Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 Hi all, I looked this man up and then read some of his articles. He has a habit of taking research papers out of context and using them to tout some particular brand of supplement that he is selling. At this site: http://www.perlhealth.com/vol4no1.htm For example, he takes Alzheimer's and picks some rather bad science which blames it on electromagnetic radiation. The researcher interviewed people and found they were in these occupations "electrician, machinist, machine operator, seamstress, sewing factory worker, sheet metal worker, typist, keypunch operator, welder, machine shop worker, and several others. Now I can see a welder getting more than average electromagnetic radiation, but how does a typist or seamstress get more? Are they talking on their cell phones while working? And why was this report first published in American Journal of Epidemiology? You could make a case out of these occupations for sitting extensively on the job causing Alzheimer's - but he did not seem to notice that fact. He then uses this poor research as an example of why he does not like to publish in peer reviewed journals. I am sorry, but breakthroughs like the polio vaccine, heart transplants, bypass surgery and others came from articles published in peer reviewed journals, not locally published unscientific newsletters with nothing but gossip in them. Please also note that he himself says about the same research "The specific mechanism by which individuals exposed to higher levels of electromagnetic radiation experience an increased risk of developing Alzheimer's disease is unclear." Duh, if you have no explanation of a mechanism, no hypothesis and there are many other links you did not explore or try to rule out - that is not science. My seven year old grandson does better science than that. The center in Naples, FL is a Holistic type operation (they have added Dr. Liu from China to add acupuncture). I called a friend who is a top holistic expert in this area who works extensively with M.D.'s and he did not feel the articles were very scientific either. He also questioned the amount of anti-oxidents in Perlmutter's Brain Supplement as excessive. He did suggest 30 mg of the CoQ10 and 400 IU of vitamin E as possibly beneficial for Parkinson's. All of Perlmutter's training was in neurosurgery or neurology - yet he has nothing about his work between his 5 year residencies and his appearence with his holistic health center. Yes he does have a hyperbaric center there also. Note also that he has no major medical journal articles or research since he completed his residency. He also shows no training in nutrition. http://www.inutritionals.com/drp_bio.htm#top NOW comes the great part - This is from the info sheet put out by the company that makes the supplement "Brain Sustain TM" "THIS INFORMATION IS INTENEDED FOR PHYSICIANS AND OTHER LICENSED HEALTH CARE PROVIDERS TO USE AS A BASIS FOR DETERMINING WHETHER OR NOT TO RECOMMEND THESE PRODUCTS TO THEIR PATIENTS. THIS INFORMATION IS NOT FOR USE BY CONSUMERS. THESE PRODUCTS ARE NOT INTENDED FOR USE BY CONSUMERS AS A MEANS TO CURE, TREAT, PREVENT, DIAGNOSE, OR MITIGATE ANY DISEASE OR OTHER MEDICAL CONDITION. Basically they are saying Buyer Beware! If it isn't intended to cure you or mitigate your symptoms - what good is it? Take care, Bill and Charlotte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 Dear Bill. NADH is also called Enada. We started taking it because it was developed by Dr Birkmeyer in Austria. We had contact with his Parkinson's Center before Deprenyl was available in this country, and he was doing most of the research on it. he also was an early researcher on Sinemet before it was available here. Dr. Birkmeyer arranged for us to get Deprenyl for over a year before it was available here. It was miraculous for Ken at that time. Out doctor arranged to participate in the clinical trials here based on what she had seen with Ken. She said she never got the same results in the trial, but she does occasionally see it wok miracles now. Different strokes for different folks you know. She took Ken off it when he was having so much blood pressure trouble because it can really lower BP. As to the NADH, I am not sure about it, but it seemed to be helpful to Ken, and it came from a wonderful PD Center in which we had faith. As to the Fetal Cell transplants, I have a young friend with PD who had that surgery several years ago. he was a building Contractor and had had to stop working. He was able to return to work and is still much much better than he had been although he is certainly not cured. There is a small support group in our area of patients who have had this surgery, and many of them had good results. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 Barbara, Charlotte never showed any benefit from the deprenyl, as far as we could tell. Actually it is supposed to help neurons produce dopamine on their own for a longer period of time. Your comments on the fetal tissue transplant are interesting as I have never actually met anyone who had the transplant. I did read every report I could find about it, including the seven transplants they did in China and the one in Colorado (late 80's). All had glowing initial reports and in one case in China one of the men was killed in an auto accident and autopsy showed some regrowth. The woman from Tennessee who had the surgery in Colorado, went from near vegetable to able to do gardening and vaccum cleaning. However, I never heard more about her and she may have fared the way the NIH study group went. Our neurologist said at that time (1991) that it was purely experimental and that it could take years to find out how it worked. She also said that she would not recommend it until NIH approved it. She is not a fan of the pallitomy either. She has had some patients go in for the DBS - but only for PD and tremor. She feels that if stem cells are the answer it will still be an injection into the brain as she does not feel the cells can cross the blood/brain barrier. If they ever write a newsletter article on the transplants, I would like to see it. Take care, Bill and Charlotte =========================== kmcrae@... wrote: Dear Bill. NADH is also called Enada. We started taking it because it was developed by Dr Birkmeyer in Austria. We had contact with his Parkinson's Center before Deprenyl was available in this country, and he was doing most of the research on it. he also was an early researcher on Sinemet before it was available here. Dr. Birkmeyer arranged for us to get Deprenyl for over a year before it was available here. It was miraculous for Ken at that time. Out doctor arranged to participate in the clinical trials here based on what she had seen with Ken. She said she never got the same results in the trial, but she does occasionally see it wok miracles now. Different strokes for different folks you know. She took Ken off it when he was having so much blood pressure trouble because it can really lower BP. As to the NADH, I am not sure about it, but it seemed to be helpful to Ken, and it came from a wonderful PD Center in which we had faith. As to the Fetal Cell transplants, I have a young friend with PD who had that surgery several years ago. he was a building Contractor and had had to stop working. He was able to return to work and is still much much better than he had been although he is certainly not cured. There is a small support group in our area of patients who have had this surgery, and many of them had good results. Barbara If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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