Re: Pain

[Guest guest]

Dear group,

I've actually been experiencing this to a lesser degree for

about...well...3 years now. It's not so much the pain with me

(surprisingly, I have very mild pain in comparison to many of the

people in this group...it's more of a " flu like " achiness that I feel

most of the time). Anyway, every single morning I wake up and I'm

stiff and weak from head to toe, and it pretty much stays this way,

to some degree, throughout the day. That, and my head is all full

and dizzy. It's no fun! I find that, if I have one beer (I'm a

light weight) when I feel like this, I actually feel better. I think

it might have to do with the muscle relaxing properties in alcohol.

I used to take xanax all the time, but I don't want to risk becoming

addicted to that stuff again. Anyway, I think that anything that

relaxes the muscles tends to help me feel better all over. Just a

thought.

Elena

ACM 8-10 mm

Surgery this Feb. 11

> Hey everybody,

> I haven't posted in a while. I could use some feedback on

some things.

>

> In the last 3 weeks I've been experiencing some pain in my back and

legs and hands. At first I thought it was because I had worked out

for the first time in a long time. I was sore for a few days then

felt better. Then it started again later in the next week. My

feet have always hurt and been sore. I had surgery on one in 2000.

>

> It started with left flank pain and then right flank pain the

next. I took some of the pain meds I've got and it went away then my

lower back started to hurt. It hurt to bend over or arch in anyway.

It even hurt while laying down. My knees have begun to really hurt

too and is sometimes difficult to walk.

>

> Everything seemed to come to a head a week ago Sunday when I got up

and barely made it to the shower. The warm water helped to loosen me

up some but then I got real dizzy. After I got out of the shower I

vomited some yellow stuff. I only vomited that one time. I was

still dizzy so I took an Antivert. It helped but the headache I had

was tremendous. I was almost an hour late for work because of this.

As the night went on I felt better but still weak. I got off the

next morning and slept for the most part until Tuesday morning. Most

of the rest of the week I felt like I was starting to feel better

until last night. I woke up extremely stiff and in pain, everything

hurt. I had a headache, my arms and hands hurt, my legs, my knees,

my neck and my back just hurt. It hurt to move and it hurt to just

stay still. I made it to the shower and the hot water helped some

but I was really dizzy again. I got out but was still in alot of

pain. By this time I was in tears it hurt so bad. I called my job

in tears and told the Lead that I was going to be late that I was

just in pain and needed some time to get it under control.

Fortunately the Lead that was on knows how much I've been dealing

with Chiari and understands and told me not to worry to just do what

I needed to do, too Come if I could and call in 2 hours if I wasn't

going to make it. I immediately got the heating pad and used it

and took some pain medicine. It subsided some and I went to work. I

was a little more than 2 hours late. As the night progressed I felt

better and better but still sore and weak. I don't know what else

to do or how to prevent this from happening. I haven't done anything

that would put me in this much pain. I've been getting enough rest

too. From the pattern I've noticed it is really bad when I first

get up and gradually gets better but not 100% as the day/night goes

by.

>

> The only thing I can think of that might be doing this to me is the

Nortriptyline I've been on for about a month now to try to control

the headaches. This seems to be not going away but getting worse

and worse. I'm tough and can take just about anything and any

amount of pain. So for me to be crying because of it and to call my

job crying, I know I was really hurting.

>

> I have to go to work tonight as I'm scheduled and I can't really

afford to be out sick. I'm tired and want to get some sleep but I

dread waking up later in this pain again.

>

> I've tried everything I can think of to only minor relief. Ice,

heat, pain meds, hot baths/showers, gentle massages etc. What else

is there? I don't know where to go from here. I haven't seen my new

PCP this year yet and my neurologist appointment isn't until the

beginning of March and I don't see the neurosurgeon until the end of

February.

>

> Any ideas, etc.?

>

> Painfully and tiredly yours,

> Amber in Tampa, FL

> ACM I 10mm

>

>

>

[Guest guest]

When I was a " kid " I hurt my back pretty badly. I waited two years

before someone recognized I needed more than a pat on the back and some

OTC pain meds. A chiropractor's assistant fixed my back and then taught

me how to do the same thing. I was 19 at the time. Since then I've had

to work on my back in the same fashion or teach others to do it,

because affording a chiropractor is like affording anything else in

this world, not possible on my budget. There are three ways I work on

my bad back. One, I have my husband or my friend Mama T, who owns this

site, work on it and I help theirs. Two, I anchor my feet and have my

kids, both taller and larger than I am, haul me across the bed by the

shoulders. It works, usually can crack my entire back that way. Or, I

bend at the waist from a location high enough where I can dangle my

head to the floor for a few moments, and sometimes that works. My

husband has also managed to hoist me by the elbows with my arms crossed

across my chest, which also works.

>

> Have a question for you all? I have been experiencing severe back pain

> in my lower back since Sept 14th, the day that I found out about all

> my disc bulging i asked the dr. about the lower pain and his responce

> was when your off in the upper you off in the lower, but he doesn't

> understand that the pain is getting to the point that if i sit for any

> length of time, i have to get up and walk around then I hurt so bad i

> can hardly walk at all, so I'm not quite sure how to handle this, any

> suggestions would be deeply appreciated! Leanne

>

[Guest guest]

Hi Tigger and Debra, I'm Marti, new to the group

I hope it's OK to just jump in here. I just wanted to say I can definitely

empathize with the doctors who think the depression comes first. I go to a

psychiatrist who kind of rolls his eyes when I say anything about Fibro causing

mental fogginess and intense pain. He says yeah it does sometimes. He is just

so sure the depression is causing the symptoms. I think he would feel

differently if he had to quick doing all the energetic things he enjoyed and

finally had to quick working because of an illness nobody can see. I just love

the " but you look just fine " from friends and family.

I so sorry you're having such a hard time Tigger. I'm feeling a little better

today, which is why I finally had the energy to join a support group.

I live in Connecticut - not far from you, Tigger. The weather is bad on Fibro

I think, the cold I mean, but I'm not really sure. Sometimes I even think the

barometric pressure makes it worse, but then there are days it doesn't.

Thanks for listening.

Marti

debra van ness wrote:

Ok... here with go with doctors thinking " if the depression is fixed,

you won't hurt " ..... That is rediculous because they may as well say that your

pain is all due to depression and psych issues. It ignores FIBROMYALGIA.

Love,

Debra V.

Tigger wrote:

O.K., get ready because I'm bitchin'. I WANT PAIN RELIEF!!! I WANT IT

NOW!!! I know I sound like a spoiled child, but because I have a gastric

by-pass, doctors don't (or won't) realize that my body is not like everyone

else's. I need stronger amount. I need stuff that I can get into my system

quickly.

If one more doctor tells me that once we get the depression under control,

the pain will go. I just take my very large file and stuff it in that

doctor's very small mouth.

Sorry, but I hurt so much and I feel so awful. Oh, and don't try the patch

antidepressant called Emsam. horrible side effects. It was like being

stoned on the fentanyl again with almost killed me.

Tigger (Ruth) in Rhode Island

[Guest guest]

And not to mention that I’ve been clinically depressed my whole life. I was

being treated before it before I was diagnosed with fibro. Now, it is hard

to say if I was depressed before I had fibro because the doctors (the smart

ones that I no longer have for reasons out of my control) aren’t really sure

when my fibro began.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of debra van

ness

Sent: Tuesday, November 20, 2007 4:29 PM

To: Fibromyalgia_Support_Group

Subject: Re: PAIN

Ok... here with go with doctors thinking " if the depression is fixed, you

won't hurt " ..... That is rediculous because they may as well say that your

pain is all due to depression and psych issues. It ignores FIBROMYALGIA.

Love,

Debra V.

Tigger <tigger.pinkraincoat@...

<mailto:tigger.pinkraincoat%40gmail.com> > wrote:

O.K., get ready because I'm bitchin'. I WANT PAIN RELIEF!!! I WANT IT

NOW!!! I know I sound like a spoiled child, but because I have a gastric

by-pass, doctors don't (or won't) realize that my body is not like everyone

else's. I need stronger amount. I need stuff that I can get into my system

quickly.

If one more doctor tells me that once we get the depression under control,

the pain will go. I just take my very large file and stuff it in that

doctor's very small mouth.

Sorry, but I hurt so much and I feel so awful. Oh, and don't try the patch

antidepressant called Emsam. horrible side effects. It was like being

stoned on the fentanyl again with almost killed me.

Tigger (Ruth) in Rhode Island

[Guest guest]

And not to mention that I’ve been clinically depressed my whole life. I was

being treated before it before I was diagnosed with fibro. Now, it is hard

to say if I was depressed before I had fibro because the doctors (the smart

ones that I no longer have for reasons out of my control) aren’t really sure

when my fibro began.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of debra van

ness

Sent: Tuesday, November 20, 2007 4:29 PM

To: Fibromyalgia_Support_Group

Subject: Re: PAIN

Ok... here with go with doctors thinking " if the depression is fixed, you

won't hurt " ..... That is rediculous because they may as well say that your

pain is all due to depression and psych issues. It ignores FIBROMYALGIA.

Love,

Debra V.

Tigger <tigger.pinkraincoat@...

<mailto:tigger.pinkraincoat%40gmail.com> > wrote:

O.K., get ready because I'm bitchin'. I WANT PAIN RELIEF!!! I WANT IT

NOW!!! I know I sound like a spoiled child, but because I have a gastric

by-pass, doctors don't (or won't) realize that my body is not like everyone

else's. I need stronger amount. I need stuff that I can get into my system

quickly.

If one more doctor tells me that once we get the depression under control,

the pain will go. I just take my very large file and stuff it in that

doctor's very small mouth.

Sorry, but I hurt so much and I feel so awful. Oh, and don't try the patch

antidepressant called Emsam. horrible side effects. It was like being

stoned on the fentanyl again with almost killed me.

Tigger (Ruth) in Rhode Island

[Guest guest]

Hi Tony....how the heck have you been? I don't know about your pain in

the legs or feet, but fluid retention does cause the lower leg pain,

and of course the fluid can be a result of pulmonary hypertension (high

blood pressure in the lungs). Have you had an echo lately? Take care.

God Bless,

Tina

IPF PH Ohio

>

> Having pain in my lower legs and the ball of my feet-Anyone else have

> this problem? Wonder if the IPF has anything to do with it

>

[Guest guest]

> >

> > Having pain in my lower legs and the ball of my feet-Anyone else

have

> > this problem? Wonder if the IPF has anything to do with it

> >

>

[Guest guest]

Hi Tony,

My feet Go to sleep often and do not wake quickly. Also my calves cramp excessively and I can hardly walk at times.

   JOE/JOANIE JOE 59 IPF1/2008

GRIFFIN, GA.

-- Pain

Having pain in my lower legs and the ball of my feet-Anyone else have this problem? Wonder if the IPF has anything to do with it