Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Hi Zena, wow England I always wanted to meet someone from there. Iam glad i'am not the only one with it. The Drs say it came from my having tb when i was twenty three and now its shown itself.The Drs.told me to do the same. They said to go live my live and i see him in May.I do what i can which is almost everything and go slow with gardening and make someone esle carry baskets upstairs. They also told me to work with light weights at the health club.Until i can get insurance i have to rely on them telling me the right thing. I can walk 15 mins a day on my treadmill 2 times a day. Of coarse thats not fast but I think i feel a difference. Sharonp ph dx ph 2008 illinoisZena wrote: Hello Sharon Have a welcome from England. I am 38 and I've been diagnosed with PH in April. I'm waiting for an appointment for a specialist to come through (we do things differently here) but until then I was told to maintain my levels of activity. I don't over do it, I walk a bit each day on my O2, which I am on 24 hours a day, and I attempt (hah) to keep up with the housework. I was told not to increase my activity levels until I have seen the specialist, but that decreasing them can be detrimental too. So long as I'm on the O2 and keep an eye on my sats while I am doing anything. Take care Love Ze (38) Dermatomyositis, Pulmonary Fibrosis etc, for years, Pulmonary Hypertension Apr '08 > Thanks to everyone who has posted pics. I LOVE seeing pics of our > peeps. > > Also, would anyone mind if I copied their picture for the poster that > Wally is doing for the first annual Cajun / Cowboy event? I figured I > would just print the pics on photo paper and Voila!! This is going to > be an evolving poster - the faces of pf and a traveling one, too. > We're going to bring it to San . The faces of pf.> > Let me know.> > Leanne uip 1/03 Illinois> > > > > > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > > > > > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > > > > > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Welcome to this forum. We all use this forum differently to improve our mental and physical needs. It seems there are a bunch of members in Il. I can't remember from the seminar I attended if their were some geographic anomalies with this disease. Sorry, Sharon I tend to get confused and wander. Steve59 from WA IPF 2006 Reply-To: Breathe-Support To: Breathe-Support Subject: Re: Re: Sharon/Date: Mon, 21 Apr 2008 14:12:21 -0700 (PDT) Hi Zena, wow England I always wanted to meet someone from there. Iam glad i'am not the only one with it. The Drs say it came from my having tb when i was twenty three and now its shown itself.The Drs.told me to do the same. They said to go live my live and i see him in May.I do what i can which is almost everything and go slow with gardening and make someone esle carry baskets upstairs. They also told me to work with light weights at the health club.Until i can get insurance i have to rely on them telling me the right thing. I can walk 15 mins a day on my treadmill 2 times a day. Of coarse thats not fast but I think i feel a difference. Sharonp ph dx ph 2008 illinoisZena <zeasmanbtinternet> wrote: Hello Sharon Have a welcome from England. I am 38 and I've been diagnosed with PH in April. I'm waiting for an appointment for a specialist to come through (we do things differently here) but until then I was told to maintain my levels of activity. I don't over do it, I walk a bit each day on my O2, which I am on 24 hours a day, and I attempt (hah) to keep up with the housework. I was told not to increase my activity levels until I have seen the specialist, but that decreasing them can be detrimental too. So long as I'm on the O2 and keep an eye on my sats while I am doing anything. Take care Love Ze (38) Dermatomyositis, Pulmonary Fibrosis etc, for years, Pulmonary Hypertension Apr '08 > Thanks to everyone who has posted pics. I LOVE seeing pics of our > peeps. > > Also, would anyone mind if I copied their picture for the poster that > Wally is doing for the first annual Cajun / Cowboy event? I figured I > would just print the pics on photo paper and Voila!! This is going to > be an evolving poster - the faces of pf and a traveling one, too. > We're going to bring it to San . The faces of pf.> > Let me know.> > Leanne uip 1/03 Illinois> > > > > > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > > > > > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > > > > > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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