I thought you all might appreciate this

[Guest guest]

I'm one of the lurkers on the list - but I thought you all might get warm fuzzies from this. We just had our annual Hermansky-Pudlak Syndrome Network conference. We have a set of twins that are 27 years old and have PF. But they are the most incredible singers. Their lung function hovers betwen 60 and 70 and sometimes they require oxygen in between sets at their concerts. They are gospel singers. I'm a huge fan. In this clip, however, they are singing the song they sung for the NIH during grand rounds when the NIH opened research into HPS.

Hermansky-Pudlak Syndrome albinisn/PF 06