Sharon P

[Guest guest]

Sharon,

I hear you! I'm 48 and not ready to throw in the towel yet either! My son is 23 and just starting to get his act together. (He had a 'turbulent' adolescence....and that's being charitable) I'd like to see him in a career, married and a couple of grands before I vacate this body of mine. But he's not in any hurry either. For him that's just as well though, he's still got some growing up to do.

So you were diagnosed with HP in February. Did anyone tell you what the hypersensitivity was to? (HP= hypersensitivity pneumonitis) Just wondering.... I don't currently have insurance either. I do collect SSDI and will be eligible for Medicare in November. Right now I'm getting care through Duke University. I'm making small payments to them each month but the vast majority of my care is paid for by Duke's financial help programs. Alot of university medical centers have such programs but you have to ask about them and be persistent.

You might want to give a call to the Caring Voice Coalition. . They help people with serious chronic illness like ours with insurance issues, finding financial assitance, finding ways to get our meds at reduced cost etc. They're a great group, give them a call.

As for using the treadmill, I'd check with a doctor and make sure you are clear to exercise and then go for it. As long as your O2 levels stay above 90 or so when you're using the treadmill, there shouldn't be a problem. Are you on supplemental O2? You might consider buying an oximeter and keeping tabs on your saturation while your exercising to be safe.

I know this is all overwhelming and frustrating. We "get it" here.

Good luck

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

Re: Pics

Leanne, Hi my name is Sharon and I just read the file on energy and the therapists at the pulmonary rehab do not understand the fact that it says no aeorbic excersize. I should say I was diagnosed with hp in feb.2008. they want me to use the treadmill along with lightweight weights. Now i'am confused. Can you help meunderstand the file? THANKS SharonLeanne wrote:

Thanks to everyone who has posted pics. I LOVE seeing pics of our peeps. Also, would anyone mind if I copied their picture for the poster that Wally is doing for the first annual Cajun / Cowboy event? I figured I would just print the pics on photo paper and Voila!! This is going to be an evolving poster - the faces of pf and a traveling one, too. We're going to bring it to San . The faces of pf.Let me know.Leanne uip 1/03 Illinois

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