, blood work and see the > doctors on Tues. We're only about 5 minutes away, and we > have a transport chair. I'm off oxygen completely, but get > winded when walking... and the hospital's a big place. > We'll talk about getting me a psychiatric consult, and any > other specialists lined up who I might need. > > Tomorrow e is bringing Misha to me! (I'm soooo > ready, and got the doc's okay). She'll be good for me. > Music also helps to relax me and calm the pain. > > I'm overwhelmed by the miracle that I've participated in. > I will do the best I can to live in such a way as to honor > and respect the gift of life I've been given. > > Thank you so much for the kind words of love and > encouragement, for your excitement, your prayers, > your birthday cards!! and for just being there. I miss you > guys, but I'll get caught up eventually. I just don't have the > strength to do much yet, so I won't be around much at > all for a while. Thanks to anyone who took the time to > read about me or post on my CaringBridge website. > > I'm off to record b.p., temp, etc. before bedtime meds. > I have to monitor those twice daily. > > Love and huge hugs to everyone!!!! > Gwynne 57 single-lung transplant 4/3/08 at UTHSC - SA. > - on my birthday!!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Bruce, Can you tell me how to go to Gwynne's site ? I went to CaringBridge but couldn't figure it out.. Thank You.. Love and Prayers, PeggyIPF 2004, Florida"Worry looks around, Sorry looks back, Faith looks up." You don't have to read anything...just keep us apprised of how you'redoing.>>> Hi friends,> Today is only the second peek I've taken at any> e-mails. OMG I'll have to skip some. While I'm away,> the surest way to see that I'll read them in a timely way> is to email me directly. We have wireless service in> the apartment here in San . My brother and> sis-in -law visited this weekend and gave the kids> some time off. My brother is an excellent cook and> made dinner the last few nights. The kids are doing a> great job with everything - medications, food, laundry,> cooking, trips to various stores and pharmacy, and> anything else you can think of.>> My apt. address is:> 7733 Louis Pasteur, #321> San , TX 78229>> My pain was more tolerable today, so I took fewer pain> meds. The last two nights and mornings I actually got> some pretty good sleep. I'm very shakey. I'm on Norco,> Prograf, Cellcept (same as my pre-tx dosage), and 45 mg.> Prednisone ( which they hope to taper down 5mg a week> until Also Sporanox, Valcyte, Avelox, Surfak,> Protonics, Reglan, Cytogam by IV drip at hospital 2 more> times, Boniva, Multivitamin, & Advair for the bad lung.>> We've got plenty of room - I've got a bedroom and nice> bathroom with a perfect walk-in shower and shower> bench. I'm supposed to let water run over the incision> once a day. There's a nice kitchen, 2 other bedrooms and> baths, and a living/dining room with a comfy sofa. My> brother bought me a recliner which is getting delivered> tomorrow - can't wait. We've got cable tv and On Demand> movies. I'm not up to reading yet, but I was given an> electronic book from Amazon that is very cool. You choose> what you want to read and it shows it on the screen in the> font size you want.> I have exercises to do 3 times a day, plus just walking around> the apartment. The shower takes a lot out of me. I try to> change locations throughout the day to get out of bed.> I'm shaking too much to write. My appetite's finally back to> normal, after losing 10 pounds in the hospital. There are> quite a few dietary restrictions, most of which I was already> doing. It's a low fat, low carb, low sugar diet. The meds did> raise my blood sugar to where I had to have several units> of insulin several times in the hospital. Hopefully that will> dissipate - we'll see.>> I go in for clinic - chest x-ray, blood work and see the> doctors on Tues. We're only about 5 minutes away, and we> have a transport chair. I'm off oxygen completely, but get> winded when walking... and the hospital's a big place.> We'll talk about getting me a psychiatric consult, and any> other specialists lined up who I might need.>> Tomorrow e is bringing Misha to me! (I'm soooo> ready, and got the doc's okay). She'll be good for me.> Music also helps to relax me and calm the pain.>> I'm overwhelmed by the miracle that I've participated in.> I will do the best I can to live in such a way as to honor> and respect the gift of life I've been given.>> Thank you so much for the kind words of love and> encouragement, for your excitement, your prayers,> your birthday cards!! and for just being there. I miss you> guys, but I'll get caught up eventually. I just don't have the> strength to do much yet, so I won't be around much at> all for a while. Thanks to anyone who took the time to> read about me or post on my CaringBridge website.>> I'm off to record b.p., temp, etc. before bedtime meds.> I have to monitor those twice daily.>> Love and huge hugs to everyone!!!!> Gwynne 57 single-lung transplant 4/3/08 at UTHSC - SA.> - on my birthday!!!!!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Peggy I have no idea as I didn't know she had one and I've tried entering her name too. I searched through posts for it and found nothing. Maybe I'm oxygen deprived and lost my touch. So, I've emailed her asking for it. > > > > > > Hi friends, > > Today is only the second peek I've taken at any > > e-mails. OMG I'll have to skip some. While I'm away, > > the surest way to see that I'll read them in a timely way > > is to email me directly. We have wireless service in > > the apartment here in San . My brother and > > sis-in -law visited this weekend and gave the kids > > some time off. My brother is an excellent cook and > > made dinner the last few nights. The kids are doing a > > great job with everything - medications, food, laundry, > > cooking, trips to various stores and pharmacy, and > > anything else you can think of. > > > > My apt. address is: > > 7733 Louis Pasteur, #321 > > San , TX 78229 > > > > My pain was more tolerable today, so I took fewer pain > > meds. The last two nights and mornings I actually got > > some pretty good sleep. I'm very shakey. I'm on Norco, > > Prograf, Cellcept (same as my pre-tx dosage), and 45 mg. > > Prednisone ( which they hope to taper down 5mg a week > > until Also Sporanox, Valcyte, Avelox, Surfak, > > Protonics, Reglan, Cytogam by IV drip at hospital 2 more > > times, Boniva, Multivitamin, & Advair for the bad lung. > > > > We've got plenty of room - I've got a bedroom and nice > > bathroom with a perfect walk-in shower and shower > > bench. I'm supposed to let water run over the incision > > once a day. There's a nice kitchen, 2 other bedrooms and > > baths, and a living/dining room with a comfy sofa. My > > brother bought me a recliner which is getting delivered > > tomorrow - can't wait. We've got cable tv and On Demand > > movies. I'm not up to reading yet, but I was given an > > electronic book from Amazon that is very cool. You choose > > what you want to read and it shows it on the screen in the > > font size you want. > > I have exercises to do 3 times a day, plus just walking around > > the apartment. The shower takes a lot out of me. I try to > > change locations throughout the day to get out of bed. > > I'm shaking too much to write. My appetite's finally back to > > normal, after losing 10 pounds in the hospital. There are > > quite a few dietary restrictions, most of which I was already > > doing. It's a low fat, low carb, low sugar diet. The meds did > > raise my blood sugar to where I had to have several units > > of insulin several times in the hospital. Hopefully that will > > dissipate - we'll see. > > > > I go in for clinic - chest x-ray, blood work and see the > > doctors on Tues. We're only about 5 minutes away, and we > > have a transport chair. I'm off oxygen completely, but get > > winded when walking... and the hospital's a big place. > > We'll talk about getting me a psychiatric consult, and any > > other specialists lined up who I might need. > > > > Tomorrow e is bringing Misha to me! (I'm soooo > > ready, and got the doc's okay). She'll be good for me. > > Music also helps to relax me and calm the pain. > > > > I'm overwhelmed by the miracle that I've participated in. > > I will do the best I can to live in such a way as to honor > > and respect the gift of life I've been given. > > > > Thank you so much for the kind words of love and > > encouragement, for your excitement, your prayers, > > your birthday cards!! and for just being there. I miss you > > guys, but I'll get caught up eventually. I just don't have the > > strength to do much yet, so I won't be around much at > > all for a while. Thanks to anyone who took the time to > > read about me or post on my CaringBridge website. > > > > I'm off to record b.p., temp, etc. before bedtime meds. > > I have to monitor those twice daily. > > > > Love and huge hugs to everyone!!!! > > Gwynne 57 single-lung transplant 4/3/08 at UTHSC - SA. > > - on my birthday!!!!! > > > Quote Link to comment Share on other sites More sharing options...
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