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linda k and don

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linda

i think you said that you use the computer in a different room

from don and planned to buy a laptop. if you haven't bought

a new system yet, then i think you may find bruce's set up

interesting. i'm sure he would be happy to explain it better

than me but i believe he has a wireless keyboard and big tv screen

used as monitor. this would let don read the messages with you and

also let him see our pictures. your two sons should be able to

help you with wireless set up etc. i think that would be money

well spent.

ive not been on pred but would echo that it takes 12-18 months to

come to terms with this thing. pulm rehab gave me a sense of

belonging as well as convincing me that my body didnt need me to

protect it from movement. upper body exercises with small hand

weights help your lungs breath and feel more comfortable. we need to

know there are people like us, we need to belong somewhere where

people understand.

we need time to adjust and then we decide to 'concentrate on what we

can do rather than what we cant' and we need our down days.

may uip 0606

glasgow, scotland

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