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I, and many others, will probably take exception to your opinion that most

cases of autism can be resolved through diet. Where does that opinion come

from? Did I miss something?

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CWither43@...

You wrote:

I, and many others, will probably take exception to your opinion that most cases

of autism can be resolved through diet. Where does that opinion come

from? Did I miss something?

Reply:

The 'most cases of autism' is the basis of my response. Autism is not always the

only condition, disease or disorder which needs to be

considered. Often someone with autism may have a co-occuring condition. My

knowledge that most cases of autism can be resolved

with diet and the appropriate additional therapies has come from nearly 5 years

of testing this theory with more than 1500 individuals

diagnosed with autism or autism and a co-occuring condition. It comes from the

results documented on children who did not have a co-

occuring condition and for whom diet was the only intervention used. Or for whom

the co-occuring condition is another disorder of

pigment metabolism such as vitiligo. It comes from the results obtained by

individuals with autism who had already obtained many

alternative therapies without the desired results and who became symptom free

only after balancing their diet, removing the immune

triggering foods and restoring a balanced population of gut flora. Diet will not

take away the deficits of months or years under the

influence of the toxins being identified and which have been identified to be in

elevation in the autist. Diet alone did not allow my own

daughter to reach recovery. But, without the diet changes there would have not

been the possibility for her to reach recovery. In this

way she is like a recovered alcoholic who is symptom free as long as there is no

transgression or a diabetic who is not suffering from

symptoms because of a regulated diet. The alcoholic and the diabetic do not lose

their label. Sara has given up her label because

it is based on the behavioral characteristics of autism. If the label were based

on metabolic testing then she would be simply a

symptom free autist. Where are the parents whose children are symptom free? Many

of them have support groups in their own

communities. Some are service providers, even doctors who have added autism

clients to their caseload as a result of their own

success. Some are fund-raisers who are trying to gather support to open

transitional diet houses in their own communities. I only

provide the information to those who wish to use it and rarely even post to an

autism newslist. What I don't see on these lists are most

of the parents whom I have worked with who contacted me via the internet. Still

most of my referrals are word of mouth, Developmental

Evaluation Centers or who find information about Sara's Diet through a published

book, article or newsletter. Yours in the search,

-Desorgher

-------

Sara's Diet - a comprehensive dietary approach to autism

http://personal.atl.bellsouth.net/~sojmed/sara's-diet.html

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& Max:

I'm trying to get the " or's " straight in this post. When you say " Or for

whom the co-occurring condition is another disorder of pigment metabolism

such as vitiligo, " do you mean that diet intervention does not work fully

for those children?

When you say " another disorder of pigment metabolism " do you mean that

autism has an aspect of pigment metabolism disorder to it?

I'm a " recovered " PWC (Person with Chronic Fatigue Immune Dysfunction

Syndrome), have an autistic son, and a daughter recently diagnosed with

CFIDS also. Our daughter has hypopigmentation on large areas, with no

explanation from the skin doctor.

Is there a Web site you would recommend to get good information on pigment

metabolism disorders? I would be deeply grateful to you if you would

continue dialogue on this with me.

Kathyrn (Celeste, almost 10)

Re: Good morning

> From: " & Max Desorgher " <sojmed@...>

>

>

> CWither43@...

> You wrote:

> I, and many others, will probably take exception to your opinion that most

cases of autism can be resolved through diet. Where does that opinion come

> from? Did I miss something?

>

> Reply:

> The 'most cases of autism' is the basis of my response. Autism is not

always the only condition, disease or disorder which needs to be

> considered. Often someone with autism may have a co-occuring condition. My

knowledge that most cases of autism can be resolved

> with diet and the appropriate additional therapies has come from nearly 5

years of testing this theory with more than 1500 individuals

> diagnosed with autism or autism and a co-occuring condition. It comes from

the results documented on children who did not have a co-

> occuring condition and for whom diet was the only intervention used. Or

for whom the co-occuring condition is another disorder of

> pigment metabolism such as vitiligo. It comes from the results obtained by

individuals with autism who had already obtained many

> alternative therapies without the desired results and who became symptom

free only after balancing their diet, removing the immune

> triggering foods and restoring a balanced population of gut flora. Diet

will not take away the deficits of months or years under the

> influence of the toxins being identified and which have been identified to

be in elevation in the autist. Diet alone did not allow my own

> daughter to reach recovery. But, without the diet changes there would have

not been the possibility for her to reach recovery. In this

> way she is like a recovered alcoholic who is symptom free as long as there

is no transgression or a diabetic who is not suffering from

> symptoms because of a regulated diet. The alcoholic and the diabetic do

not lose their label. Sara has given up her label because

> it is based on the behavioral characteristics of autism. If the label were

based on metabolic testing then she would be simply a

> symptom free autist. Where are the parents whose children are symptom

free? Many of them have support groups in their own

> communities. Some are service providers, even doctors who have added

autism clients to their caseload as a result of their own

> success. Some are fund-raisers who are trying to gather support to open

transitional diet houses in their own communities. I only

> provide the information to those who wish to use it and rarely even post

to an autism newslist. What I don't see on these lists are most

> of the parents whom I have worked with who contacted me via the internet.

Still most of my referrals are word of mouth, Developmental

> Evaluation Centers or who find information about Sara's Diet through a

published book, article or newsletter. Yours in the search,

> -Desorgher

>

>

> -------

> Sara's Diet - a comprehensive dietary approach to autism

> http://personal.atl.bellsouth.net/~sojmed/sara's-diet.html

>

> ---------------------------

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" " <evansc@...> wrote:

When you say " another disorder of pigment metabolism " do you mean that

autism has an aspect of pigment metabolism disorder to it?

Check out the following:

" Autism and co-occurring disorders of pigment metabolism and pigment genetics –

the immune system response to an identified

pigment pathogen " -Desorgher 1999 (accessible through our website)

Extract:

" In a normal metabolism the movement of the pigments through the body is

coordinated through closed and unclosed feedback loops

dependent upon genetic, metabolic and environmental variables. In an abnormal

population such as autism, the immune system

interferes with ‘normal’ pigment regulation and influences metabolic processes

for the protection of vital function while continuously

monitoring the pigment pathogen access and removal pathways. "

see also:

-- Expanded (CAG)n, (CGG)n and (GAA)n trinucleotide repeat microsatellites, and

mutant purine synthesis and pigmentation genes

cause schizophrenia and autism; Fischer, K.M. Med Hypotheses, 1998 Sep, 51:3,

223-33.

-- Hypomelanosis of Ito in three cases with autism and autistic-like conditions;

Akefeldt, A., Gillberg, C.; Department of Pediatrics and

Child Psychiatry, Child Neuropsychiatry Centre, Göteborg, Sweden; Dev. Med.

Child Neurol. 1991 Aug, 33:8, 737-43.

-- Hypopigmentation in Angelman syndrome, King, R.A., Wiesner, G.L., Townsend,

D., White, J.G., Department of Medicine, University

of Minnesota, Minneapolis 55455; Am. J. Med. Genet. 1993 Apr 1, 46:1, 40-4.

-------

Sara's Diet - a comprehensive dietary approach to autism

http://personal.atl.bellsouth.net/~sojmed/sara's-diet.html

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  • 1 year later...

Hi :

This dizziness started a few months ago and it is when I look up, down, move

quickly or roll over on my left side in bed. My PCP said it is a vertigo

problem which means there is an imbalance of fluid in the inner ear. He

wants the ear dr. to check it out for Miniere's Disease which a pointed

out to me as a possibility and the dr. jumped on it. It is not a serious

problem, just a bit uncomfortable.

I almost really goofed on my urologist appt. and it is a good thing they

called me today to change the time. I thought the appt. was next week Friday

and it is this Thursday. Oh boy, I was really losing it that day. Thank God

for small miracles or I would have missed the appt. I am concerned about my

kidneys because on the IVP x-rays there is abnormalities for which they are

sending me to a specialist. There is supposed blockage/enlargement of the

uretors and displacement. I also have an enlarged liver because of my meds.

Everything seems to be getting affected by my meds lately. Boooooo!!!!!! I

will try not to worry. Thanks .

Jeannette

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Good luck tomorrow at the doc, Jeannette. Have you considered your

fibromyalgia as a source of your dizziness?

Try not to worry about your kidneys. I know it must be scary, but try to

hope the urologist has good, uncomplicated news.

----- Original Message -----

From: <ednettieolson@...>

< egroups>

Sent: Tuesday, September 05, 2000 8:54 AM

Subject: [ ] Good Morning

> Well top of the morning to you all. It is a crisp Tuesday here too .

I

> find I enjoy the cooler weather for a change.

>

> As I mentioned yesterday, we got the truck running. There is a God.

> Tomorrow starts my numerous dr. appts. This one is for my dizziness. I

have

> to be there by 7:00 a.m. That will be a real tough one since I usually

> cannot get up that early. Then the following week is packed with appts.

The

> one I am really concerned about is the Urologist concerning my kidneys.

>

> Hope you all have a nice day.

>

> Jeannette

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Jeannette,

Good thing you won't miss that appointment! That was a close one. Again, I'm

hoping

for the best for you with the urologist.

As for the dizziness/vertigo, I realize it could be many things including

Meniere's, but vertigo and dizziness are also associated with fibromyalgia.

Since you have fibromyalgia, you may want to check these out:

http://www.guaidoc.com/PAGES/fibromyalgia.html

http://adultpain.nursing.uiowa.edu/GenePain/Fibromtt.htm

http://www.fibronorth.com/fibromyalgiabasics.html

Here's a very goo link which discusses some other causes of vertigo,

including

Meniere's (but not fibro):

http://neurologychannel.com/vertigo/types.shtml

Hope this helps and you get some answers.

----- Original Message -----

From: <ednettieolson@...>

< egroups>

Sent: Tuesday, September 05, 2000 2:40 PM

Subject: Re: [ ] Good Morning

> Hi :

>

> This dizziness started a few months ago and it is when I look up, down,

move

> quickly or roll over on my left side in bed. My PCP said it is a vertigo

> problem which means there is an imbalance of fluid in the inner ear. He

> wants the ear dr. to check it out for Miniere's Disease which a

pointed

> out to me as a possibility and the dr. jumped on it. It is not a serious

> problem, just a bit uncomfortable.

>

> I almost really goofed on my urologist appt. and it is a good thing they

> called me today to change the time. I thought the appt. was next week

Friday

> and it is this Thursday. Oh boy, I was really losing it that day. Thank

God

> for small miracles or I would have missed the appt. I am concerned about

my

> kidneys because on the IVP x-rays there is abnormalities for which they

are

> sending me to a specialist. There is supposed blockage/enlargement of the

> uretors and displacement. I also have an enlarged liver because of my

meds.

> Everything seems to be getting affected by my meds lately. Boooooo!!!!!!

I

> will try not to worry. Thanks .

>

> Jeannette

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  • 4 years later...
Guest guest

Hi Toni..

For each meal you should have a movement... did you drink enough water during your fast? or enough juice? Bolthouse Farms have some great juices. and you can/could water them down.

Toni <tone102@...> wrote:

Good Morning Everyone,

Hope this Tuesday finds you all well and my prayers to those that are not.

Rainy and snowy here after a very lovely Monday.

Suzi, thankyou for all the wonderful info on colon cleansing. I know for sure that mine needs a complete and thorough cleansing, though I am not sure where to begin. I think as far as the Indian based cleansing method, maybe raw dairy would be beneficial there. Although I am not a butter user, I would like to try raw butter if I could find it.

I was going to mention something on bowel movements before Shari posted. I am not sure if 'everyone' should be going after each meal,of course that is just my thoughts. I for one have never been that regular and am lucky if my mornings even see that.

I did do the three day juice cleanse last week and all was fine with the exception of an awful caffeine withdrawal the first day and total constipation throughout the entire 3 days. I guess prune juice works the opposite on me. I would personally choose not to drink that again the next go around which I plan on doing again soon but longer. My old cheap juicer though did not fare too well with so many carrots. So another one is on my "wish list".Though it would be so much easier being able to use something already bottled. Not meaning to sound lazy here but depending on what one uses, it gets tedious and pricey. I have to say that I no longer 'love' my raw carrot soup... :)

Wishing everyone a beautiful and blessed day

Toni

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Good Morning Everyone,

I hope this finds you well and prayers to those that are not well. It is brrrrrrrr here. That was just a wild storm last night. More to come but I am thankful for always being given the new day. LOL gotta look at the brighter sides.

Suzi, that is great that you found those juices cheaper. I happen to live in the rip-off state. I am in one of the largest counties too and ask me if I can even find a decent HFS anywhere around. If I had the money, I would like to open my own which is just one dream of mine.

As for the IC #1 and 2, I have no clue as to what that is. I wasn't thinking clean but thinking more in the terms of obstinant :)

I love lemon water and cayenne so that is very do-able. I just need to skate to the store and get some lemons :)

Thanks again

Hopefully I won't repeat myself a bunch of times

LOL..my son says that I do this anyway

Have a beautiful and blessed day

Toni

Our Walmart just started carrying Bolthouse.. a bit cheaper... Dierburgs had a sale of $1.99 for the big bottles.. I do prefer most veggies over most fruit. You may be pretty clean... were you taking the IC #1 and #2...with the last major cleanse?

Have some hot lemonade with cayenne and honey... will warm you right up!

Suzi

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Intestinal Cleanse #1 and #2 (in the files) Toni <tone102@...> wrote:

Good Morning Everyone,

I hope this finds you well and prayers to those that are not well. It is brrrrrrrr here. That was just a wild storm last night. More to come but I am thankful for always being given the new day. LOL gotta look at the brighter sides.

Suzi, that is great that you found those juices cheaper. I happen to live in the rip-off state. I am in one of the largest counties too and ask me if I can even find a decent HFS anywhere around. If I had the money, I would like to open my own which is just one dream of mine.

As for the IC #1 and 2, I have no clue as to what that is. I wasn't thinking clean but thinking more in the terms of obstinant :)

I love lemon water and cayenne so that is very do-able. I just need to skate to the store and get some lemons :)

Thanks again

Hopefully I won't repeat myself a bunch of times

LOL..my son says that I do this anyway

Have a beautiful and blessed day

Toni

Our Walmart just started carrying Bolthouse.. a bit cheaper... Dierburgs had a sale of $1.99 for the big bottles.. I do prefer most veggies over most fruit. You may be pretty clean... were you taking the IC #1 and #2...with the last major cleanse?

Have some hot lemonade with cayenne and honey... will warm you right up!

Suzi

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  • 6 months later...
  • 2 years later...
Guest guest

Good MorningGood morning daybreak.I see you todayand hear your sounds,all beautiful, even the traffic.My crystal ballcovered in dust and hiddendeep in the back of closet forgottennow emits a tiny faint glow,yet a hopeand a reason to put on my shoesand walk forward.It may bethe announcement of life,or some hand of fateplaying tricks with a flashlightto get yet another laugh,but to one already deadin so many ways,what is there

to loose?Yes, fate, destiny,whatever your name,I sseeee you.I denounce you now.I dispel you now.If need be,I will hire a cosmic assassin.Sarcasm speaks;“It has been nice knowing you”.I open the doorand storms fill the skies.Thunder an lightening.Drenching rain.Verified as realby the television weatherman.Yet smiling,I walk outside to pick flowersfor someone special,totally certainthat I will not get wet.copyright,Randy photo and Structure added by Serene

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  • 1 month later...

Tawny,

Mornin Sweetie,

I am up at 4am every workday. Sorry you are having a bad start today.

I think it is time to discuss something else for sleeping.

Also that problem you are having is not good at all. I urge you to not

let it go. It can be many differnt things, but lately I have been

reading about heart attacks with women and those are a couple of the

symptoms. I don't want to scare you just inform you that it could be

more than just a thing going on.

I pray you have a decent day.

Shirley

>

> Way too early for most, just having problems sleeping. I

> took, " Zolpidem " 10mg, which is a sleeping aid, it does nothing for

> me. I will go right to bed, and it takes me 1-2 hours to fall

> asleep. I'm up now, because I'm having low cramping in my stomach.

> I've been having dizziness and nausea the last few weeks, not sure

> what that is from. Seems like I always having something bothering

me.

> Well, take care, and have a gentle day, Tawny

>

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Paris,

Your so right, sleeping is very important for us. I have insomnia

very bad. I was put on a sleeping aid, and now it's not working. My

hip is bothering me really bad. The pain, I believe is coming from a

cyst I have on my ovary. I need to contact my specialist, if I can

make it over the holiday weekend. I've been feeling bad all week,

but just thought I might have a bug, but I think it might be the

cyst. The spec thought it would just go away on it's own, but will

call them Tuesday. I love aromatherapy, I love the lavendar too. My

hubby has indian music, and it is very relaxing. Great ideas, and

since nothing is going on this weekend, I just might do that to relax

my body. Thanks Paris, love your positive attitude. Have a great

weekend. Tawny

>

> Tawny,

>

> I know not sleeping and not getting a good rest makes for a

difficult day.  I was having trouble getting to sleep b/c I was

uncomfortable.  I'm going to a counselor (thanks to my work EAP) and

asked her advise..  It doesn't always work for me and it doesn't keep

you asleep , especially if you're cramping ...but here are the 2

suggestions she gave me....but I also love aromatherapy...lavendar is

my favorite.

>

> 1.  get some relaxing music and play it while you are laying in bed

(i don't remember the name but can get it if anyone wants it....but

it's like an Indian flute with nature sonds)

>

> 2.  This seems strange but it distracts your brain from focusing on

the pain.  Count backwards from 300 subtracting by 3 as you go.  (300-

3+ 297 - 3+ 294 and so on) If you are like me, you really have to

focus on the numbers and I normally end up falling asleep.  One night

though I had to restart!!!  Sleep well tonight!! Paris

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