Re: ... Tailing Off

[Guest guest]

Withdrawal might be the better term. But, you have to come off

prednisone very slowly....make that very very slowly. You reduce it a

little at a time and it can take quite a while. Thats what I meant by

" tailing off " as opposed to " cold turkey. " The withdrawal from

Prednisone can be quite bad and make one feel worse than even the

prednisone did. It must be done gradually and the pace of reduction

geared toward the patient. If one reacts to a reduction too badly then

it needs to be reduced only half as much or more time between

reductions. A doctor will outline a plan but if that plan is turning out

to be too quickly, one must modify it with the doctor. Everyone responds

differently.

> > > > > > >

> > > > > > > Sher,

> > > > > > > I'm happy to hear the doctors have switched your

diagnosis.

> NSIP

> > > > > > is definitely preferable to IPF, the life expectancy is much

> longer

> > > > > > and as a bonus, it does not always progress. As a matter of

> fact,

> > > > > > Dr. on at Duke just told me last month that he's seen

> > > > patients

> > > > > > with NSIP who have been " stable for decades. " I mean I know

> that my

> > > > > > experience may be different but anything that gives us hope

is

> > > > > > helpful!

> > > > > > > Have they switched your dx based on the behavior of the

> > > > disease or

> > > > > > also on the ct scan results? NSIP is usually very

identifiable

> > > > by CT

> > > > > > scan. To identify the type of NSIP (fibrotic, cellular or

> mixed)

> > > > you

> > > > > > would need a biopsy. But at this point it probably doesn't

> > > > matter as

> > > > > > long as your stable. I understand why you wouldn't put

> yourself

> > > > > > through that. I don't regret my biopsy but I totally get why

> you've

> > > > > > chosen not to go down that road.

> > > > > > > In the meantime, celebrate stability!! Stable is my happy

> word!!

> > > > > > > Beth

> > > > > > > Age 48 Fibrotic NSIP 06/06

> > > > > > >

> > > > > > > Change everything. Love and Forgive

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > > Caro

> > > > ASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP

01/08,

> > > > RHEUMATOID ARTHRITIS 03/08

> > > > Mississippi

> > > > __________________________________________________

> > > >