Re: Re: Fwd: Important Announcement - To everyone

[Guest guest]

i think the fibro association should send the letter with some research attached

to it showing that it is not in our heads. there is enough research

out there now that we have our own legitimate medical diagnosis and

that should be enough for recognition we dont need to prove anything

else after that.

Important Announcement

> > Date: Tue, 29 Jan 2008 15:29:14 -0700

> >

> > This e-mail was sent to you by Fibromyalgia Network. To

> ensure receipt of our e-mails, please add us (kthorson@) to your

> address book.

> >

> > Dear Lori Hammer,

> > New York Times writer Berenson bashes pharmaceutical

> companies on a regular basis. But on January 14, 2008 the Times took

> his distrust of the drug industry too far with an insane article

> titled: " Drug Approved. Is Disease Real? " It's a tale about how

> Pfizer, Eli Lilly, and Forest Laboratories fabricated fibromyalgia so

> that they could make a fortune selling their drugs to patients who do

> not really have a disease at all—just problems adapting to the

aches

> and pains of living!

> > The article trampled the reputation of fibromyalgia patients,

> their doctors and scientists in the field. Berenson dredged up

> antiquated beliefs held by three die-hard doctors who truly believe

> millions of Americans are faking fibromyalgia. The stale theory that

> pain was not real unless it could be documented with a blood test or

> X-ray permeated the article..

> > In response to Berenson's front-page feature in the NY Times,

> Fibromyalgia Network solicited statements from researchers and

> physicians across the country. Visit our website to read what the

> experts have to say about fibromyalgia and share their comments with

> anyone who doubts that your symptoms are real.

> > As for the editors at the NY Times, do not hesitate to voice your

> opinion and let them know that they flubbed up by attacking people

> with fibromyalgia, a real disease. E-mail addresses for the News

> Department, the Public Editor, and the Managing Editor of the NY

> Times are given at the end of the web page postings from the experts.

> Feel free to include in your response a few of the valid points made

> by the experts and ask in your e-mail that the editors at the NY

> Times publish a quality article on fibromyalgia, its pain and

> symptoms you struggle with daily.

> > If you or someone you know has fibromyalgia, don't let the NY

> Times set back the progress made in the field these past 20 years.

> Read the comments from the experts and let your voice be

heard—even

> if it is a brief complaint.

> > Kindest regards,

> > Thorson, Editor

> > Fibromyalgia Network

> >

> > ---------------------------------

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> www.fmnetnews.com

> > © 2008 Fibromyalgia Network

> >

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