Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 WOW Geeta, That is a wonderful thing to be so stable this long. God is Indeed good. Love and Prayers, PeggyIPF 2004, Florida"Worry looks around, Sorry looks back, Faith looks up." Beth,I am begining to think i too have NSIP and not IPF, I was diagnosed in 1995I have responded well to prednisone I am stable for long periods( as at presentEach time the dosage is increased my cough lessens and lung condn. improves.I have been on o2 since 3 years 2L on rest and 4 L on exertion. what do you feel?Geeta>> Sher,> I'm happy to hear the doctors have switched your diagnosis. NSIP is definitely preferable to IPF, the life expectancy is much longer and as a bonus, it does not always progress. As a matter of fact, Dr. on at Duke just told me last month that he's seen patients with NSIP who have been "stable for decades." I mean I know that my experience may be different but anything that gives us hope is helpful!> Have they switched your dx based on the behavior of the disease or also on the ct scan results? NSIP is usually very identifiable by CT scan. To identify the type of NSIP (fibrotic, cellular or mixed) you would need a biopsy. But at this point it probably doesn't matter as long as your stable. I understand why you wouldn't put yourself through that. I don't regret my biopsy but I totally get why you've chosen not to go down that road.> In the meantime, celebrate stability!! Stable is my happy word!!> Beth > Age 48 Fibrotic NSIP 06/06> > Change everything. Love and Forgive> Quote Link to comment Share on other sites More sharing options...
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