Re: questions,feelings and advise

[Guest guest]

Hi Diane,

Where do I start? Hummmm....

Each morning when I get up I pray I can get out of bed with as little

pain as possible because my neck, shoulders, back and legs always

hurt. Which part depends on if I slept in the right position or not,

and if I got any sleep at all from tossing and turning. When I get up

finnally I take a hot shower hoping it will ease the muscle pain

(sometimes it works alittle and sometime it makes it hurt worse) it

is a hit or miss there. Then I get my three older daughters off to

school and start to get the youngest ready. I pray for no rain, wind,

or snow (yeah right it is winter,LOL) cause we are with out a car

right now so I have to walk her to school which is a 10 minute walk

there and a 10 minute walk home. I am now hurting more in the hips,

lower back and lower shoulder blades but, I still have more to do I

now have to get my DH up make sure his blood is tested and he eats

and takes his meds. Then I die for 1-2 hours hoping I can move when I

get up again.

Its now later in the morning and I try to get on the computer for aa

few and either I am able to for awhile or my back, and hands start to

inflame once again so I have to stop. My twin come home and they go

after my youngest daughter (thank you god I don't have to do the walk

twice a day in fear of more pain)an hour later the oldest comes home

and I try to get them them to help with dinner (sometimes they help

and other times they don't) if no one is willing to help I have to

plan something easy to make for dinner (because standing to long

causes more pain), if they are willing to help then I make something

alittle bit healthier for everyone to eat.

Now after dinner is over I have to load the dishwasher (because

everyone puts thier dishes in the sink instead, why I don't know),

and then I want to die again for awhile. Sometime I get to rest other

times I can't because of laundry, homework, or what ever else comes

up. Mean while I am in major pain by the time it bed time. So I have

insomnia, so now I pray the meds help me sleep and the RLS doesn't

act up and I pray for a better day in the morning.

Thats Monday through Friday, now on the weekend is a whole nother

matter cause I have everything to do I put off during the week

because of pain and hope I get through it. If my daughters want

something they help other whys I do it myself. My DH tries to help

but since his strokes he only has use of his right hand so ther isn't

much he can do (but at least he tries!).

Now if I have a good day somewhere in the mix of MOnday- Sunday I go

shopping and believe me I think I am the fastest shopper there is, If

I can not get it into the cart and out of the store in less then 15-

20 minutes top I don't buy it, because my lower shoulder blades,back

and hips goes into total flames with in that time from walking or

standing. Now don't get me wrong if I can find a chair to sit down on

for awhile I will stay alittle longer but if not I'm out of there. I

don't use the motorized carts they have because I am still fighting

to say " I am not letting the fibro monster take over my life just

yet " . I am only 42 and it not fare I can't do the thing I use to do.

The hard part is no one really understands what we go through unless

they got fibro, and I don't wish this apond anyway!

I hope this helps, and sorry it is so long.

(((HUGS)))

Tina

>

> Hey everyone, I am attempting to educated my friends

> and co workers to what we go through in our dailey

> lifes. I would like everyone to tell a little bit

> about a week in the life of some one with Fibro.

>

> Thanks

> Diane

>

>

>

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