Re: My Pirfenidone Trial Update

[Guest guest]

Sounds good to me. Can't wait til Aug.

Steve59 from WA IPF 2006

Reply-To: Breathe-Support To: Breathe-Support Subject: My Pirfenidone Trial UpdateDate: Mon, 21 Apr 2008 22:32:13 -0000

I was just in for my 60 week PFT 6MWT and checkup.My PFT results were in line with the previous tests (good)My 6MWT was also good and done on room air with stats ending at 91The Doc said I was doing great. I will be entering the open labellater in the year. I find out if I was on the real med or placebo inOct. Ken Baker UIP 12/05

[Guest guest]

Ken... that's a long wait to find out what you took but lets keep our fingers crossed it was the "real thing". Main thing, how are you feeling? You don't post much.

Hope all well in your corner.

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

My Pirfenidone Trial Update

I was just in for my 60 week PFT 6MWT and checkup.My PFT results were in line with the previous tests (good)My 6MWT was also good and done on room air with stats ending at 91The Doc said I was doing great. I will be entering the open labellater in the year. I find out if I was on the real med or placebo inOct. Ken Baker UIP 12/05

[Guest guest]

Oh Ken this is wonderful. Lets just hope and pray this is going to help with this disease.WOW 91 on the dreaded walk on ROOM air.. wonderful. God is good.  Love and Prayers, PeggyIPF  2004,  Florida"Worry looks around, Sorry looks back,  Faith looks up." I was just in for my 60 week PFT 6MWT and checkup.My PFT results were in line with the previous tests (good)My 6MWT was also good and done on room air with stats ending at 91The Doc said I was doing great. I will be entering the open labellater in the year. I find out if I was on the real med or placebo inOct. Ken Baker UIP 12/05