Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Boy that didn't post properly...let's see if I can do better Improves ventilation. Releases trapped air in the lungs. Keeps the airways open longer and decreases the work of breathing. Prolongs exhalation to slow the breathing rate. Improves breathing patterns by moving old air out of the lungs and allowing for new air to enter the lungs. Relieves shortness of breath. Causes general relaxation. Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Sharon / Beth Hi Sharon, Leanne here, I put the energy file up at the request of one of our members who has since left the group. I didn't quite understand it either, so maybe if there is a lot of confusion I should just delete the files...MB - I'm a little confused about the C02 situation. I thought one of our problems is transferring the C02 out of our body. That's why a lot of us have a low DLCO on our pfts. We can't exchange the C02 like everyone else can. Wouldn't it behoove us to lessen the amount of C02 we have in our bodies? Just trying to understand.Leanne uip 1/03 Illinois>> Leanne, Hi my name is Sharon and I just read the file on energyand the therapists at the pulmonary rehab do not understand the fact that it says no aeorbic excersize. I should say I was diagnosed with hp in feb.2008. they want me to use the treadmill along with lightweight weights. Now i'am confused. Can you help meunderstand the file? THANKS Sharon> > Leanne wrote: Thanks to everyone who has posted pics. I LOVE seeing pics of our > peeps. > > Also, would anyone mind if I copied their picture for the posterthat > Wally is doing for the first annual Cajun / Cowboy event? I figured I > would just print the pics on photo paper and Voila!! This is going to > be an evolving poster - the faces of pf and a traveling one, too. > We're going to bring it to San . The faces of pf.> > Let me know.> > Leanne uip 1/03 Illinois> > > > > > > ------------ --------- --------- ---> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 I thought you did great both times.. lol U so smart. me Boy that didn't post properly...let's see if I can do better Improves ventilation.Releases trapped air in the lungs.Keeps the airways open longer and decreases the work of breathing.Prolongs exhalation to slow the breathing rate.Improves breathing patterns by moving old air out of the lungs and allowing for new air to enter the lungs.Relieves shortness of breath.Causes general relaxation. Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Sharon / BethHi Sharon, Leanne here, I put the energy file up at the request of one of our members who has since left the group. I didn't quite understand it either, so maybe if there is a lot of confusion I should just delete the files...MB - I'm a little confused about the C02 situation. I thought one of our problems is transferring the C02 out of our body. That's why a lot of us have a low DLCO on our pfts. We can't exchange the C02 like everyone else can. Wouldn't it behoove us to lessen the amount of C02 we have in our bodies? Just trying to understand.Leanne uip 1/03 Illinois>> Leanne, Hi my name is Sharon and I just read the file on energyand the therapists at the pulmonary rehab do not understand the fact that it says no aeorbic excersize. I should say I was diagnosed with hp in feb.2008. they want me to use the treadmill along with lightweight weights. Now i'am confused. Can you help meunderstand the file? THANKS Sharon> > Leanne wrote: Thanks to everyone who has posted pics. I LOVE seeing pics of our > peeps. > > Also, would anyone mind if I copied their picture for the posterthat > Wally is doing for the first annual Cajun / Cowboy event? I figured I > would just print the pics on photo paper and Voila!! This is going to > be an evolving poster - the faces of pf and a traveling one, too. > We're going to bring it to San . The faces of pf.> > Let me know.> > Leanne uip 1/03 Illinois> > > > > > > ------------ --------- --------- ---> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Thanks to Peggy & Beth for including this great information....WOW between us all we'll have our little Air Gang out there Pursing our lips all over the globe! GIO PS would blowing up Balloons be a good way of doing something Practical while practising the art of Pursed Lip Breathing????????? .......For US this could take on a whole NEW meaning!!!!!!!!!!!!!!!!!! Thanks to > everyone who has posted pics. I LOVE seeing pics of our > > peeps. > > > > Also, would anyone mind if I copied their picture for the poster> that > > Wally is doing for the first annual Cajun / Cowboy event? I > figured I > > would just print the pics on photo paper and Voila!! This is going > to > > be an evolving poster - the faces of pf and a traveling one, too. > > We're going to bring it to San . The faces of pf.> > > > Let me know.> > > > Leanne uip 1/03 Illinois> > > > > > > > > > > > > > ------------ --------- --------- ---> > Be a better friend, newshound, and know-it-all with Yahoo! > Mobile. Try it now.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 LOL. GIO, you do make me laugh. This little guy is just the funniest ever.. The only information I have is what I have lived. My Dr's PA is just the best at explaining things to me. My Dr. does too but I hate to take up our visits with medical stuff.. lol don't panic everyone. just kidding. I was told that at my stage not to worry about using to much 02. I don't think that is such a good thing. BUT I don't worry about this crappy disease. I just hate the not being able to do what I want. I have always been so independent.I do have super caregiver.. Love and Prayers, PeggyIPF 2004, Florida"Worry looks around, Sorry looks back, Faith looks up." Thanks to Peggy & Beth for including this great information....WOW between us all we'll have our little Air Gang out there Pursing our lips all over the globe!GIOPS would blowing up Balloons be a good way of doing something Practical while practising the art of Pursed Lip Breathing????????? .......For US this could take on a whole NEW meaning!!!!!!!!!!!!!!!!!! Thanks to > everyone who has posted pics. I LOVE seeing pics of our > > peeps. > > > > Also, would anyone mind if I copied their picture for the poster> that > > Wally is doing for the first annual Cajun / Cowboy event? I > figured I > > would just print the pics on photo paper and Voila!! This is going > to > > be an evolving poster - the faces of pf and a traveling one, too. > > We're going to bring it to San . The faces of pf.> > > > Let me know.> > > > Leanne uip 1/03 Illinois> > > > > > > > > > > > > > ------------ --------- --------- ---> > Be a better friend, newshound, and know-it-all with Yahoo! > Mobile. Try it now.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Dear Princess Peggy, No, at the levels that you are using O2 it wouldn't be an issue. It's when the O2 levels go WAY HIGH that really nothing more can realisitically be done. I think Gwynne's Levels were approaching that cut-off point..but even then it would differ for each individual depending on their bodies capacity to get rid of the Co2. I remember that beautiful Ginger had a terrible problem with CO2. O2 is a life-prolonging medicine for PF patients BUT it can't do the job forever! Beth has explained to us the difference between us & folk with COPD.....PF patients use much higher levels of O2 than COPD patients do from what I've read. That may well reflect that we do get rid of CO2 Better than they do BUT there's still a limit for our capacity to do that as well as our lungs progressively stiffen with the scarring. I'm going to re-read my literature on the subject just to make sure I've got it right! Thanks to> > everyone who has posted pics. I LOVE seeing pics of our> > > peeps.> > >> > > Also, would anyone mind if I copied their picture for the poster> > that> > > Wally is doing for the first annual Cajun / Cowboy event? I> > figured I> > > would just print the pics on photo paper and Voila!! This is going> > to> > > be an evolving poster - the faces of pf and a traveling one, too.> > > We're going to bring it to San . The faces of pf.> > >> > > Let me know.> > >> > > Leanne uip 1/03 Illinois> > >> > >> > >> > >> > >> > >> > > ------------ --------- --------- ---> > > Be a better friend, newshound, and know-it-all with Yahoo!> > Mobile. Try it now.> > >> >> Quote Link to comment Share on other sites More sharing options...
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