Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 In a message dated 3/27/00 3:55:52 PM Eastern Standard Time, MiniGastricBypassonelist writes: > I AM SCHEDULED FOR APRIL 10TH. > > I am sooooooooooo excited!! There you go !!! You got your date. WAY to go! Congratulations! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Wait a minute, Rexanne!! I'm from Wisconsin-GO BADGERS!!!!!!!! JEAN MiniGastricBypassonelist wrote: > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates > as low as 0.0% Intro APR and no hidden fees. > Apply NOW! > http://click./1/975/1/_/453517/_/954190405/ > ------------------------------------------------------------------------ > This message is from the Mini-Gastric Bypass Mailing List at Onelist.com > Please visit our web site at http://clos.net > Get the Patient Manual at http://clos.net/get_patient_manual.htm > > ------------------------------------------------------------------------ > > There are 25 messages in this issue. > > Topics in today's digest: > > 1. Re: Insurance Pre-Cert Problems > From: Wilsn@... > 2. Approved > > 3. Re: Insurance Pre-Cert Problems > > 4. Re: Insurance Pre-Cert Problems > From: Wilsn@... > 5. Re: Denied - What am I going to do now? > > 6. Re: right place? > From: stevie@... > 7. OMG! OMG! OMG! I'm scheduled!!! > From: sMama2@... > 8. Re: Digest Number 967 > From: RexanneLSW@... > 9. Re: OMG! OMG! OMG! I'm scheduled!!! > > 10. Re: YAY!!!!!!!!! 3-31-00 > > 11. > From: GiftAngels@... > 12. re: > > 13. Re: Re: right place? > From: MCypher31@... > 14. Re: 's success > From: valmaboyz@... > 15. Surgery Scheduled!!! > From: sharhazel@... > 16. Re: Kitty > From: valmaboyz@... > 17. Re: OMG! OMG! OMG! I'm scheduled!!! > From: MCypher31@... > 18. Re: OMG! OMG! OMG! I'm scheduled!!! > From: zoeybw@... > 19. Re: Surgery Scheduled!!! > From: sMama2@... > 20. Re: 3-31-00 > > 21. Re: Zoey > From: sMama2@... > 22. Denial > From: valmaboyz@... > 23. Re: Zoey > From: zoeybw@... > 24. Re: OMG! OMG! OMG! I'm scheduled!!! > From: lolipop32@... > 25. RE: CHRISTINE > > > _______________________________________________________________________________ > _______________________________________________________________________________ > > Message: 1 > Date: Mon, 27 Mar 2000 13:42:04 EST > From: Wilsn@... > Subject: Re: Insurance Pre-Cert Problems > > FG, > I sent Dr. R and Debbie the information. Should I wait to see if they call > the insurance company before I call them back myself and tell them that Dr. R > is too busy? > > > In a message dated 03/27/2000 11:30:59 AM Central Standard Time, > croby@... writes: > > > > > > > Yes , I was told by my insurance company to have Dr R call them. I > > called them back and said that Dr R was too busy to call and that I needed > a > > contact NAME and a fax number. They gave them to me. I faxed the > > information to that person directly. > > > > fg > > > > At 10:03 AM 03/27/2000 EST, you wrote: > > >From: Wilsn@... > > > > > >Hello Everyone, > > >I just got off the phone with my insurance company. I told them that Dr. > R' > > s > > >office has faxed in the request for a pre-certification for surgery on > > March. > > >18th and I wanted to check on the progress. They told me that Dr. R has > to > > > > >CALL them to get a pre-cert. They gave me 2 different ext. numbers and 2 > > >names for him to ask for. Has anyone else had this to happen??? Is this > a > > > > >good sign or a bad sign??? > > > > > >MGB Wannbe > > _______________________________________________________________________________ > _______________________________________________________________________________ > > Message: 2 > Date: Mon, 27 Mar 2000 13:51:26 -0500 > > Subject: Approved > > WOOOOOOOOOOOHOOOOOOOOOOOOOOO!!!!!!!!!!!!! to & !!!! I won't be far behind ya ladies! I hope to have my packet sent out by week's end! > > Sue(Maine) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2001 Report Share Posted September 16, 2001 HI Lawanda, My name is Maciejewski, (pronounced Ma-je-ski) and my husband Jeff has been " conditionally " diagnosed with MSA. He is 36, and his symptoms are sporadic, but progressively getting worse, and consistent with MSA. My heart goes out to you and all who experience this condition (wonder why they don't call it a disease?). The reason I say conditionally is that no one in our area is really equipped to make a conclusive diagnosis. But after reading the stories that these good people shared with us, I am 95% convinced that Jeff has MSA. I have taken excerpts from the various e-mails, and several research articles, and compiled them for our internist (he made the first suggestion that MSA could be what we are looking at). I took them by his office on Friday around 2:00. He is well aware of Jeff's history, and by 3:30 we had a call from him to be at his office first thing Monday morning so we can FINALLY get a game plan!! I really didn't mean to ramble, I guess what I'm trying to say is that only through this fine group of people were we able to finally convince someone that we were dealing with a serious problem. You have found a good place to come, Lawanda. I will keep you, and all the patients and caregivers of this group in my prayers. Re: introduction Greeting LaWanda! I am a newbie to all this MSA stuff too! I am sad to hear how life has been going for you..... especially on your birthday. The people on this list are wonderful. I have found that no question goes unanswered, and no sorrow goes unnoticed. The expertise here is of the " been there, done that " school of knowledge. Take care, introduction Hello all, Mr. Summers gave me this address when I talked with him on the 10th. Then he had to write me back with the address because I abbreviated some words and did not know what I had abbreviated. The last 6 weeks (including this week) have been the hardest I have ever had to face. I am 39-today, and 6 Weeks ago was hospitalized because I was very ill. I spent 8 days and what seemed like a thousand tests in the hospital and on Friday, August 3rd at 11:30 p.m. one of the many doctors who saw me and told me that I have Multiple System Atrophy. The nuerologist(?) said that multiple areas of my brain were affected. Then he informed me that I was hypotensive, which I had no idea about that. That was why I was " near " fainting, falling down, etc. I had thought (at least for the past 6 mos or so) that my bp was high - 200/150. Of course it was always (before hospital) taken sitting down. My heart rate would run anywhere from 70 to 165. Few of the doctors I had seen had made any comments on this. They all thought it was because of the mystery infection that I had. Anyway, I learn all of this, then come to some kind of grip, not sure what kind yet. My 65 year old mother-whom I was taking care of (I thought) is now my care giver. I also have two boys. She has to take over much of thier care. And boy do I ever feel guilty about that. Then on the 10th I decided to write here the next day and BOOM America is changed forever. I did not want to write during that awful time and make it seem like I was whining (feeling guilty again) and today I couldn't cry real tears and got mad. My mother made me feel a little better by telling me she would put the " tears " in my eyes so I could cry if I wanted her to. At least I smiled at that. Then to put it all down to a very bad day it is my birthday and my boys forgot and my mother is sick and I haven't been " up " to makeing my own cake. About the florinef. That is what I am on right now. .1 mg. I never really understood why except the dr told me I needed it to boost up my pressure. He told me to drink plenty of water (I thought that was because I stopped sweating) and increase my salt intake. But he did not say by how much. So now I am wondering if I increased it enough. Thank you all for being here and reading. LaWanda If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2001 Report Share Posted September 16, 2001 Hello Folks, I want to thank you all again for your many replies to my requests for information on MSA/SDS. After reviewing everything, and reading several articles on the subject, Jeff and I are 95% convinced that he is suffering from this condition. I took the articles and cross sections of the emails I received to Jeff's internist on Friday afternoon, and we are going to meet with him Monday morning for a " strategic planning session " . If you can stand another story, I'll share ours with you: Jeff is 36 yrs old. Does not drink, use drugs or smoke. Does have a nasty habit of chewing tobacco. About 3 years ago, he began having some serious gastrointestinal problems. This included chronic diarrhea, nausea, unexplained stomach pains, difficulty swallowing and esophageal reflux. His internist suspected some type of gastrointestinal or endocrine problem. After a meal, he would be extremely tired, and would ofen fall asleep at the dinner table. We thought it might be a blood sugar problem. In November 1999 he was hospitalized for 4 days, running high fever, severe vomiting, dizziness, etc. He remembers little of the first two days. All the standard test were performed, and he was diagnosed with possible e-coli or Crohn's disease. He was pumped full of fluids and IV antibiotics, and felt great after that (for a month). On new year's day 2000 he was in the hospital again, this time with dangerously low BP, and watery diarrhea, which was diagnosed as a bowel impaction. Again the IV, and again released. He went to the hospital in February to undergo extensive testing of his endocrine system and gastrointestinal system. (He's had about 5 colonoscopy's in 2-1/2 years). Results: inconclusive. In April 2000 he was sent to & White hospital in Temple, TX for another battery of tests. Again, inconclusive. Everywhere we went, we would get the same answer- we can SEE that something's wrong, but we don't know what it is!! So we became fed up, and just let things go. Jeff continued to have bowel problems and what we thought was blood sugar problems (we now know that it was the orthostatic hypotension). Then in Feb of 2001 we had a breakthrough of sorts. We were at the dinner table, everything seemed OK. All of a sudden I could see that Jeff was not right. He was disoriented and seemed to have problems speaking. He said afterwards that he thought he was having a stroke because he couldn't put action to his thoughts. His eyes were dilated like saucers. We went to his internist and Dr said that there are only two things that will cause pupils to unnaturally dilate: drugs, or some type of neurological problem. Dr began doing a preliminary workup and some puzzle pieces began to fall in place. He was sent to and White again, but this time for a neuro consult. Unfortunately, he was seen by a doctor who had not reviewed his file, spent about ten minutes with him, and concluded that he did not have Shy-Drager (orthostatic hypotension was not present, as Jeff was on regulating medication that had been prescribed by Dr. ) He did recommend, however that Jeff curtail his cocaine use!!!! (Absolutely floored by that one!) Since then he's been to another neurologist who admitted he could have MSA, but she'd never had a patient with one, and if he did have it, it was probably in the early stages. Dr. tried to get him up to Mayo clinic, but the neurology department could not (or would not) see him. He finally got him an evaluation up there in August of this year. But they had to start him in internal medicine. After reviewing his extensive history, the internist became quite alarmed. She scheduled him for a battery of tests that, had he stayed, would have taken over 6 weeks to complete. But our financial resources, and his work would not allow that. SO, he got 5 days of testing out of the way (of course, all the neurology was scheduled in the latter part, so NO neurological testing was done). The conclusion-follow up with a full neurological evaluation for possible MSA!!! So, here we are. Rather than put Jeff through another heartbreaking battery of tests, I contacted your group for information. Over the past 6 months Jeff's symptoms have gotten worse. Here's what he is experiencing: Dizziness Nausea Sudden and extreme salivation folowed by nausea and dizziness Difficulty urinating (sometimes goes 10 times a day, sometime 1 time) Difficulty emptying bladder Incontinence at night (twice in past 2 months) orthostatic hypotension blurred vision headaches swelling in hands and feet feels great one minute, terrible the next EXTREME fatigue, almost daily (yesterday he came home, sat on the couch and fell so fast asleep, I couldn't wake him) Inability to regulate body temp, inability to sweat trouble swallowing trouble with movement, stumbling, inability to control fine motor skills slow, shuffling gait sleep apnea shortness of breath severe back pain muscle rigidity in the back at night I'm having trouble understanding him-he speaks in a low pitch monotone most of the time He's always had small handwriting, but it's gotten alot worse The only thing we haven't experienced yet is the impotence. But I see changes in that area as well (I'll just leave it at that!) We are pretty scared right now. We have a 10 year old daughter and 2 year old son. Our family does not know everything, because we want to be sure before we tell them. Jeff is still working, but he comes home so tired at night. Sometimes he even has to leave work early and just comes home and goes to bed. He's also still playing golf, which beside his family is his great passion in life. But golf is becoming more difficult. He was a scratch handicap last year. This year is up to a 7-8 (which is still really good for most people, but not Jeff) He can't control his golf swing as well as he used to, and gets very dizzy and ill when he plays. This summer he'd get extremely sick. After reading all the emails about sweating and heat stroke, I think that's what was going on. Thank god he drank a ton of water on the course as he played. Funny thing is he never urinated!! The other day he admitted to completey missing the ball on a putt-just could not control the movement to make contact with the ball. On another putt, he hit it so hard it rolled past the cup (8 inches away), and off the green. He walks around the house like an old man. And the kids are noticing it too. , our daughter wonders why daddy is so tired all the time, and he just doesn't have any energy to play with the baby. Well, enough. I'm sorry if I've been too long-winded in this. But I don't really have anyone I can talk to who can relate. So thanks for " listening " . You've all been great! - Maciejewski (pronounced Ma-je-ski) Re: introduction Greeting LaWanda! I am a newbie to all this MSA stuff too! I am sad to hear how life has been going for you..... especially on your birthday. The people on this list are wonderful. I have found that no question goes unanswered, and no sorrow goes unnoticed. The expertise here is of the " been there, done that " school of knowledge. Take care, introduction Hello all, Mr. Summers gave me this address when I talked with him on the 10th. Then he had to write me back with the address because I abbreviated some words and did not know what I had abbreviated. The last 6 weeks (including this week) have been the hardest I have ever had to face. I am 39-today, and 6 Weeks ago was hospitalized because I was very ill. I spent 8 days and what seemed like a thousand tests in the hospital and on Friday, August 3rd at 11:30 p.m. one of the many doctors who saw me and told me that I have Multiple System Atrophy. The nuerologist(?) said that multiple areas of my brain were affected. Then he informed me that I was hypotensive, which I had no idea about that. That was why I was " near " fainting, falling down, etc. I had thought (at least for the past 6 mos or so) that my bp was high - 200/150. Of course it was always (before hospital) taken sitting down. My heart rate would run anywhere from 70 to 165. Few of the doctors I had seen had made any comments on this. They all thought it was because of the mystery infection that I had. Anyway, I learn all of this, then come to some kind of grip, not sure what kind yet. My 65 year old mother-whom I was taking care of (I thought) is now my care giver. I also have two boys. She has to take over much of thier care. And boy do I ever feel guilty about that. Then on the 10th I decided to write here the next day and BOOM America is changed forever. I did not want to write during that awful time and make it seem like I was whining (feeling guilty again) and today I couldn't cry real tears and got mad. My mother made me feel a little better by telling me she would put the " tears " in my eyes so I could cry if I wanted her to. At least I smiled at that. Then to put it all down to a very bad day it is my birthday and my boys forgot and my mother is sick and I haven't been " up " to makeing my own cake. About the florinef. That is what I am on right now. .1 mg. I never really understood why except the dr told me I needed it to boost up my pressure. He told me to drink plenty of water (I thought that was because I stopped sweating) and increase my salt intake. But he did not say by how much. So now I am wondering if I increased it enough. Thank you all for being here and reading. LaWanda If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2001 Report Share Posted September 16, 2001 Hello Folks, I want to thank you all again for your many replies to my requests for information on MSA/SDS. After reviewing everything, and reading several articles on the subject, Jeff and I are 95% convinced that he is suffering from this condition. I took the articles and cross sections of the emails I received to Jeff's internist on Friday afternoon, and we are going to meet with him Monday morning for a " strategic planning session " . If you can stand another story, I'll share ours with you: Jeff is 36 yrs old. Does not drink, use drugs or smoke. Does have a nasty habit of chewing tobacco. About 3 years ago, he began having some serious gastrointestinal problems. This included chronic diarrhea, nausea, unexplained stomach pains, difficulty swallowing and esophageal reflux. His internist suspected some type of gastrointestinal or endocrine problem. After a meal, he would be extremely tired, and would ofen fall asleep at the dinner table. We thought it might be a blood sugar problem. In November 1999 he was hospitalized for 4 days, running high fever, severe vomiting, dizziness, etc. He remembers little of the first two days. All the standard test were performed, and he was diagnosed with possible e-coli or Crohn's disease. He was pumped full of fluids and IV antibiotics, and felt great after that (for a month). On new year's day 2000 he was in the hospital again, this time with dangerously low BP, and watery diarrhea, which was diagnosed as a bowel impaction. Again the IV, and again released. He went to the hospital in February to undergo extensive testing of his endocrine system and gastrointestinal system. (He's had about 5 colonoscopy's in 2-1/2 years). Results: inconclusive. In April 2000 he was sent to & White hospital in Temple, TX for another battery of tests. Again, inconclusive. Everywhere we went, we would get the same answer- we can SEE that something's wrong, but we don't know what it is!! So we became fed up, and just let things go. Jeff continued to have bowel problems and what we thought was blood sugar problems (we now know that it was the orthostatic hypotension). Then in Feb of 2001 we had a breakthrough of sorts. We were at the dinner table, everything seemed OK. All of a sudden I could see that Jeff was not right. He was disoriented and seemed to have problems speaking. He said afterwards that he thought he was having a stroke because he couldn't put action to his thoughts. His eyes were dilated like saucers. We went to his internist and Dr said that there are only two things that will cause pupils to unnaturally dilate: drugs, or some type of neurological problem. Dr began doing a preliminary workup and some puzzle pieces began to fall in place. He was sent to and White again, but this time for a neuro consult. Unfortunately, he was seen by a doctor who had not reviewed his file, spent about ten minutes with him, and concluded that he did not have Shy-Drager (orthostatic hypotension was not present, as Jeff was on regulating medication that had been prescribed by Dr. ) He did recommend, however that Jeff curtail his cocaine use!!!! (Absolutely floored by that one!) Since then he's been to another neurologist who admitted he could have MSA, but she'd never had a patient with one, and if he did have it, it was probably in the early stages. Dr. tried to get him up to Mayo clinic, but the neurology department could not (or would not) see him. He finally got him an evaluation up there in August of this year. But they had to start him in internal medicine. After reviewing his extensive history, the internist became quite alarmed. She scheduled him for a battery of tests that, had he stayed, would have taken over 6 weeks to complete. But our financial resources, and his work would not allow that. SO, he got 5 days of testing out of the way (of course, all the neurology was scheduled in the latter part, so NO neurological testing was done). The conclusion-follow up with a full neurological evaluation for possible MSA!!! So, here we are. Rather than put Jeff through another heartbreaking battery of tests, I contacted your group for information. Over the past 6 months Jeff's symptoms have gotten worse. Here's what he is experiencing: Dizziness Nausea Sudden and extreme salivation folowed by nausea and dizziness Difficulty urinating (sometimes goes 10 times a day, sometime 1 time) Difficulty emptying bladder Incontinence at night (twice in past 2 months) orthostatic hypotension blurred vision headaches swelling in hands and feet feels great one minute, terrible the next EXTREME fatigue, almost daily (yesterday he came home, sat on the couch and fell so fast asleep, I couldn't wake him) Inability to regulate body temp, inability to sweat trouble swallowing trouble with movement, stumbling, inability to control fine motor skills slow, shuffling gait sleep apnea shortness of breath severe back pain muscle rigidity in the back at night I'm having trouble understanding him-he speaks in a low pitch monotone most of the time He's always had small handwriting, but it's gotten alot worse The only thing we haven't experienced yet is the impotence. But I see changes in that area as well (I'll just leave it at that!) We are pretty scared right now. We have a 10 year old daughter and 2 year old son. Our family does not know everything, because we want to be sure before we tell them. Jeff is still working, but he comes home so tired at night. Sometimes he even has to leave work early and just comes home and goes to bed. He's also still playing golf, which beside his family is his great passion in life. But golf is becoming more difficult. He was a scratch handicap last year. This year is up to a 7-8 (which is still really good for most people, but not Jeff) He can't control his golf swing as well as he used to, and gets very dizzy and ill when he plays. This summer he'd get extremely sick. After reading all the emails about sweating and heat stroke, I think that's what was going on. Thank god he drank a ton of water on the course as he played. Funny thing is he never urinated!! The other day he admitted to completey missing the ball on a putt-just could not control the movement to make contact with the ball. On another putt, he hit it so hard it rolled past the cup (8 inches away), and off the green. He walks around the house like an old man. And the kids are noticing it too. , our daughter wonders why daddy is so tired all the time, and he just doesn't have any energy to play with the baby. Well, enough. I'm sorry if I've been too long-winded in this. But I don't really have anyone I can talk to who can relate. So thanks for " listening " . You've all been great! - Maciejewski (pronounced Ma-je-ski) Re: introduction Greeting LaWanda! I am a newbie to all this MSA stuff too! I am sad to hear how life has been going for you..... especially on your birthday. The people on this list are wonderful. I have found that no question goes unanswered, and no sorrow goes unnoticed. The expertise here is of the " been there, done that " school of knowledge. Take care, introduction Hello all, Mr. Summers gave me this address when I talked with him on the 10th. Then he had to write me back with the address because I abbreviated some words and did not know what I had abbreviated. The last 6 weeks (including this week) have been the hardest I have ever had to face. I am 39-today, and 6 Weeks ago was hospitalized because I was very ill. I spent 8 days and what seemed like a thousand tests in the hospital and on Friday, August 3rd at 11:30 p.m. one of the many doctors who saw me and told me that I have Multiple System Atrophy. The nuerologist(?) said that multiple areas of my brain were affected. Then he informed me that I was hypotensive, which I had no idea about that. That was why I was " near " fainting, falling down, etc. I had thought (at least for the past 6 mos or so) that my bp was high - 200/150. Of course it was always (before hospital) taken sitting down. My heart rate would run anywhere from 70 to 165. Few of the doctors I had seen had made any comments on this. They all thought it was because of the mystery infection that I had. Anyway, I learn all of this, then come to some kind of grip, not sure what kind yet. My 65 year old mother-whom I was taking care of (I thought) is now my care giver. I also have two boys. She has to take over much of thier care. And boy do I ever feel guilty about that. Then on the 10th I decided to write here the next day and BOOM America is changed forever. I did not want to write during that awful time and make it seem like I was whining (feeling guilty again) and today I couldn't cry real tears and got mad. My mother made me feel a little better by telling me she would put the " tears " in my eyes so I could cry if I wanted her to. At least I smiled at that. Then to put it all down to a very bad day it is my birthday and my boys forgot and my mother is sick and I haven't been " up " to makeing my own cake. About the florinef. That is what I am on right now. .1 mg. I never really understood why except the dr told me I needed it to boost up my pressure. He told me to drink plenty of water (I thought that was because I stopped sweating) and increase my salt intake. But he did not say by how much. So now I am wondering if I increased it enough. Thank you all for being here and reading. LaWanda If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.