Guest guest Posted April 18, 2008 Report Share Posted April 18, 2008 Hi Gwynne, I've never written to you before, but feel I know you just reading about you on the board! Everyone is so happy for you and I want you to know this "Newbie" is just as excited. My license plate here in Nevada has a big red heart and the letters DL. They stand for Donate Life, and it is our organ donor plate. I have actively tried to arouse peoples knowledge of the need for organs from the beginning. It always amazed me how many answers I've gotten for NOT doing it from seemingly intelligent people. But I just kept plugging. Now with IPF, I'm glad I've been doing it, because we never know when we will need one. Stay healthy and happy, Terry Gwynne Keyland wrote: I forgot to add my own update. I switched pain medsand am now on Vicodin. It seems to give me a headacheso will have to work on that one. But I am sleeping prettywell at night on 6 mg. daily of Prograf and 40 mg. dailyof Prednisone, AMAZINGLY. I also usually nap in themornings. My tremors are bad, but at least the pain is atad better every day, and they're a small price to pay forthe gift I've been given. Today I took three walks aroundthe apt. complex - just me, my mask, my son and Misha- outside.I just keep saying, " I'm walkin, I'm walkin, I'm walkinand I'm talkin."One of my favorite things is letting the warm showerwater run over the incision site. Very soothing. Thanks somuch to those of you who have sent cards and well wishes.My apt. phone number is or you can try. Again, I'm at7733 Louis Pasteur #321San , TX 78229The new strong lung feels like a part of me - a very specialand precious part of me. God is so loving.I'm so thrilled with Joyce's Flolan news. Wish she didn't havethe teeth crap to deal with. A potential transplant on thehorizon for her is phenomenal to consider.Irene, wish I could kick that incompetent and mean-spirited nurse's butt. Keep insisting for someone else,and definitely always report people like that so someonewill know!May, I'm excited about the wedding plans coming along.Joy and Caro, you're both in my prayers.Hugs and blessings,Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2008 Report Share Posted April 18, 2008 Gwynne Warm shower...you mean like that thing that before would have taken all your breath away and sent you coughing beyond imagination and just couldn't be managed? Walking, walking, walking....you mean like that thing before that required 15 lpm of oxygen and still you couldn't manage much of but just did what you could? SHOW OFF!!!!!!!!!!!!!! Oh, I do love it. Keep telling us and sharing those marvelous moments or euphoria...euphoria that isn't even Vicodin based. Every time I hear of one of those activities or feelings, I don't just feel great for you, but for all of us. One, that we are allowed to share the joy. Two, that as we do hear positive things, whether from you or Joyce or anyone's day, it does give each of us a little more hope and belief that tomorrow will be a good day for us. > > I forgot to add my own update. I switched pain meds > and am now on Vicodin. It seems to give me a headache > so will have to work on that one. But I am sleeping pretty > well at night on 6 mg. daily of Prograf and 40 mg. daily > of Prednisone, AMAZINGLY. I also usually nap in the > mornings. My tremors are bad, but at least the pain is a > tad better every day, and they're a small price to pay for > the gift I've been given. Today I took three walks around > the apt. complex - just me, my mask, my son and Misha > - outside. > I just keep saying, " I'm walkin, I'm walkin, I'm walkin > and I'm talkin. " > One of my favorite things is letting the warm shower > water run over the incision site. Very soothing. Thanks so > much to those of you who have sent cards and well wishes. > My apt. phone number is or you can try > . Again, I'm at > 7733 Louis Pasteur #321 > San , TX 78229 > The new strong lung feels like a part of me - a very special > and precious part of me. God is so loving. > > I'm so thrilled with Joyce's Flolan news. Wish she didn't have > the teeth crap to deal with. A potential transplant on the > horizon for her is phenomenal to consider. > > Irene, wish I could kick that incompetent and mean- > spirited nurse's butt. Keep insisting for someone else, > and definitely always report people like that so someone > will know! > > May, I'm excited about the wedding plans coming along. > Joy and Caro, you're both in my prayers. > > Hugs and blessings, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2008 Report Share Posted April 18, 2008 Thanks Gwynne. I'm so glad to hear you're doing pretty well, everyday! Irene ---- Original Message ---- To: Breathe-Support Sent: Fri, 18 Apr 2008 7:16 pm Subject: Re: oops forgot Gwynne Warm shower...you mean like that thing that before would have taken all your breath away and sent you coughing beyond imagination and just couldn't be managed? Walking, walking, walking....you mean like that thing before that required 15 lpm of oxygen and still you couldn't manage much of but just did what you could? SHOW OFF!!!!!!!!!!!!!! Oh, I do love it. Keep telling us and sharing those marvelous moments or euphoria...euphoria that isn't even Vicodin based. Every time I hear of one of those activities or feelings, I don't just feel great for you, but for all of us. One, that we are allowed to share the joy. Two, that as we do hear positive things, whether from you or Joyce or anyone's day, it does give each of us a little more hope and belief that tomorrow will be a good day for us. > > I forgot to add my own update. I switched pain meds > and am now on Vicodin. It seems to give me a headache > so will have to work on that one. But I am sleeping pretty > well at night on 6 mg. daily of Prograf and 40 mg. daily > of Prednisone, AMAZINGLY. I also usually nap in the > mornings. My tremors are bad, but at least the pain is a > tad better every day, and they're a small price to pay for > the gift I've been given. Today I took three walks around > the apt. complex - just me, my mask, my son and Misha > - outside. > I just keep saying, " I'm walkin, I'm walkin, I'm walkin > and I'm talkin." > One of my favorite things is letting the warm shower > water run over the incision site. Very soothing. Thanks so > much to those of you who have sent cards and well wishes. > My apt. phone number is or you can try > . Again, I'm at > 7733 Louis Pasteur #321 > San , TX 78229 > The new strong lung feels like a part of me - a very special > and precious part of me. God is so loving. > > I'm so thrilled with Joyce's Flolan news. Wish she didn't have > the teeth crap to deal with. A potential transplant on the > horizon for her is phenomenal to consider. > > Irene, wish I could kick that incompetent and mean- > spirited nurse's butt. Keep insisting for someone else, > and definitely always report people like that so someone > will know! > > May, I'm excited about the wedding plans coming along. > Joy and Caro, you're both in my prayers. > > Hugs and blessings, > Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2008 Report Share Posted April 18, 2008 You have been such an inspiration, I get tears everytime you post. Tears of Joy.Steve59 from WA IPF 2006 Reply-To: Breathe-Support To: BREATHE-SUPPORT Information <Breathe-Support >Subject: oops forgotDate: Fri, 18 Apr 2008 18:38:37 -0500 I forgot to add my own update. I switched pain medsand am now on Vicodin. It seems to give me a headacheso will have to work on that one. But I am sleeping prettywell at night on 6 mg. daily of Prograf and 40 mg. dailyof Prednisone, AMAZINGLY. I also usually nap in themornings. My tremors are bad, but at least the pain is atad better every day, and they're a small price to pay forthe gift I've been given. Today I took three walks aroundthe apt. complex - just me, my mask, my son and Misha- outside.I just keep saying, " I'm walkin, I'm walkin, I'm walkinand I'm talkin."One of my favorite things is letting the warm showerwater run over the incision site. Very soothing. Thanks somuch to those of you who have sent cards and well wishes.My apt. phone number is or you can try. Again, I'm at7733 Louis Pasteur #321San , TX 78229The new strong lung feels like a part of me - a very specialand precious part of me. God is so loving.I'm so thrilled with Joyce's Flolan news. Wish she didn't havethe teeth crap to deal with. A potential transplant on thehorizon for her is phenomenal to consider.Irene, wish I could kick that incompetent and mean-spirited nurse's butt. Keep insisting for someone else,and definitely always report people like that so someonewill know!May, I'm excited about the wedding plans coming along.Joy and Caro, you're both in my prayers.Hugs and blessings, Quote Link to comment Share on other sites More sharing options...
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