Re: I've been sick and trying to jump back in, hard to do

[Guest guest]

Marti, so nice to hear from you. I am glad you are getting better. Pneumonia

is no fun. It is down right scary.

Please don't ever be afraid to jump in here Marti. You know we all miss you.

And the newcomers are going to get to know you and find you are a real asset to

this group.

You are a wonderful lady.

Take care sweetie,

love,

Debra V.

Marti Boguski wrote:

Hey Y'all,

This is Marti.

I've been a member for a while now, but I've had pneumonia, and bronchitis

before that, since Christmas. It's complicated by my Sarcoidosis and it's really

got a hold on me. I'm trying to stay out of the hospital and have had my son

here taking care of me. He's got to go back tonight and one of my

neighbors will check on me. My daughter Andi works, has 3 kids, and is 40 min

away but she e-mails and calls a lot.

I've tried several times to jump back into the posting on site, but I just can't

seem to find a place that's not in the middle of something I know nothing about

and I don't want to intrude on on-going conversations and strings. I also see so

many new members and I haven't welcomed any of you and I feel bad about that. So

I just thought I would kind of join all over again.

I'm Marti. I have Fibro and was dx in 1991 after two years of trying to find out

what was wrong with me. I was an extremely active person as most people on here

were before the fibro dragon breathed it's fire on me. I was a wife, a mother of

two, a business owner, a volunteer at a home for battered women, at the kids

schools, their activities and church, played competitive tennis 4Xweek, cooked

dinner, helped with homework, particularly helped my son with his because

he has Asperger Syndrome. and was an advocate for him and other children. There

was more and I never got sick or felt exhausted. Of course I felt tired at

times, but a good tired. The first thing that went was my tennis which I had

been playing since I was 5 and I loved the most, but was the most expendable and

took the most energy. Subsequently I was divorced in 1996, gave up my volunteer

work and gradually the beast took away everything until it finally got my

business in 2003. I make a meager

income and barely get by. I do not have SSD. I had saved some for retirement and

so don't qualify for medicaid or assistance. I will lose my home by the end of

the year and will have to find someplace to live, but I have no idea where.

I live in a small town in CT. I am 59, but am surprised when I look in the

mirror because I think like I'm barely 40. I have 2 children. Andi 34, is a wife

to Joe and mother to Jack 6, Brady 3 and Aidan 9 mons. She and Joe take turns

working and staying home with the kids, so there is no daycare. She is very busy

and lives 40 min away. 30 is a Special Education Teacher in elementary

school and is working on his masters in spec. ed., doing his thesis this

semester. He also works the 5 to 11 shift on weekdays and 10am to 11pm shifts on

every other Saturday and 2 to 11 shift on every other Sunday as a Med Tech in a

hospital. He isn't married but has a lot of friends and has an active social

life. He still needs help coping with life on a daily basis by phone with me.

He's worth it. He's very nurturing and is as helpful as he can be for me while

living 2 hours away in Boston. He is the only one of my family and friends who

actually " gets it " - know what

fibromyalgia does to me.

I have and take meds for Hypothyroidism, AADD, Narcolepsy, Sarcoidosis, Acid

Reflux, Bronchial Asthma, Allergies, PTSD, Depression, DID, and Anxiety

disorder. I also have but do not have meds for Fibromyalgia (except

cyclobenzaprine), IBS, Sleep Apnea and a few other things. Before I had Fibro I

had all of the other things. I know that there is thought that Fibro can be

brought on by trauma. I have PTSD because of an abusive upbringing and an

abusive marriage. I also had surgery on two ruptured discs, cervical 1 and 2, in

my neck 2 years before I was dx with Fibro. I kind of think the trauma was the

surgery, but don't know of course. I've also had a doctor tell me that

Narcolepsy can be brought on by an abusive childhood. Don't know what that has

anything to do with anything.

That's basically my story and if it's OK I'll just try to jump back into the

conversations, as I feel better a little at a time.

I'm sure you're as exhausted reading this as I am writing it.

I do want to add a welcome to all the newcomers that I have missed. I hope to

get to know you as soon as possible. I know you will find here the warm,

wonderful, supportive people that I have. I've really missed all of you on this

site. I need some cheering up and I know this is the place to come.

Thanks for reading this diatribe - if you could make it through - I really

appreciate it.

Marti

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