Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Well said Bruce........ Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! Re: Sher-NSIP This is one he really has to decide and then needs you to all supporthis decision whatever it is. Only he can decide the value of possiblyliving longer versus the value of quality of life. He needs to know thatits ok, however he chooses-that if he chooses length you won't bemoanthe side effects and the impact of them and if he chooses quality youwon't in any way think of it as him valuing time with you less. It's adecision to be made with much consideration and based on some time, notbased on a moment or a day's feeling. But, none of us can ever trulyknow how someone else is feeling. We come closer to understanding eachother on this forum than most anywhere, but, still, we can't know theimpact on another, their outlooks, their pain, physically andemotionally. He can't possibly understand how this is all making youfeel and you can't put yourself in his place as much as you try.> > > > >> > > > > Sher,> > > > > I'm happy to hear the doctors have switched your diagnosis.NSIP> > > > is definitely preferable to IPF, the life expectancy is muchlonger> > > > and as a bonus, it does not always progress. As a matter offact,> > > > Dr. on at Duke just told me last month that he's seen> > patients> > > > with NSIP who have been "stable for decades." I mean I know thatmy> > > > experience may be different but anything that gives us hope is> > > > helpful!> > > > > Have they switched your dx based on the behavior of the> > disease or> > > > also on the ct scan results? NSIP is usually very identifiable> > by CT> > > > scan. To identify the type of NSIP (fibrotic, cellular or mixed)> > you> > > > would need a biopsy. But at this point it probably doesn't> > matter as> > > > long as your stable. I understand why you wouldn't put yourself> > > > through that. I don't regret my biopsy but I totally get whyyou've> > > > chosen not to go down that road.> > > > > In the meantime, celebrate stability!! Stable is my happyword!!> > > > > Beth> > > > > Age 48 Fibrotic NSIP 06/06> > > > >> > > > > Change everything. Love and Forgive> > > > >> > > >> > >> >> >> >> >> > Caro> > ASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08,> > RHEUMATOID ARTHRITIS 03/08> > Mississippi> > ____________ _________ _________ _________ _________ __> > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.