Re: K/Sher/Bruce/Peggy

[Guest guest]

I'm anxious to see how K responds now.

. Does Don monitor his own meds? If so, there is the possibility he can over or under dose simply by not feeling well...forgetting...mood swing....even accidentally.

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

Re: K

SherOmg your light is on bright. My money is on him having at the very leastskipped a time or two, whether a conscious decision on his part or not.> > > > >> > > > > Sher,> > > > > I'm happy to hear the doctors have switched your diagnosis.NSIP> > > > is definitely preferable to IPF, the life expectancy is muchlonger> > > > and as a bonus, it does not always progress. As a matter offact,> > > > Dr. on at Duke just told me last month that he's seen> > patients> > > > with NSIP who have been "stable for decades." I mean I know thatmy> > > > experience may be different but anything that gives us hope is> > > > helpful!> > > > > Have they switched your dx based on the behavior of the> > disease or> > > > also on the ct scan results? NSIP is usually very identifiable> > by CT> > > > scan. To identify the type of NSIP (fibrotic, cellular or mixed)> > you> > > > would need a biopsy. But at this point it probably doesn't> > matter as> > > > long as your stable. I understand why you wouldn't put yourself> > > > through that. I don't regret my biopsy but I totally get whyyou've> > > > chosen not to go down that road.> > > > > In the meantime, celebrate stability!! Stable is my happyword!!> > > > > Beth> > > > > Age 48 Fibrotic NSIP 06/06> > > > >> > > > > Change everything. Love and Forgive> > > > >> > > >> > >> >> >> >> >> > Caro> > ASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08,> > RHEUMATOID ARTHRITIS 03/08> > Mississippi> > ____________ _________ _________ _________ _________ __> >

[Guest guest]

K

Glad he's read. Only one comment. It's not the doctor's choice.

Ultimately it is his. Now it is the doctor's place to recommend and

advise and it definitely is his place to insist on slow withdrawal if he

chooses to get off. But, ultimately medical advice and information is

the doctor's place. Life choices are the patient's decision.

> > > > > >

> > > > > > Sher,

> > > > > > I'm happy to hear the doctors have switched your diagnosis.

> NSIP

> > > > > is definitely preferable to IPF, the life expectancy is much

> longer

> > > > > and as a bonus, it does not always progress. As a matter of

> fact,

> > > > > Dr. on at Duke just told me last month that he's seen

> > > patients

> > > > > with NSIP who have been " stable for decades. " I mean I know

that

> my

> > > > > experience may be different but anything that gives us hope is

> > > > > helpful!

> > > > > > Have they switched your dx based on the behavior of the

> > > disease or

> > > > > also on the ct scan results? NSIP is usually very identifiable

> > > by CT

> > > > > scan. To identify the type of NSIP (fibrotic, cellular or

mixed)

> > > you

> > > > > would need a biopsy. But at this point it probably doesn't

> > > matter as

> > > > > long as your stable. I understand why you wouldn't put

yourself

> > > > > through that. I don't regret my biopsy but I totally get why

> you've

> > > > > chosen not to go down that road.

> > > > > > In the meantime, celebrate stability!! Stable is my happy

> word!!

> > > > > > Beth

> > > > > > Age 48 Fibrotic NSIP 06/06

> > > > > >

> > > > > > Change everything. Love and Forgive

> > > > > >

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > > Caro

> > > ASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08,

> > > RHEUMATOID ARTHRITIS 03/08

> > > Mississippi

> > > ____________ _________ _________ _________ _________ __

> > >