Re: Heart Palps - C Spinal Tumor

[Guest guest]

Bri doesn't want Brad's Chevy... he wants na's Ford! (do I have

that right, guys?)

russ korte wrote:

Say; Bri! I went to Yahoo Maps Driving directions and they said

something about a rudder at turns. Do Chevs put rudders in their vans with

'towing packages'?

Russ

[Guest guest]

Its not bad either.

M who has DONE THE SHED and live to tell the tale

----- Original Message -----

From: Cross

Sheryn,

You will have to come back to OZ with na, I could put the two of you in the "Shed" )))))) my dogbox.

Bri.....

[Guest guest]

SHEEEEESH you guys and coffee.

HUMPHHHHH

----- Original Message -----

From: L. Przybysz

I think you're on to something here, !!! 8^) (who knows that na will be taking her coffee maker with her the next time she goes to OZ... even if she does start brewing decaf)

[Guest guest]

Subject: Re: Heart Palps - C Spinal Tumor

OHHHHh Thanks , I'm packing and on my way......Johanna, you coming?

Sheryn____________________________________

Sheryn,

You will have to come back to OZ with na, I could put the two of you in the "Shed" )))))) my dogbox.

Bri.....

Heart Palps - C Spinal TumorTaking a deep breath here..... na, I don't really know what to say,where to start, I AM and have had leg stiffness and soreness the while andit has been worse since the OZ trip. It was puzzeling....I had none of thatwith the DVT, but like you, I had the leg swelling, mine lasted a few days.Thenausea I sometime have had also tightness or some pressure in the areaof the surgery site( just above medullary to just below the C1 at the backof my head), and sort of a , not dizzy but ummmmm wave of vertigo????, notreally sure what to call it, for brief periods of time and frequentlythrough the day, gosh its hard to describe it......I have had a feeling,very brief, of passing/blanking out, not often, but occasionally. I havedefinitely been feeling very low on energy the past month or a littlelonger, I am always very tired and awaken a few hours after having beenasleep. I have not been able to sleep straight thru the night. The DVTresults were the "lump" breaking down into several small ones over theperiod of a week. This was following contact walking, movement, wearingsupport hose, drinking a lot of water... I had ultrasounds daily, and theyshowed it breaking down....testing stopped at the end of the week. As topalpataions....I'm really lost there, we never got an answer as to how I wasdoing.... but I find at times it seems I breathe too quickly, and I takedeep breaths trying to slow it down. Drs here know nothing about NF2 and I'mguilty of trying to avoid them, I don't get answers and those I do get areguesstimates at best. We can do as well guessimating or better. I also findI have at times had fluid draining from my nose if I have my head tilted forshort periods of time. This something totally new to me. I just read Donna'sreply and I also have some tumors in the Lumbar area that we arewatching...so wonder if her thoughts in this respect might be whats takingplace. Hope you are feeling better soon too!Sheryn_________________________> Hi all. I've been off the Crew for a while. My job has gotten> increasingly busy. I wanted to post to see if any of you who have a> c-spinal tumor on brainstem or just below and/or a.n.s or regrowths> that have experienced heart palpatations or leg stiffness/soreness?> A few days after we got back from Oz, I started having heart palps> and thought it was because I was taking a water pill for retention.> I quit the pill (4 days into it) and figured it would take a while> for the pill to get out of my system. Well, its 2 months later and I> am still having heart palps and some days they are stronger than> others. I worried that 1) DVT is involved or 2) that the acoustic> neuroma that is pressing against my brainstem is causing it. This> morning I felt like I was either going to pass out or hurl in the> shower, so I called Brad and asked him to call the gen practioner and> make an appt for a physical. The symptoms I'm having are:>> heart palps> more than usual stiffness/soreness in my legs> waves of nausea or feeling like I'm gonna faint> general feeling bad, no energy>> Any ideas guys?>> na>>>

[Guest guest]

Subject: Re: Heart Palps - C Spinal Tumor

Marie, I'd love to do those things, maybe we should seriously consider

Hawaii our next road trip...

Sheryn

_____________________

> You know that is funny; years ago, I went to Hawaii with a friend; she

said

> her idea of vacation is laying on the beach reading a novel; well I had

her

> take a helicopter tour of an island, do the Hana highway, and yes, we went

> snorkeling, and I even got her to go off a slide into the ocean. She

still

> talks about it!! LOL Marie

> Heart Palps - C Spinal Tumor

> > > >

> > > > Taking a deep breath here..... na, I don't really know what to

> say,

> > > > where to start, I AM and have had leg stiffness and soreness the

while

> > and

> > > > it has been worse since the OZ trip. It was puzzeling....I had none

of

> > > that

> > > > with the DVT, but like you, I had the leg swelling, mine lasted a

few

> > > days.

> > > > The

> > > > nausea I sometime have had also tightness or some pressure in the

area

> > > > of the surgery site( just above medullary to just below the C1 at

the

> > back

> > > > of my head), and sort of a , not dizzy but ummmmm wave of

vertigo????,

> > not

> > > > really sure what to call it, for brief periods of time and

frequently

> > > > through the day, gosh its hard to describe it......I have had a

> feeling,

> > > > very brief, of passing/blanking out, not often, but occasionally. I

> have

> > > > definitely been feeling very low on energy the past month or a

little

> > > > longer, I am always very tired and awaken a few hours after having

> been

> > > > asleep. I have not been able to sleep straight thru the night. The

DVT

> > > > results were the " lump " breaking down into several small ones over

the

> > > > period of a week. This was following contact walking, movement,

> wearing

> > > > support hose, drinking a lot of water... I had ultrasounds daily,

and

> > they

> > > > showed it breaking down....testing stopped at the end of the week.

As

> to

> > > > palpataions....I'm really lost there, we never got an answer as to

how

> I

> > > was

> > > > doing.... but I find at times it seems I breathe too quickly, and I

> take

> > > > deep breaths trying to slow it down. Drs here know nothing about NF2

> and

> > > I'm

> > > > guilty of trying to avoid them, I don't get answers and those I do

get

> > are

> > > > guesstimates at best. We can do as well guessimating or better. I

also

> > > find

> > > > I have at times had fluid draining from my nose if I have my head

> tilted

> > > for

> > > > short periods of time. This something totally new to me. I just read

> > > Donna's

> > > > reply and I also have some tumors in the Lumbar area that we are

> > > > watching...so wonder if her thoughts in this respect might be whats

> > taking

> > > > place. Hope you are feeling better soon too!

> > > > Sheryn

> > > > _________________________

> > > > > Hi all. I've been off the Crew for a while. My job has gotten

> > > > > increasingly busy. I wanted to post to see if any of you who have

a

> > > > > c-spinal tumor on brainstem or just below and/or a.n.s or

regrowths

> > > > > that have experienced heart palpatations or leg

stiffness/soreness?

> > > > > A few days after we got back from Oz, I started having heart palps

> > > > > and thought it was because I was taking a water pill for

retention.

> > > > > I quit the pill (4 days into it) and figured it would take a while

> > > > > for the pill to get out of my system. Well, its 2 months later

and

> I

> > > > > am still having heart palps and some days they are stronger than

> > > > > others. I worried that 1) DVT is involved or 2) that the acoustic

> > > > > neuroma that is pressing against my brainstem is causing it. This

> > > > > morning I felt like I was either going to pass out or hurl in the

> > > > > shower, so I called Brad and asked him to call the gen practioner

> and

> > > > > make an appt for a physical. The symptoms I'm having are:

> > > > >

> > > > > heart palps

> > > > > more than usual stiffness/soreness in my legs

> > > > > waves of nausea or feeling like I'm gonna faint

> > > > > general feeling bad, no energy

> > > > >

> > > > > Any ideas guys?

> > > > >

> > > > > na

> > > > >

> > > > >

> > > > >

[Guest guest]

You know what tho, it will take a little bit, but I can't tell the

difference between decaf and regular; sometimes I will order decaf, and then

when I am laying awake at 1 AM, I am thinking, damn, they gave me regular!!

LOL Marie

Re: Heart Palps - C Spinal Tumor

> Thanks Marie. I am starting to wonder if thats not the culprit.

> I've thought many times about getting the monkey off my back, but

> then I'd think " WHY? " I LIKE regular coffee. I can't imagine

> getting up and getting ready for work without it. Kinda pathetic

> sounding. If the doctor says so, then I will have a GOOD reason to

> quit. )

>

>

>

>

> > > > > > Well, na!! I hate it that you are feeling so bad!! I

> > > think I

> > > > > have ALL

> > > > > > that you listed as far as tumors go, but my NS said that my

> leg

> > > > > soreness was

> > > > > > due to a cluster of tumors on my spine, about my lumbar

> > > region. I

> > > > > had leg

> > > > > > soreness so bad that I could barely stand up for any length

> of

> > > > time

> > > > > or go

> > > > > > shopping or anything, and my neuro put me on Celebrex and

> that

> > > is

> > > > > what has

> > > > > > stopped this. About the heart palps, well I have a heart

> > > murmur

> > > > so

> > > > > a flutter

> > > > > > now and then is normal. :o/ I am like you with the no

> energy

> > > > > though, since

> > > > > > my bad case of jet lag I have not been able to do ANYTHING

> > > without

> > > > > it

> > > > > > exhausting me. ( I wish you luck in finding out what is

> > > causing

> > > > > your

> > > > > > problems and hope you get to feeling better SOON!!

> > > > > >

> > > > > > Donna

> > >

> > >

> > >

[Guest guest]

Marie, where do we get friends like that? I can always use another friend!

Marie Drew wrote:

> Well I just sent cindy some cruise sites. When I went we flew to main

> island, then were on a ship and it cruised at night and we visited four or

> five islands. My friend paid the bulk of it, so I don't know what it cost.

> But Hawaii is the place Marcus should see! Marie

[Guest guest]

I know, you would have to know this lady. Her financial advisor keeps

telling her she needs to spend some of her money! LOL She is very

" frugal " , but I guess I came across as a needy case! LOL Marie

Re: Heart Palps - C Spinal Tumor

> Marie, where do we get friends like that? I can always use another

friend!

>

>

> Marie Drew wrote:

>

> > Well I just sent cindy some cruise sites. When I went we flew to main

> > island, then were on a ship and it cruised at night and we visited four

or

> > five islands. My friend paid the bulk of it, so I don't know what it

cost.

> > But Hawaii is the place Marcus should see! Marie

>

>

>