Re: Re: GWYNNE.....Caring Bridge

[Guest guest]

Hi!....Well I posted to the right place but can't find a phone # for Gwynnie....does anybody have it???

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

Re: GWYNNE.....Caring Bridge

How Simple....its just gwynne

so

http://caringbridge.org/visit/gwynne

> > >> > >> > > Hi friends,> > > Today is only the second peek I've taken at any> > > e-mails. OMG I'll have to skip some. While I'm away,> > > the surest way to see that I'll read them in a timely way> > > is to email me directly. We have wireless service in> > > the apartment here in San . My brother and> > > sis-in -law visited this weekend and gave the kids> > > some time off. My brother is an excellent cook and> > > made dinner the last few nights. The kids are doing a> > > great job with everything - medications, food, laundry,> > > cooking, trips to various stores and pharmacy, and> > > anything else you can think of.> > >> > > My apt. address is:> > > 7733 Louis Pasteur, #321> > > San , TX 78229> > >> > > My pain was more tolerable today, so I took fewer pain> > > meds. The last two nights and mornings I actually got> > > some pretty good sleep. I'm very shakey. I'm on Norco,> > > Prograf, Cellcept (same as my pre-tx dosage), and 45 mg.> > > Prednisone ( which they hope to taper down 5mg a week> > > until Also Sporanox, Valcyte, Avelox, Surfak,> > > Protonics, Reglan, Cytogam by IV drip at hospital 2 more> > > times, Boniva, Multivitamin, & Advair for the bad lung.> > >> > > We've got plenty of room - I've got a bedroom and nice> > > bathroom with a perfect walk-in shower and shower> > > bench. I'm supposed to let water run over the incision> > > once a day. There's a nice kitchen, 2 other bedrooms and> > > baths, and a living/dining room with a comfy sofa. My> > > brother bought me a recliner which is getting delivered> > > tomorrow - can't wait. We've got cable tv and On Demand> > > movies. I'm not up to reading yet, but I was given an> > > electronic book from Amazon that is very cool. You choose> > > what you want to read and it shows it on the screen in the> > > font size you want.> > > I have exercises to do 3 times a day, plus just walking around> > > the apartment. The shower takes a lot out of me. I try to> > > change locations throughout the day to get out of bed.> > > I'm shaking too much to write. My appetite's finally back to> > > normal, after losing 10 pounds in the hospital. There are> > > quite a few dietary restrictions, most of which I was already> > > doing. It's a low fat, low carb, low sugar diet. The meds did> > > raise my blood sugar to where I had to have several units> > > of insulin several times in the hospital. Hopefully that will> > > dissipate - we'll see.> > >> > > I go in for clinic - chest x-ray, blood work and see the> > > doctors on Tues. We're only about 5 minutes away, and we> > > have a transport chair. I'm off oxygen completely, but get> > > winded when walking... and the hospital's a big place.> > > We'll talk about getting me a psychiatric consult, and any> > > other specialists lined up who I might need.> > >> > > Tomorrow e is bringing Misha to me! (I'm soooo> > > ready, and got the doc's okay). She'll be good for me.> > > Music also helps to relax me and calm the pain.> > >> > > I'm overwhelmed by the miracle that I've participated in.> > > I will do the best I can to live in such a way as to honor> > > and respect the gift of life I've been given.> > >> > > Thank you so much for the kind words of love and> > > encouragement, for your excitement, your prayers,> > > your birthday cards!! and for just being there. I miss you> > > guys, but I'll get caught up eventually. I just don't have the> > > strength to do much yet, so I won't be around much at> > > all for a while. Thanks to anyone who took the time to> > > read about me or post on my CaringBridge website.> > >> > > I'm off to record b.p., temp, etc. before bedtime meds.> > > I have to monitor those twice daily.> > >> > > Love and huge hugs to everyone!!!!> > > Gwynne 57 single-lung transplant 4/3/08 at UTHSC - SA.> > > - on my birthday!!!!!> > >> >>