Re: Kerry's Pics and update on Joyce

[Guest guest]

What fab photo's That's a snowman to be proud of! Your kids are beautiful and you are gorgeous!

Thank you for keeping us updated on Joyce, please send her my love when you speak to her

Love Ze xx>> After my last post to Zena I looked up the snow pics I mentioned and > posted one of the kids. I also looked up one of the rare one's of > me lately. It's from the circus. I was green w/ envy last year > when my daughter rode on the elephant at the circus so this year my > husband got tickets for the kids, me and my Dad. I'll have to post > one showing my Dad on there too. This one is up close though so you > can actually see me and the kids. It also happens to be the day I > got all my hair chopped off. I think I mentioned it became too much > work to wash, etc. so I cut off 11 inches and donated to Locks of > Love.> > More importantly, I spoke w/ Joyce this morning and I will tell you > that she did get the picc line moved and she's there and alive, but > that's about all I can say. There's no way to give her story > justice as a 3rd party retelling so I won't. Just know that it was > an absolutely horrible experience, one she says ranks and one of the > worst days of her life and I am just horrified at hearing it. No > one should ever be made to have any medical procedure done w/out a > family member or patient advocate there... something really should > change in the medical community. You just sign your life over to > these people and then are at their mercy... literally their mercy. > We worry about death row inmates and the cruel and unusual > punishment they may endure, yet patients needing medical treatment > may be tortured and have no say, no voice, no way out once you're > there. The stories may they be Gwynne left in a corner waiting for > transport or Irene at the mercy of a needle wielding mean person. I > just fear any medical procedures now. I really liked that at > Evaluation I could have my husband there and I think all procedures > should be that way. Somebody should be there to speak up when you > can't or stop the madness when it is madness. Oh, the horror! I > really don't mean to keep you all hanging that's not my intent. > Joyce survived the procedure, but she wasn't sedated or maybe barely > was and it was horrible.> > Kerry> 37 IPF '01 S. IN>

[Guest guest]

Hi Kerry,

I saw the photos with the snowman, your kids are beautiful. It's the first time I saw a photo of you look absolutely

amazing. Thanks for keeping us updated on Joyce.

Hi Ze,

I also saw the pictures of your daughter in the swimming pool, she's beautiful.

Irene

---- Original Message ----

To: Breathe-Support

Sent: Sun, 20 Apr 2008 12:23 pm

Subject: Re: Kerry's Pics and update on Joyce

What fab photo's That's a snowman to be proud of! Your kids are beautiful and you are gorgeous!

Thank you for keeping us updated on Joyce, please send her my love when you speak to her

Love Ze xx

>

> After my last post to Zena I looked up the snow pics I mentioned and

> posted one of the kids. I also looked up one of the rare one's of

> me lately. It's from the circus. I was green w/ envy last year

> when my daughter rode on the elephant at the circus so this year my

> husband got tickets for the kids, me and my Dad. I'll have to post

> one showing my Dad on there too. This one is up close though so you

> can actually see me and the kids. It also happens to be the day I

> got all my hair chopped off. I think I mentioned it became too much

> work to wash, etc. so I cut off 11 inches and donated to Locks of

> Love.

>

> More importantly, I spoke w/ Joyce this morning and I will tell you

> that she did get the picc line moved and she's there and alive, but

> that's about all I can say. There's no way to give her story

> justice as a 3rd party retelling so I won't. Just know that it was

> an absolutely horrible experience, one she says ranks and one of the

> worst days of her life and I am just horrified at hearing it. No

> one should ever be made to have any medical procedure done w/out a

> family member or patient advocate there... something really should

> change in the medical community. You just sign your life over to

> these people and then are at their mercy... literally their mercy.

> We worry about death row inmates and the cruel and unusual

> punishment they may endure, yet patients needing medical treatment

> may be tortured and have no say, no voice, no way out once you're

> there. The stories may they be Gwynne left in a corner waiting for

> transport or Irene at the mercy of a needle wielding mean person. I

> just fear any medical procedures now. I really liked that at

> Evaluation I could have my husband there and I think all procedures

> should be that way. Somebody should be there to speak up when you

> can't or stop the madness when it is madness. Oh, the horror! I

> really don't mean to keep you all hanging that's not my intent.

> Joyce survived the procedure, but she wasn't sedated or maybe barely

> was and it was horrible.

>

> Kerry

> 37 IPF '01 S. IN

>

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

[Guest guest]

Kerry, Maybe you've already posted this, but how can we get messages or cards to Joyce? I pray for her every day. I so want her to know that we love her and want to lift her up. K Central IllKerry wrote: After my last post to Zena I looked up the snow pics I mentioned and posted one of the kids. I also looked up one of the rare one's of me lately. It's from the circus. I was green w/ envy last year when my daughter rode on the elephant at

the circus so this year my husband got tickets for the kids, me and my Dad. I'll have to post one showing my Dad on there too. This one is up close though so you can actually see me and the kids. It also happens to be the day I got all my hair chopped off. I think I mentioned it became too much work to wash, etc. so I cut off 11 inches and donated to Locks of Love.More importantly, I spoke w/ Joyce this morning and I will tell you that she did get the picc line moved and she's there and alive, but that's about all I can say. There's no way to give her story justice as a 3rd party retelling so I won't. Just know that it was an absolutely horrible experience, one she says ranks and one of the worst days of her life and I am just horrified at hearing it. No one should ever be made to have any medical procedure done w/out a family member or patient advocate there... something really should change in the medical

community. You just sign your life over to these people and then are at their mercy... literally their mercy. We worry about death row inmates and the cruel and unusual punishment they may endure, yet patients needing medical treatment may be tortured and have no say, no voice, no way out once you're there. The stories may they be Gwynne left in a corner waiting for transport or Irene at the mercy of a needle wielding mean person. I just fear any medical procedures now. I really liked that at Evaluation I could have my husband there and I think all procedures should be that way. Somebody should be there to speak up when you can't or stop the madness when it is madness. Oh, the horror! I really don't mean to keep you all hanging that's not my intent. Joyce survived the procedure, but she wasn't sedated or maybe barely was and it was horrible.Kerry37 IPF '01 S. IN

K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Kerry, Beth, Zena..the pictures are

great!!!

Beth the muddy girl is just like me!!!

Always liked getting dirty and still do!

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna be

iron like a lion in Zion” Bob Marley

Zena wrote:

What fab photo's

That's a snowman to be proud of! Your kids are beautiful and you are

gorgeous!

Thank you for keeping

us updated on Joyce, please send her my love when you speak to her

Love Ze xx

>

> After my last post to Zena I looked up the snow pics I mentioned

and

> posted one of the kids. I also looked up one of the rare one's of

> me lately. It's from the circus. I was green w/ envy last year

> when my daughter rode on the elephant at the circus so this year

my

> husband got tickets for the kids, me and my Dad. I'll have to post

> one showing my Dad on there too. This one is up close though so

you

> can actually see me and the kids. It also happens to be the day I

> got all my hair chopped off. I think I mentioned it became too

much

> work to wash, etc. so I cut off 11 inches and donated to Locks of

> Love.

>

> More importantly, I spoke w/ Joyce this morning and I will tell

you

> that she did get the picc line moved and she's there and alive,

but

> that's about all I can say. There's no way to give her story

> justice as a 3rd party retelling so I won't. Just know that it was

> an absolutely horrible experience, one she says ranks and one of

the

> worst days of her life and I am just horrified at hearing it. No

> one should ever be made to have any medical procedure done w/out a

> family member or patient advocate there... something really should

> change in the medical community. You just sign your life over to

> these people and then are at their mercy... literally their mercy.

> We worry about death row inmates and the cruel and unusual

> punishment they may endure, yet patients needing medical treatment

> may be tortured and have no say, no voice, no way out once you're

> there. The stories may they be Gwynne left in a corner waiting for

> transport or Irene at the mercy of a needle wielding mean person.

I

> just fear any medical procedures now. I really liked that at

> Evaluation I could have my husband there and I think all

procedures

> should be that way. Somebody should be there to speak up when you

> can't or stop the madness when it is madness. Oh, the horror! I

> really don't mean to keep you all hanging that's not my intent.

> Joyce survived the procedure, but she wasn't sedated or maybe

barely

> was and it was horrible.

>

> Kerry

> 37 IPF '01 S. IN

>

No virus found in this incoming message.

Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.2/1387 - Release Date: 4/19/2008 11:31 AM

[Guest guest]

Kerry/Joyce

The sad thing is that its only getting worse each and every day. The

insurance companies and medicare have cut the payments back so. Then

that means cutbacks in hospitals and everywhere else. That then leads to

overworked, overstressed and burned out so-called medical professionals.

Those who may have once cared no longer have the energy. Those who never

cared only have more reasons to justify their anger.

I know the lack of adequate anesthesia. I remember two hours earlier

than I should have from my VATS and I remember it in great detail. I

remember not being able to speak the words I so wanted to that I wished

I had just died during the procedure and for them to just please stop

and let me die, that I couldn't take any more pain. And, I have an

extremely high pain tolerance. If you've not been theree you can't

imagine being awake or at least semi-awake when the procedure, or part

of it, is still taking place. The first words to when I saw her

in the room were " If this is the way its going to be then I just can't

do it. " I knew the risks of VATS, itself. I knew the likely after

effects. I can live with all of those. What I didn't know was that I'd

be awake when I shouldn't be and then they'd fail to turn the suction on

my pump to clear the fluid out of my lung for the entire first day. And,

I had someone with me the entire time. But she couldn't be in surgery

and she couldn't know everything happening. I recall looking at the

clock at 9:00 and the time from then until 9:20 seemed like days of pain

that I could never describe.

I also had a colonoscopy once that I was in no more than a level one

sedation if anything and remembered everything and every word that took

place and I had warned the anesthesiologist about that before the VATS.

Now with the colonoscopy I didn't have pain, just the weirdness of the

experience as they doctor and tech worked and talked not knowing I could

hear.

I only relate this because I will guarantee if she was not sedated or

barely sedated it had to be the worst experience imaginable. Think of

getting a cut and then multiply it a million times as they cut through

you and move things around and all thats going on. It's worse than if

someone took a huge knife and stabbed you because it keeps going.

And, although I will never have anything invasive without someone there,

they can't protect against all these things that they don't know until

later. There are places they can't be and even if they were you're not

in condition to communicate and they can't tell what is going wrong.

I was in an ICU room and hooked up to monitoring equipment, the fanciest

available. Well, if you moved it jumped around wildly. So, the nurses

just ignored all alarms. When I stood to urinate my blood pressure would

show 260-280 and no one came, knowing it wasn't real. But, what if it

had really skyrocketed or my pulse went to nearly nothing. If the alarms

wouldn't go off I would finally have to call to get them to come in and

reset the machine.

What we need is everyone in the medical profession to care and to take

every precaution. What we need is them to treat the person and not just

the disease. What we need is for them to understand pain and the

necessity of keeping it to a humane level. We talk about medical systems

and health care programs but I can assure you that none of them will

change these insidious issues. We're spending more on medical care per

capita than any other country but we're getting subpar care. And, thats

in measurables. Canada and the US may be near the bottom in measurements

but its the other aspects that make their problems greater.

Too much of the money spent goes to profits and administrative costs and

litigation and insurance and to pay for marketing programs. Not nearly

the amounts that were going to doctors five years ago is going today. In

addition, they are having more and more problems filling nursing and

tech positions so running short handed and hiring candidates they

wouldn't have in the past. And it extends everywhere, from your durable

medical equipment suppliers to your pharmacies. You think, do you feel

as good about the pharmacists and pharmacy employees as you did 10 years

ago? Oh but the cheerleaders hired to be pharmaceutical salespersons to

get to take doctors lunch every day and provide samples and make

pitches.

Research and new techniques are all great and certainly we, on this

forum, have a vested interest. But, overall quality in the health care

profession is a far greater issue. Just read the experiences here and

you get a small sample. We're doing more advanced heart procedures in

this country than any other, but our deaths from heart attacks is still

near the worst. And, none of this says other places are all that good

either, because they aren't. It's just we're spending more money to be

bad. Well, Joyce can't vent right now but thats my rant.

>

> After my last post to Zena I looked up the snow pics I mentioned and

> posted one of the kids. I also looked up one of the rare one's of

> me lately. It's from the circus. I was green w/ envy last year

> when my daughter rode on the elephant at the circus so this year my

> husband got tickets for the kids, me and my Dad. I'll have to post

> one showing my Dad on there too. This one is up close though so you

> can actually see me and the kids. It also happens to be the day I

> got all my hair chopped off. I think I mentioned it became too much

> work to wash, etc. so I cut off 11 inches and donated to Locks of

> Love.

>

> More importantly, I spoke w/ Joyce this morning and I will tell you

> that she did get the picc line moved and she's there and alive, but

> that's about all I can say. There's no way to give her story

> justice as a 3rd party retelling so I won't. Just know that it was

> an absolutely horrible experience, one she says ranks and one of the

> worst days of her life and I am just horrified at hearing it. No

> one should ever be made to have any medical procedure done w/out a

> family member or patient advocate there... something really should

> change in the medical community. You just sign your life over to

> these people and then are at their mercy... literally their mercy.

> We worry about death row inmates and the cruel and unusual

> punishment they may endure, yet patients needing medical treatment

> may be tortured and have no say, no voice, no way out once you're

> there. The stories may they be Gwynne left in a corner waiting for

> transport or Irene at the mercy of a needle wielding mean person. I

> just fear any medical procedures now. I really liked that at

> Evaluation I could have my husband there and I think all procedures

> should be that way. Somebody should be there to speak up when you

> can't or stop the madness when it is madness. Oh, the horror! I

> really don't mean to keep you all hanging that's not my intent.

> Joyce survived the procedure, but she wasn't sedated or maybe barely

> was and it was horrible.

>

> Kerry

> 37 IPF '01 S. IN

>