Re: Update on my Dr. appt for Tingling etc.

[Guest guest]

Yeah ! I just met my rheumy and she was lovely, she gave me some websites to

read and has organised some support groups and stuff and more importantly she

said when dealing with PTSD don't underestimate the level of trauma those that

don't get it bring to the table. In my case she was referring to the amount of

Dr's who mis diagnosed me.

Although in her view she cannot beleive how they missed it my test results go

back 10 years and each and everyone shows a yellow brick road to FM. She is

appaulled at the attitude of some of the Dr's and she thinks they definitely

contributed to my symptoms being worse, she's say's if I had diaries she would

bet a million bucks my " flares " would be around Dr distress periods. In fact in

order to keep my D5 down (dr's who disagnose diffuse differential dissosociation

disorder) isn't it cute, (D5 Dr's are those that think women in general are

hysterial let alone FM) should be kept as far away from us as possible.

She also said that every Dr is different but the way she tells a depressed from

an FM is to ask them what they do after shopping. I said " game over " that's the

end of my day. She said that depressed people will say they feel better or worse

and relate it to the contact they have had with others, like meeting friends for

lunch or something whereas we are out of spoons that simple, there is no room

for anything after shopping. She said its not a " real test " but its just the way

she can tell someone who is crippled by FM and those that would get greater

benefit for an antidepressant. I'm not miserible, but I am exhausted and I am so

glad she could tell the difference.

Anyway my day took 8 hours of travelling with the storm breaking the train twice

and a bus once, a climb down the side of a cliff to get off the train onto the

bus and so I am on 3 days bed rest to get over my trip.

Worth every miserible cent.

Have fun

Bonnie

Re: Update on my Dr. appt for Tingling etc.

I just realized that if I get your message on the other site it comes through on

larger print so I'll do it that way next time. Yay I could see it.

Marti

Angie wrote:

BP and other vitals were good.

Dr. determined it is myofacial pain. She located about a dozen " trigger points " .

She said the migraine and/or Imitrex could have triggered the episode. Some of

the trigger points were also impact points from the fall; so the fall may have

been the initial trigger. She advised not taking the Imitrex unless I really

must; and put me on Soma; to be taken for a while and then as needed.

Soma is what the gp put me on after the fall, but I'd stopped taking it

(samples) right before the migraine started. As for what is triggering the

migraines, dunno. I was going to ask my gp for something different from the

Imitrex anyway because it makes me feel so weird.

So looks like I'm gonna live. Just more pains to deal with.

Angie Harley Mama Double-D

Carson City, NV; Single, five children (3 at home), 2 dogs, 5 cats, snow skiing,

camping, Harley Rider, Lone Wolf, Blue Thong Society/High Sierra Thong Snappers

member, LFA Advocate, independent, opinionated, outspoken, and open minded.

" It's always something. " ~~~Gilda Radner

" While we have the gift of life, it seems to me theonly tragedy is to allow part

of us to die - whether it is our spirit,our creativity or our glorious

uniqueness. " ~~~Gilda Radner

http://360.yahoo.com/lovinglifeinnv

http://www.myspace.com/amkg

http://doripost.agrato.info/

http://www.xanga.com/PurplePassionate

http://www.facebook.com/profile.php?id=592316375

http://health.groups.yahoo.com/group/LupusSurvivorsU/

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs