Re: Heart Palps - C Spinal Tumor

[Guest guest]

Well, na!! I hate it that you are feeling so bad!! I think I have ALL that you listed as far as tumors go, but my NS said that my leg soreness was due to a cluster of tumors on my spine, about my lumbar region. I had leg soreness so bad that I could barely stand up for any length of time or go shopping or anything, and my neuro put me on Celebrex and that is what has stopped this. About the heart palps, well I have a heart murmur so a flutter now and then is normal. :o/ I am like you with the no energy though, since my bad case of jet lag I have not been able to do ANYTHING without it exhausting me. ( I wish you luck in finding out what is causing your problems and hope you get to feeling better SOON!!

Donna

Hi all. I've been off the Crew for a while. My job has gotten

increasingly busy. I wanted to post to see if any of you who have a

c-spinal tumor on brainstem or just below and/or a.n.s or regrowths

that have experienced heart palpatations or leg stiffness/soreness?

A few days after we got back from Oz, I started having heart palps

and thought it was because I was taking a water pill for retention.

I quit the pill (4 days into it) and figured it would take a while

for the pill to get out of my system. Well, its 2 months later and I

am still having heart palps and some days they are stronger than

others. I worried that 1) DVT is involved or 2) that the acoustic

neuroma that is pressing against my brainstem is causing it. This

morning I felt like I was either going to pass out or hurl in the

shower, so I called Brad and asked him to call the gen practioner and

make an appt for a physical. The symptoms I'm having are:

heart palps

more than usual stiffness/soreness in my legs

waves of nausea or feeling like I'm gonna faint

general feeling bad, no energy

Any ideas guys?

na

[Guest guest]

Thanks, D. )

> Well, na!! I hate it that you are feeling so bad!! I think I

have ALL

> that you listed as far as tumors go, but my NS said that my leg

soreness was

> due to a cluster of tumors on my spine, about my lumbar region. I

had leg

> soreness so bad that I could barely stand up for any length of time

or go

> shopping or anything, and my neuro put me on Celebrex and that is

what has

> stopped this. About the heart palps, well I have a heart murmur so

a flutter

> now and then is normal. :o/ I am like you with the no energy

though, since

> my bad case of jet lag I have not been able to do ANYTHING without

it

> exhausting me. ( I wish you luck in finding out what is causing

your

> problems and hope you get to feeling better SOON!!

>

> Donna

[Guest guest]

WHAT DO YOU MEAN BY HEART PALPS? YOU FEEL YOUR HEART IS BEATING OR

FLUTTERING FAST? (cap lock, sorry) Everytime I have a symtoms or two

all my doctor can do is look at mri and say " theres no change " grin

and bear it, so going to a GP might be a very idea. Redundant to say

but I do hope this passes soon, hate to feel like crud. Also, dont

know how much water you drink a day but staying veryy hydrated can

help some. I TRY to drink 64 oz of water a day, we have a watercooler

so its not hard. I was getting these weird spasms in my left arm (in

last 6 months), arm would totally start shaking like a seizure and

oddly every time that happened my gut would feel instantly bloated and

dare I say gassy pain, Id drink a glass of water and it immediately

stopped. not making this up, has happened probably 10 times and

drinkng water stops it everytime, i cant explain it. happened once in

a dentist chair, felt my arm start spazzing, mouth got dry, gut

bloated, trying to hide it i asked for a cup of water and it instantly

went away. almost afraid to tell neuro bc it sounds so looney. let us

know what your dr says.

In NF2_Crew@y..., " bjfinch_tx " <bjfinch@n...> wrote:

> Thanks, D. )

>

>

> > Well, na!! I hate it that you are feeling so bad!! I think I

> have ALL

> > that you listed as far as tumors go, but my NS said that my leg

> soreness was

> > due to a cluster of tumors on my spine, about my lumbar region. I

> had leg

> > soreness so bad that I could barely stand up for any length of

time

> or go

> > shopping or anything, and my neuro put me on Celebrex and that is

> what has

> > stopped this. About the heart palps, well I have a heart murmur

so

> a flutter

> > now and then is normal. :o/ I am like you with the no energy

> though, since

> > my bad case of jet lag I have not been able to do ANYTHING without

> it

> > exhausting me. ( I wish you luck in finding out what is causing

> your

> > problems and hope you get to feeling better SOON!!

> >

> > Donna

[Guest guest]

Subject: Heart Palps - C Spinal Tumor

Taking a deep breath here..... na, I don't really know what to say,

where to start, I AM and have had leg stiffness and soreness the while and

it has been worse since the OZ trip. It was puzzeling....I had none of that

with the DVT, but like you, I had the leg swelling, mine lasted a few days.

The

nausea I sometime have had also tightness or some pressure in the area

of the surgery site( just above medullary to just below the C1 at the back

of my head), and sort of a , not dizzy but ummmmm wave of vertigo????, not

really sure what to call it, for brief periods of time and frequently

through the day, gosh its hard to describe it......I have had a feeling,

very brief, of passing/blanking out, not often, but occasionally. I have

definitely been feeling very low on energy the past month or a little

longer, I am always very tired and awaken a few hours after having been

asleep. I have not been able to sleep straight thru the night. The DVT

results were the " lump " breaking down into several small ones over the

period of a week. This was following contact walking, movement, wearing

support hose, drinking a lot of water... I had ultrasounds daily, and they

showed it breaking down....testing stopped at the end of the week. As to

palpataions....I'm really lost there, we never got an answer as to how I was

doing.... but I find at times it seems I breathe too quickly, and I take

deep breaths trying to slow it down. Drs here know nothing about NF2 and I'm

guilty of trying to avoid them, I don't get answers and those I do get are

guesstimates at best. We can do as well guessimating or better. I also find

I have at times had fluid draining from my nose if I have my head tilted for

short periods of time. This something totally new to me. I just read Donna's

reply and I also have some tumors in the Lumbar area that we are

watching...so wonder if her thoughts in this respect might be whats taking

place. Hope you are feeling better soon too!

Sheryn

_________________________

> Hi all. I've been off the Crew for a while. My job has gotten

> increasingly busy. I wanted to post to see if any of you who have a

> c-spinal tumor on brainstem or just below and/or a.n.s or regrowths

> that have experienced heart palpatations or leg stiffness/soreness?

> A few days after we got back from Oz, I started having heart palps

> and thought it was because I was taking a water pill for retention.

> I quit the pill (4 days into it) and figured it would take a while

> for the pill to get out of my system. Well, its 2 months later and I

> am still having heart palps and some days they are stronger than

> others. I worried that 1) DVT is involved or 2) that the acoustic

> neuroma that is pressing against my brainstem is causing it. This

> morning I felt like I was either going to pass out or hurl in the

> shower, so I called Brad and asked him to call the gen practioner and

> make an appt for a physical. The symptoms I'm having are:

>

> heart palps

> more than usual stiffness/soreness in my legs

> waves of nausea or feeling like I'm gonna faint

> general feeling bad, no energy

>

> Any ideas guys?

>

> na

>

>

>

[Guest guest]

Oh crap! I hate it when I hear you all confess what problems you have!

Sheryn, I always thought a discharge from the nose was a sign of spinal

fluid leak ? I know that is a ghastly thought, but that's all I ever heard?

Incidentally, my problems are VERY MINOR, but you all know I have rotten

balance and big time vertigo; well I have essential tremors on top of that;

try having vertigo, your head shaking from the tremors--and then I went

horseback riding!! DuN!! They asked me how I liked the view--like who

could look!! Marie

Heart Palps - C Spinal Tumor

>

> Taking a deep breath here..... na, I don't really know what to say,

> where to start, I AM and have had leg stiffness and soreness the while and

> it has been worse since the OZ trip. It was puzzeling....I had none of

that

> with the DVT, but like you, I had the leg swelling, mine lasted a few

days.

> The

> nausea I sometime have had also tightness or some pressure in the area

> of the surgery site( just above medullary to just below the C1 at the back

> of my head), and sort of a , not dizzy but ummmmm wave of vertigo????, not

> really sure what to call it, for brief periods of time and frequently

> through the day, gosh its hard to describe it......I have had a feeling,

> very brief, of passing/blanking out, not often, but occasionally. I have

> definitely been feeling very low on energy the past month or a little

> longer, I am always very tired and awaken a few hours after having been

> asleep. I have not been able to sleep straight thru the night. The DVT

> results were the " lump " breaking down into several small ones over the

> period of a week. This was following contact walking, movement, wearing

> support hose, drinking a lot of water... I had ultrasounds daily, and they

> showed it breaking down....testing stopped at the end of the week. As to

> palpataions....I'm really lost there, we never got an answer as to how I

was

> doing.... but I find at times it seems I breathe too quickly, and I take

> deep breaths trying to slow it down. Drs here know nothing about NF2 and

I'm

> guilty of trying to avoid them, I don't get answers and those I do get are

> guesstimates at best. We can do as well guessimating or better. I also

find

> I have at times had fluid draining from my nose if I have my head tilted

for

> short periods of time. This something totally new to me. I just read

Donna's

> reply and I also have some tumors in the Lumbar area that we are

> watching...so wonder if her thoughts in this respect might be whats taking

> place. Hope you are feeling better soon too!

> Sheryn

> _________________________

> > Hi all. I've been off the Crew for a while. My job has gotten

> > increasingly busy. I wanted to post to see if any of you who have a

> > c-spinal tumor on brainstem or just below and/or a.n.s or regrowths

> > that have experienced heart palpatations or leg stiffness/soreness?

> > A few days after we got back from Oz, I started having heart palps

> > and thought it was because I was taking a water pill for retention.

> > I quit the pill (4 days into it) and figured it would take a while

> > for the pill to get out of my system. Well, its 2 months later and I

> > am still having heart palps and some days they are stronger than

> > others. I worried that 1) DVT is involved or 2) that the acoustic

> > neuroma that is pressing against my brainstem is causing it. This

> > morning I felt like I was either going to pass out or hurl in the

> > shower, so I called Brad and asked him to call the gen practioner and

> > make an appt for a physical. The symptoms I'm having are:

> >

> > heart palps

> > more than usual stiffness/soreness in my legs

> > waves of nausea or feeling like I'm gonna faint

> > general feeling bad, no energy

> >

> > Any ideas guys?

> >

> > na

> >

> >

> >

[Guest guest]

Johanna....heart palps can be stress. Talk to your doctor abou the pills

sweetie!

Carol

[Guest guest]

Marie; I was told by my ENT nasal discharge (post nasal drip) is common among NF-2ers. Something about one of the branches of the facial nerve I guess. I suppose SFL would manifest itself in more ugly ways, eg, headache(severe) and hydroencephalitis. I don' think what you describe about youself is so minor, being very real for you. LOL! Russ

Marie Drew wrote:

Oh crap! I hate it when I hear you all confess what problems you have!Sheryn, I always thought a discharge from the nose was a sign of spinalfluid leak ? I know that is a ghastly thought, but that's all I ever heard?Incidentally, my problems are VERY MINOR, but you all know I have rottenbalance and big time vertigo; well I have essential tremors on top of that;try having vertigo, your head shaking from the tremors--and then I wenthorseback riding!! DuN!! They asked me how I liked the view--like whocould look!! Marie Heart Palps - C Spinal Tumor>> Taking a deep breath here..... na, I don't really know what to say,> where to start, I AM and have had leg stiffness and soreness the while and> it has been worse since the OZ trip. It was puzzeling....I had none ofthat> with the DVT, but like you, I had the leg swelling, mine lasted a fewdays.> The> nausea I sometime have had also tightness or some pressure in the area> of the surgery site( just above medullary to just below the C1 at the back> of my head), and sort of a , not dizzy but ummmmm wave of vertigo????, not> really sure what to call it, for brief periods of time and frequently> through the day, gosh its hard to describe it......I have had a feeling,> very brief, of passing/blanking out, not often, but occasionally. I have> definitely been feeling very low on energy the past month or a little> longer, I am always very tired and awaken a few hours after having been> asleep. I have not been able to sleep straight thru the night. The DVT> results were the "lump" breaking down into several small ones over the> period of a week. This was following contact walking, movement, wearing> support hose, drinking a lot of water... I had ultrasounds daily, and they> showed it breaking down....testing stopped at the end of the week. As to> palpataions....I'm really lost there, we never got an answer as to how Iwas> doing.... but I find at times it seems I breathe too quickly, and I take> deep breaths trying to slow it down. Drs here know nothing about NF2 andI'm> guilty of trying to avoid them, I don't get answers and those I do get are> guesstimates at best. We can do as well guessimating or better. I alsofind> I have at times had fluid draining from my nose if I have my head tiltedfor> short periods of time. This something totally new to me. I just readDonna's> reply and I also have some tumors in the Lumbar area that we are> watching...so wonder if her thoughts in this respect might be whats taking> place. Hope you are feeling better soon too!> Sheryn> _________________________> > Hi all. I've been off the Crew for a while. My job has gotten> > increasingly busy. I wanted to post to see if any of you who have a> > c-spinal tumor on brainstem or just below and/or a.n.s or regrowths> > that have experienced heart palpatations or leg stiffness/soreness?> > A few days after we got back from Oz, I started having heart palps> > and thought it was because I was taking a water pill for retention.> > I quit the pill (4 days into it) and figured it would take a while> > for the pill to get out of my system. Well, its 2 months later and I> > am still having heart palps and some days they are stronger than> > others. I worried that 1) DVT is involved or 2) that the acoustic> > neuroma that is pressing against my brainstem is causing it. This> > morning I felt like I was either going to pass out or hurl in the> > shower, so I called Brad and asked him to call the gen practioner and> > make an appt for a physical. The symptoms I'm having are:> >> > heart palps> > more than usual stiffness/soreness in my legs> > waves of nausea or feeling like I'm gonna faint> > general feeling bad, no energy> >> > Any ideas guys?> >> > na> >> >> >

[Guest guest]

well I guess it depends on what you are talking about; when I get hot, my nose runs like a faucet; I carry a small hand towel, a tissue or handkerchief is useless. If this is the kind of "drip" you are talking about, yes it is fairly common. I was thinking of the kind where when you put your head forward, there is a drip out of your nose? I don't think that is so common, am I wrong? marie

Heart Palps - C Spinal Tumor>> Taking a deep breath here..... na, I don't really know what to say,> where to start, I AM and have had leg stiffness and soreness the while and> it has been worse since the OZ trip. It was puzzeling....I had none ofthat> with the DVT, but like you, I had the leg swelling, mine lasted a fewdays.> The> nausea I sometime have had also tightness or some pressure in the area> of the surgery site( just above medullary to just below the C1 at the back> of my head), and sort of a , not dizzy but ummmmm wave of vertigo????, not> really sure what to call it, for brief periods of time and frequently> through the day, gosh its hard to describe it......I have had a feeling,> very brief, of passing/blanking out, not often, but occasionally. I have> definitely been feeling very low on energy the past month or a little> longer, I am always very tired and awaken a few hours after having been> asleep. I have not been able to sleep straight thru the night. The DVT> results were the "lump" breaking down into several small ones over the> period of a week. This was following contact walking, movement, wearing> support hose, drinking a lot of water... I had ultrasounds daily, and they> showed it breaking down....testing stopped at the end of the week. As to> palpataions....I'm really lost there, we never got an answer as to how Iwas> doing.... but I find at times it seems I breathe too quickly, and I take> deep breaths trying to slow it down. Drs here know nothing about NF2 andI'm> guilty of trying to avoid them, I don't get answers and those I do get are> guesstimates at best. We can do as well guessimating or better. I alsofind> I have at times had fluid draining from my nose if I have my head tiltedfor> short periods of time. This something totally new to me. I just readDonna's> reply and I also have some tumors in the Lumbar area that we are> watching...so wonder if her thoughts in this respect might be whats taking> place. Hope you are feeling better soon too!> Sheryn> _________________________> > Hi all. I've been off the Crew for a while. My job has gotten> > increasingly busy. I wanted to post to see if any of you who have a> > c-spinal tumor on brainstem or just below and/or a.n.s or regrowths> > that have experienced heart palpatations or leg stiffness/soreness?> > A few days after we got back from Oz, I started having heart palps> > and thought it was because I was taking a water pill for retention.> > I quit the pill (4 days into it) and figured it would take a while> > for the pill to get out of my system. Well, its 2 months later and I> > am still having heart palps and some days they are stronger than> > others. I worried that 1) DVT is involved or 2) that the acoustic> > neuroma that is pressing against my brainstem is causing it. This> > morning I felt like I was either going to pass out or hurl in the> > shower, so I called Brad and asked him to call the gen practioner and> > make an appt for a physical. The symptoms I'm having are:> >> > heart palps> > more than usual stiffness/soreness in my legs> > waves of nausea or feeling like I'm gonna faint> > general feeling bad, no energy> >> > Any ideas guys?> >> > na> >> >> >

[Guest guest]

na :-) Tell the DOC you had to endure INSTANT COFFEE too OK ? You just

never know. ;-)

M

Re: Heart Palps - C Spinal Tumor

> Johanna....heart palps can be stress. Talk to your doctor abou the pills

> sweetie!

> Carol

>

>

>

>

[Guest guest]

Subject: Re: Heart Palps - C Spinal Tumor

Thanks Marie, It never crossed my mind it might be a spinal fluid leak, but

it sure makes sense as a possibility now you mention it. I'll check into it.

You're a big inspiration to me. One of the many reasons......because of your

interest in doing snorkling at the GBR, I tried it. And am so glad I DID!.

Likely wouldn't have considered it otherwise.......

Sheryn

_________________________

> Oh crap! I hate it when I hear you all confess what problems you have!

> Sheryn, I always thought a discharge from the nose was a sign of spinal

> fluid leak ? I know that is a ghastly thought, but that's all I ever

heard?

> Incidentally, my problems are VERY MINOR, but you all know I have rotten

> balance and big time vertigo; well I have essential tremors on top of

that;

> try having vertigo, your head shaking from the tremors--and then I went

> horseback riding!! DuN!! They asked me how I liked the view--like who

> could look!! Marie

> Heart Palps - C Spinal Tumor

> >

> > Taking a deep breath here..... na, I don't really know what to say,

> > where to start, I AM and have had leg stiffness and soreness the while

and

> > it has been worse since the OZ trip. It was puzzeling....I had none of

> that

> > with the DVT, but like you, I had the leg swelling, mine lasted a few

> days.

> > The

> > nausea I sometime have had also tightness or some pressure in the area

> > of the surgery site( just above medullary to just below the C1 at the

back

> > of my head), and sort of a , not dizzy but ummmmm wave of vertigo????,

not

> > really sure what to call it, for brief periods of time and frequently

> > through the day, gosh its hard to describe it......I have had a feeling,

> > very brief, of passing/blanking out, not often, but occasionally. I have

> > definitely been feeling very low on energy the past month or a little

> > longer, I am always very tired and awaken a few hours after having been

> > asleep. I have not been able to sleep straight thru the night. The DVT

> > results were the " lump " breaking down into several small ones over the

> > period of a week. This was following contact walking, movement, wearing

> > support hose, drinking a lot of water... I had ultrasounds daily, and

they

> > showed it breaking down....testing stopped at the end of the week. As to

> > palpataions....I'm really lost there, we never got an answer as to how I

> was

> > doing.... but I find at times it seems I breathe too quickly, and I take

> > deep breaths trying to slow it down. Drs here know nothing about NF2 and

> I'm

> > guilty of trying to avoid them, I don't get answers and those I do get

are

> > guesstimates at best. We can do as well guessimating or better. I also

> find

> > I have at times had fluid draining from my nose if I have my head tilted

> for

> > short periods of time. This something totally new to me. I just read

> Donna's

> > reply and I also have some tumors in the Lumbar area that we are

> > watching...so wonder if her thoughts in this respect might be whats

taking

> > place. Hope you are feeling better soon too!

> > Sheryn

> > _________________________

> > > Hi all. I've been off the Crew for a while. My job has gotten

> > > increasingly busy. I wanted to post to see if any of you who have a

> > > c-spinal tumor on brainstem or just below and/or a.n.s or regrowths

> > > that have experienced heart palpatations or leg stiffness/soreness?

> > > A few days after we got back from Oz, I started having heart palps

> > > and thought it was because I was taking a water pill for retention.

> > > I quit the pill (4 days into it) and figured it would take a while

> > > for the pill to get out of my system. Well, its 2 months later and I

> > > am still having heart palps and some days they are stronger than

> > > others. I worried that 1) DVT is involved or 2) that the acoustic

> > > neuroma that is pressing against my brainstem is causing it. This

> > > morning I felt like I was either going to pass out or hurl in the

> > > shower, so I called Brad and asked him to call the gen practioner and

> > > make an appt for a physical. The symptoms I'm having are:

> > >

> > > heart palps

> > > more than usual stiffness/soreness in my legs

> > > waves of nausea or feeling like I'm gonna faint

> > > general feeling bad, no energy

> > >

> > > Any ideas guys?

> > >

> > > na

> > >

> > >

> > >

[Guest guest]

Marie! I hate that you have the vertigo and essential tremors, but

you crack me up when you said " they asked me how I liked the view...

like I could look! " Do you know what causes the essential tremors?

My brother is 44 and he has these too, but sometimes they go away.

> Oh crap! I hate it when I hear you all confess what problems you

have!

> Sheryn, I always thought a discharge from the nose was a sign of

spinal

> fluid leak ? I know that is a ghastly thought, but that's all I

ever heard?

> Incidentally, my problems are VERY MINOR, but you all know I have

rotten

> balance and big time vertigo; well I have essential tremors on top

of that;

> try having vertigo, your head shaking from the tremors--and then I

went

> horseback riding!! DuN!! They asked me how I liked the view--like

who

> could look!! Marie

[Guest guest]

na how about going to see a Neurologist or Neurosurgeon in Dallas or

Houston to make sure your problem is not tumor related .i think it would

be a good idea to rule that out .Tev

[Guest guest]

LOL!!! You're so funny, Marcus! You know I forwarded that pic of my

coffee maker so you'd stop having nightmares about my bench to

ceiling coffee machine. :op

na

> na :-) Tell the DOC you had to endure INSTANT COFFEE too OK ?

You just

> never know. ;-)

> M

>

>

[Guest guest]

I agree with Sheryn, Marie is an awesome inspiration, isn't she?

na

>

> Subject: Re: Heart Palps - C Spinal Tumor

>

> Thanks Marie, It never crossed my mind it might be a spinal fluid

leak, but

> it sure makes sense as a possibility now you mention it. I'll check

into it.

> You're a big inspiration to me. One of the many

reasons......because of your

> interest in doing snorkling at the GBR, I tried it. And am so glad

I DID!.

> Likely wouldn't have considered it otherwise.......

> Sheryn

>

[Guest guest]

Hi na,

I don't mean to sound weird but maybe some of your symptoms are para-menapausal. I know it can do weird things to the body and mind. It can also start 10 years before menopause.

Just a thought.

Blessings,

Heart Palps - C Spinal Tumor> > Taking a deep breath here..... na, I don't really know what to say,> where to start, I AM and have had leg stiffness and soreness the while and> it has been worse since the OZ trip. It was puzzeling....I had none of that> with the DVT, but like you, I had the leg swelling, mine lasted a few days.> The> nausea I sometime have had also tightness or some pressure in the area> of the surgery site( just above medullary to just below the C1 at the back> of my head), and sort of a , not dizzy but ummmmm wave of vertigo????, not> really sure what to call it, for brief periods of time and frequently> through the day, gosh its hard to describe it......I have had a feeling,> very brief, of passing/blanking out, not often, but occasionally. I have> definitely been feeling very low on energy the past month or a little> longer, I am always very tired and awaken a few hours after having been> asleep. I have not been able to sleep straight thru the night. The DVT> results were the "lump" breaking down into several small ones over the> period of a week. This was following contact walking, movement, wearing> support hose, drinking a lot of water... I had ultrasounds daily, and they> showed it breaking down....testing stopped at the end of the week. As to> palpataions....I'm really lost there, we never got an answer as to how I was> doing.... but I find at times it seems I breathe too quickly, and I take> deep breaths trying to slow it down. Drs here know nothing about NF2 and I'm> guilty of trying to avoid them, I don't get answers and those I do get are> guesstimates at best. We can do as well guessimating or better. I also find> I have at times had fluid draining from my nose if I have my head tilted for> short periods of time. This something totally new to me. I just read Donna's> reply and I also have some tumors in the Lumbar area that we are> watching...so wonder if her thoughts in this respect might be whats taking> place. Hope you are feeling better soon too!> Sheryn> _________________________> > Hi all. I've been off the Crew for a while. My job has gotten> > increasingly busy. I wanted to post to see if any of you who have a> > c-spinal tumor on brainstem or just below and/or a.n.s or regrowths> > that have experienced heart palpatations or leg stiffness/soreness?> > A few days after we got back from Oz, I started having heart palps> > and thought it was because I was taking a water pill for retention.> > I quit the pill (4 days into it) and figured it would take a while> > for the pill to get out of my system. Well, its 2 months later and I> > am still having heart palps and some days they are stronger than> > others. I worried that 1) DVT is involved or 2) that the acoustic> > neuroma that is pressing against my brainstem is causing it. This> > morning I felt like I was either going to pass out or hurl in the> > shower, so I called Brad and asked him to call the gen practioner and> > make an appt for a physical. The symptoms I'm having are:> >> > heart palps> > more than usual stiffness/soreness in my legs> > waves of nausea or feeling like I'm gonna faint> > general feeling bad, no energy> >> > Any ideas guys?> >> > na> >> >> >

[Guest guest]

Hi ,

It doesn't sound weird. I'll keep it in mind. )

na

> Hi na,

>

> I don't mean to sound weird but maybe some of your symptoms are

para-menapausal. I know it can do weird things to the body and

mind. It can also start 10 years before menopause.

>

> Just a thought.

>

> Blessings,

>

[Guest guest]

na; Hi! I wrote re: you b-4. Sounding alittle like anxiety attacks related to sarah's idea now. Lets see, last time I thought electrolyte imabalance and the fact you actually need the diuretics. Didn't you mention a fluid retention? Sorry, i don't save alot of mailings. Have a good day. Relax alittle............Russ bjfinch_tx wrote:

Hi ,It doesn't sound weird. I'll keep it in mind. )na> Hi na,> > I don't mean to sound weird but maybe some of your symptoms are para-menapausal. I know it can do weird things to the body and mind. It can also start 10 years before menopause.> > Just a thought.> > Blessings,>

[Guest guest]

Subject: Re: Heart Palps - C Spinal Tumor

Hello na,

I too get nervous they'll miss something serious or treat something

incorrectly if at all.I hope you have good results at your Appointment. Good

Luck na ,

Hugs ((((na))))))

______________

> Hi Sheryn,

>

> I feel like a hypochondriac. Its frustrating not knowing whether the

> symptoms you feel are due to tumors or not. My docs here in Midland

> know nothing about NF2... so I'm thinking what if they don't find

> anything wrong with me and its actually tumor related. The dizzyness

> I've felt has been as you described, a wave of vertigo? Brad and I

> were at IHOP and it happened... and I'm watching all these women go

> in and out of the bathroom and wishing they would all just leave in

> case I had to run in there. I said " I gotta get outta here " and got

> up and went outside. The fresh air helped. That and the feeling

> like I was gonna faint in the shower was just the other time.

> Nothing else since. I feel like I need more exercise. It would slow

> down my heart to exercise regularly. Anyway, I'm feeling better

> today. Brad made an appt with my GP Tuesday morning. I want him to

> listen to my heart. We'll just go from there I guess.

>

> na

>

>

> >

> > Subject: Heart Palps - C Spinal Tumor

> >

> > Taking a deep breath here..... na, I don't really know what to

> say,

> > where to start, I AM and have had leg stiffness and soreness the

> while and

> > it has been worse since the OZ trip. It was puzzeling....I had none

> of that

> > with the DVT, but like you, I had the leg swelling, mine lasted a

> few days.

> > The

> > nausea I sometime have had also tightness or some pressure in the

> area

> > of the surgery site( just above medullary to just below the C1 at

> the back

> > of my head), and sort of a , not dizzy but ummmmm wave of

> vertigo????, not

> > really sure what to call it, for brief periods of time and

> frequently

> > through the day, gosh its hard to describe it......I have had a

> feeling,

> > very brief, of passing/blanking out, not often, but occasionally. I

> have

> > definitely been feeling very low on energy the past month or a

> little

> > longer, I am always very tired and awaken a few hours after having

> been

> > asleep. I have not been able to sleep straight thru the night. The

> DVT

> > results were the " lump " breaking down into several small ones over

> the

> > period of a week. This was following contact walking, movement,

> wearing

> > support hose, drinking a lot of water... I had ultrasounds daily,

> and they

> > showed it breaking down....testing stopped at the end of the week.

> As to

> > palpataions....I'm really lost there, we never got an answer as to

> how I was

> > doing.... but I find at times it seems I breathe too quickly, and I

> take

> > deep breaths trying to slow it down. Drs here know nothing about

> NF2 and I'm

> > guilty of trying to avoid them, I don't get answers and those I do

> get are

> > guesstimates at best. We can do as well guessimating or better. I

> also find

> > I have at times had fluid draining from my nose if I have my head

> tilted for

> > short periods of time. This something totally new to me. I just

> read Donna's

> > reply and I also have some tumors in the Lumbar area that we are

> > watching...so wonder if her thoughts in this respect might be whats

> taking

> > place. Hope you are feeling better soon too!

> > Sheryn

> > _________________________

> > > Hi all. I've been off the Crew for a while. My job has gotten

> > > increasingly busy. I wanted to post to see if any of you who

> have a

> > > c-spinal tumor on brainstem or just below and/or a.n.s or

> regrowths

> > > that have experienced heart palpatations or leg

> stiffness/soreness?

> > > A few days after we got back from Oz, I started having heart palps

> > > and thought it was because I was taking a water pill for

> retention.

> > > I quit the pill (4 days into it) and figured it would take a while

> > > for the pill to get out of my system. Well, its 2 months later

> and I

> > > am still having heart palps and some days they are stronger than

> > > others. I worried that 1) DVT is involved or 2) that the acoustic

> > > neuroma that is pressing against my brainstem is causing it. This

> > > morning I felt like I was either going to pass out or hurl in the

> > > shower, so I called Brad and asked him to call the gen practioner

> and

> > > make an appt for a physical. The symptoms I'm having are:

> > >

> > > heart palps

> > > more than usual stiffness/soreness in my legs

> > > waves of nausea or feeling like I'm gonna faint

> > > general feeling bad, no energy

> > >

> > > Any ideas guys?

> > >

> > > na

> > >

> > >

> > >

[Guest guest]

The only way to cure this na is to come back to OZ....

....

Heart Palps - C Spinal Tumor

Hi all. I've been off the Crew for a while. My job has gotten increasingly busy. I wanted to post to see if any of you who have a c-spinal tumor on brainstem or just below and/or a.n.s or regrowths that have experienced heart palpatations or leg stiffness/soreness? A few days after we got back from Oz, I started having heart palps and thought it was because I was taking a water pill for retention. I quit the pill (4 days into it) and figured it would take a while for the pill to get out of my system. Well, its 2 months later and I am still having heart palps and some days they are stronger than others. I worried that 1) DVT is involved or 2) that the acoustic neuroma that is pressing against my brainstem is causing it. This morning I felt like I was either going to pass out or hurl in the shower, so I called Brad and asked him to call the gen practioner and make an appt for a physical. The symptoms I'm having are:heart palpsmore than usual stiffness/soreness in my legswaves of nausea or feeling like I'm gonna faintgeneral feeling bad, no energyAny ideas guys? na

[Guest guest]

Sheryn,

You will have to come back to OZ with na, I could put the two of you in the "Shed" )))))) my dogbox.

Bri.....

Heart Palps - C Spinal TumorTaking a deep breath here..... na, I don't really know what to say,where to start, I AM and have had leg stiffness and soreness the while andit has been worse since the OZ trip. It was puzzeling....I had none of thatwith the DVT, but like you, I had the leg swelling, mine lasted a few days.Thenausea I sometime have had also tightness or some pressure in the areaof the surgery site( just above medullary to just below the C1 at the backof my head), and sort of a , not dizzy but ummmmm wave of vertigo????, notreally sure what to call it, for brief periods of time and frequentlythrough the day, gosh its hard to describe it......I have had a feeling,very brief, of passing/blanking out, not often, but occasionally. I havedefinitely been feeling very low on energy the past month or a littlelonger, I am always very tired and awaken a few hours after having beenasleep. I have not been able to sleep straight thru the night. The DVTresults were the "lump" breaking down into several small ones over theperiod of a week. This was following contact walking, movement, wearingsupport hose, drinking a lot of water... I had ultrasounds daily, and theyshowed it breaking down....testing stopped at the end of the week. As topalpataions....I'm really lost there, we never got an answer as to how I wasdoing.... but I find at times it seems I breathe too quickly, and I takedeep breaths trying to slow it down. Drs here know nothing about NF2 and I'mguilty of trying to avoid them, I don't get answers and those I do get areguesstimates at best. We can do as well guessimating or better. I also findI have at times had fluid draining from my nose if I have my head tilted forshort periods of time. This something totally new to me. I just read Donna'sreply and I also have some tumors in the Lumbar area that we arewatching...so wonder if her thoughts in this respect might be whats takingplace. Hope you are feeling better soon too!Sheryn_________________________> Hi all. I've been off the Crew for a while. My job has gotten> increasingly busy. I wanted to post to see if any of you who have a> c-spinal tumor on brainstem or just below and/or a.n.s or regrowths> that have experienced heart palpatations or leg stiffness/soreness?> A few days after we got back from Oz, I started having heart palps> and thought it was because I was taking a water pill for retention.> I quit the pill (4 days into it) and figured it would take a while> for the pill to get out of my system. Well, its 2 months later and I> am still having heart palps and some days they are stronger than> others. I worried that 1) DVT is involved or 2) that the acoustic> neuroma that is pressing against my brainstem is causing it. This> morning I felt like I was either going to pass out or hurl in the> shower, so I called Brad and asked him to call the gen practioner and> make an appt for a physical. The symptoms I'm having are:>> heart palps> more than usual stiffness/soreness in my legs> waves of nausea or feeling like I'm gonna faint> general feeling bad, no energy>> Any ideas guys?>> na>>>

[Guest guest]

You know that is funny; years ago, I went to Hawaii with a friend; she said

her idea of vacation is laying on the beach reading a novel; well I had her

take a helicopter tour of an island, do the Hana highway, and yes, we went

snorkeling, and I even got her to go off a slide into the ocean. She still

talks about it!! LOL Marie

Heart Palps - C Spinal Tumor

> > >

> > > Taking a deep breath here..... na, I don't really know what to

say,

> > > where to start, I AM and have had leg stiffness and soreness the while

> and

> > > it has been worse since the OZ trip. It was puzzeling....I had none of

> > that

> > > with the DVT, but like you, I had the leg swelling, mine lasted a few

> > days.

> > > The

> > > nausea I sometime have had also tightness or some pressure in the area

> > > of the surgery site( just above medullary to just below the C1 at the

> back

> > > of my head), and sort of a , not dizzy but ummmmm wave of vertigo????,

> not

> > > really sure what to call it, for brief periods of time and frequently

> > > through the day, gosh its hard to describe it......I have had a

feeling,

> > > very brief, of passing/blanking out, not often, but occasionally. I

have

> > > definitely been feeling very low on energy the past month or a little

> > > longer, I am always very tired and awaken a few hours after having

been

> > > asleep. I have not been able to sleep straight thru the night. The DVT

> > > results were the " lump " breaking down into several small ones over the

> > > period of a week. This was following contact walking, movement,

wearing

> > > support hose, drinking a lot of water... I had ultrasounds daily, and

> they

> > > showed it breaking down....testing stopped at the end of the week. As

to

> > > palpataions....I'm really lost there, we never got an answer as to how

I

> > was

> > > doing.... but I find at times it seems I breathe too quickly, and I

take

> > > deep breaths trying to slow it down. Drs here know nothing about NF2

and

> > I'm

> > > guilty of trying to avoid them, I don't get answers and those I do get

> are

> > > guesstimates at best. We can do as well guessimating or better. I also

> > find

> > > I have at times had fluid draining from my nose if I have my head

tilted

> > for

> > > short periods of time. This something totally new to me. I just read

> > Donna's

> > > reply and I also have some tumors in the Lumbar area that we are

> > > watching...so wonder if her thoughts in this respect might be whats

> taking

> > > place. Hope you are feeling better soon too!

> > > Sheryn

> > > _________________________

> > > > Hi all. I've been off the Crew for a while. My job has gotten

> > > > increasingly busy. I wanted to post to see if any of you who have a

> > > > c-spinal tumor on brainstem or just below and/or a.n.s or regrowths

> > > > that have experienced heart palpatations or leg stiffness/soreness?

> > > > A few days after we got back from Oz, I started having heart palps

> > > > and thought it was because I was taking a water pill for retention.

> > > > I quit the pill (4 days into it) and figured it would take a while

> > > > for the pill to get out of my system. Well, its 2 months later and

I

> > > > am still having heart palps and some days they are stronger than

> > > > others. I worried that 1) DVT is involved or 2) that the acoustic

> > > > neuroma that is pressing against my brainstem is causing it. This

> > > > morning I felt like I was either going to pass out or hurl in the

> > > > shower, so I called Brad and asked him to call the gen practioner

and

> > > > make an appt for a physical. The symptoms I'm having are:

> > > >

> > > > heart palps

> > > > more than usual stiffness/soreness in my legs

> > > > waves of nausea or feeling like I'm gonna faint

> > > > general feeling bad, no energy

> > > >

> > > > Any ideas guys?

> > > >

> > > > na

> > > >

> > > >

> > > >

[Guest guest]

I know, I have been hoping for that! My Dad had them at one time, but he

does not have them now; I have no clue what causes them, and the docs didn't

seem to either; I got the usual stuff about " well you have so much nerve

damage " ; she gave me meds, but after a while I quit taking them. Marie

Re: Heart Palps - C Spinal Tumor

> Marie! I hate that you have the vertigo and essential tremors, but

> you crack me up when you said " they asked me how I liked the view...

> like I could look! " Do you know what causes the essential tremors?

> My brother is 44 and he has these too, but sometimes they go away.

>

>

>

> > Oh crap! I hate it when I hear you all confess what problems you

> have!

> > Sheryn, I always thought a discharge from the nose was a sign of

> spinal

> > fluid leak ? I know that is a ghastly thought, but that's all I

> ever heard?

> > Incidentally, my problems are VERY MINOR, but you all know I have

> rotten

> > balance and big time vertigo; well I have essential tremors on top

> of that;

> > try having vertigo, your head shaking from the tremors--and then I

> went

> > horseback riding!! DuN!! They asked me how I liked the view--like

> who

> > could look!! Marie

>

>

>

>

[Guest guest]

Gee thanks guys, can I tell the friends that just think I'm nuts?? marie

Re: Heart Palps - C Spinal Tumor

> >

> > Thanks Marie, It never crossed my mind it might be a spinal fluid

> leak, but

> > it sure makes sense as a possibility now you mention it. I'll check

> into it.

> > You're a big inspiration to me. One of the many

> reasons......because of your

> > interest in doing snorkling at the GBR, I tried it. And am so glad

> I DID!.

> > Likely wouldn't have considered it otherwise.......

> > Sheryn

> >

>

>

>

[Guest guest]

I think you're on to something here, !!! 8^) (who

knows that na will be taking her coffee maker with her the next time

she goes to OZ... even if she does start brewing decaf)

Cross wrote:

The only way to

cure this na is to come back to OZ........

[Guest guest]

Say; Bri! I went to Yahoo Maps Driving directions and they said something about a rudder at turns. Do Chevs put rudders in their vans with 'towing packages'? Russ

Cross wrote:

The only way to cure this na is to come back to OZ....

....

Heart Palps - C Spinal Tumor

Hi all. I've been off the Crew for a while. My job has gotten increasingly busy. I wanted to post to see if any of you who have a c-spinal tumor on brainstem or just below and/or a.n.s or regrowths that have experienced heart palpatations or leg stiffness/soreness? A few days after we got back from Oz, I started having heart palps and thought it was because I was taking a water pill for retention. I quit the pill (4 days into it) and figured it would take a while for the pill to get out of my system. Well, its 2 months later and I am still having heart palps and some days they are stronger than others. I worried that 1) DVT is involved or 2) that the acoustic neuroma that is pressing against my brainstem is causing it. This morning I felt like I was either going to pass out or hurl in the shower, so I called Brad and asked him to call the gen practioner and make an appt for a physical. The symptoms I'm having are:heart palpsmore than usual stiffness/soreness in my legswaves of nausea or feeling like I'm gonna faintgeneral feeling bad, no energyAny ideas guys? na