Re: Re: Ze** and PH//Tina

[Guest guest]

Tina....I picked up your post in this thread....

If PAH was not DX in the usual ways then how was it finally found???

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

Re: Ze** and PH

Hmmm I wonder why I'm getting them then. Oh well something else to get checked out then > > > > > > > > >> > > > > > > > > I am new to the this forum and have never posted before.> > > I am> > > > > > > > hoping> > > > > > > > > to see if my issues sound familiar and if others are> > > > > experiencing> > > > > > > > > what I am. I apologize up front for the coming long> post.> > > > > > > > >> > > > > > > > > 14 years ago (I know its been a long time) I was> > > diagnosed as> > > > > > > > having> > > > > > > > > Stage 4 T-cell Lymphoma. The bad thing was that this> > > wasn't> > > > > > > > > diagnosed until I was in the terminal stages with all my> > > > organs> > > > > > > > > failing. I spent a month on life support and had many> > > many bad> > > > > > > > > things happen including a stroke, ARDS, septic shock,> > > etc..> > > > The> > > > > > > > list> > > > > > > > > is long.> > > > > > > > >> > > > > > > > > Somehow I experienced a miracle and survived this> ordeal.> > > Went> > > > > > > > thru> > > > > > > > > a traditional regiment of CHOP + Bleomycin for several> > > rounds.> > > > I> > > > > > > > > went into complete remission after my 5th round.> > > > > > > > >> > > > > > > > > A year after this I was told that I had to have a Bone> > > Marrow> > > > > > > > > Transplant to prevent my kind of lymphoma from coming> > > back. So> > > > I> > > > > > > > > went ahead with this. Part of my treatment was total> body> > > > > > > > > irradiation (TBI).> > > > > > > > >> > > > > > > > > So since then I have led a very normal life except for a> > > > couple> > > > > > > of> > > > > > > > > things. I don't have the long capacity that I used to> and> > > I> > > > have> > > > > > > > > this incredible recurring cough.> > > > > > > > >> > > > > > > > > I was diagnosed about 7 year ago as having moderate> > > > restrictive> > > > > > > > lung> > > > > > > > > disease. Not a lot was done then. Given what I had gone> > > > through> > > > > > > I> > > > > > > > > didn't pay much attention to this.> > > > > > > > >> > > > > > > > > The problems that I have is that A) when doing anything> > > > aerobic> > > > > I> > > > > > > > run> > > > > > > > > out of air fairly quickly. Cycling is a huge sport where> I> > > > live> > > > > > > > and> > > > > > > > > I have tried to ride at lunch with the semi-serious> > > group. I> > > > can> > > > > > > > > keep up well for 4-5 miles but I simply run out of air.> I> > > have> > > > > > > > come> > > > > > > > > to live with this and move on at my own pace. The more> > > > annoying> > > > > > > > > problem is this cough. I get this recurring dry cough> > > that can> > > > > > > > last> > > > > > > > > anywhere from 1 to 3 weeks. I am on week 3 of a cough> > > right> > > > > > > now.> > > > > > > > I> > > > > > > > > went to my doc at the beginning of this cycle to get the> > > usual> > > > > > > > > narcotic cough syrup. I have since run out. I didn't> > > sleep at> > > > > > > all> > > > > > > > > last night and right now doesn't look promising for> > > tonight.> > > > > > > > >> > > > > > > > > I am so sick of this cycle that I can scream. I hate the> > > > normal> > > > > > > > > routine of cough syrup but hate the lack of sleep even> > > more.> > > > It> > > > > > > > > seems like I cough hard every 30 seconds or so. I get> > > > > > > > > embarrassed going to the doc when this cycle starts.> Seems> > > > like> > > > > > > > with> > > > > > > > > all the prescription abuse going on they seem to think> > > anyone> > > > > who> > > > > > > > > shows up as often as I do must have a problem. I am> > > epecially> > > > > > > > > annoyed with my current internal doc as I had to direct> > > him to> > > > > do> > > > > > > > > some additional pulmonary testing to confirm that> > > something> > > > > > > wasn't> > > > > > > > > right.> > > > > > > > >> > > > > > > > > If only they knew how much I HATE this cycle. It hurts> all> > > > > > > aspects> > > > > > > > of> > > > > > > > > my life. I simply am sick of coughing.> > > > > > > > >> > > > > > > > > I know that many people here are fighing much worse> issues> > > > than> > > > > I> > > > > > > > > am. I wish them the best.> > > > > > > > >> > > > > > > > > > > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>