Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 K......be sure and watch the subject line.....maybe add your name as I did, or start a new post to Jim...........Your post appears to be asking me about snow, when you're really asking Jim, a post below mine. I think not adding a name or starting a new post is where so many of us miss stuff. How is Don this morning? Tell him hello for me. Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! $.02 worth Once again I've been reading about dead beat doctors who, for whatever reasons, aren't meeting the needs of folks on the Board here. First, I have to say that there are genuine healers out there that are, unfortunately in my opinion, in the minority. In my case, in my pre- IPF days I had 2 oncologists. One of them I still see every 3-6 months. First he wants a CT scan to check that the cancer has not returned. After that the time is mine and much of it is spent discussing my lungs. He is damn busy, but he makes time to "treat" me. He has even researched pulmo questions to help me find answers. Anyway, that's not why I'm writing........I'm writing about Respiratory Therapists. I've only had contact with 2 so my experience is limited, but both are EXCELLENT sources of information, One does my periodic PFT, and the other runs the small company that rents me all my O2 equipment. This guy is available 24/7. I'm not able to do pulmo rehab because I choose to live 350 miles from Anchorage so this guy makes himself available by phone. I'm making this way too long and drawn out. In my experience, both of these RTs provide me with as much or more info than any MD. Like anything else, there are bound to be duds, but I've had great experience with them. jim IPF 05 alaska Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Thanks Sher, I do think he saw it because he answered but you are right. I've found myself posting something and forgetting to change the subject line. Don is sleeping right now. We went to see the pcp today because we hadn't been to him since Jan. He thinks Don's coldness in the legs is more from pred than circulation, but he is going to do a doplar next week to make sure. I so wish he would get on here. He would learn so much. He asked me this morning if he was at death's door. I told him that there have been times I've thought that but from what I can tell from the board that some are a lot worse off than he is. He doesn't believe me. He thinks you are all success stories. I tried to explain to him that everyone is at different steps in the disease. I guess the way I talk about everyone he thinks things are peachy with all. I'll try to get him on here. Thanks guys, K IllinoisSher Bauman wrote: K......be sure and watch the subject line.....maybe add your name as I did, or start a new post to Jim...........Your post appears to be asking me about snow, when you're really asking Jim, a post below mine. I think not adding a name or starting a new post is where so many of us miss stuff. How is Don this morning? Tell him hello for me. Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! $.02 worth Once again I've been reading about dead beat doctors who, for whatever reasons, aren't meeting the needs of folks on the Board here. First, I have to say that there are genuine healers out there that are, unfortunately in my opinion, in the minority. In my case, in my pre- IPF days I had 2 oncologists. One of them I still see every 3-6 months. First he wants a CT scan to check that the cancer has not returned. After that the time is mine and much of it is spent discussing my lungs. He is damn busy, but he makes time to "treat" me. He has even researched pulmo questions to help me find answers. Anyway, that's not why I'm writing........I'm writing about Respiratory Therapists. I've only had contact with 2 so my experience is limited, but both are EXCELLENT sources of information, One does my periodic PFT, and the other runs the small company that rents me all my O2 equipment. This guy is available 24/7. I'm not able to do pulmo rehab because I choose to live 350 miles from Anchorage so this guy makes himself available by phone. I'm making this way too long and drawn out. In my experience, both of these RTs provide me with as much or more info than any MD. Like anything else, there are bound to be duds, but I've had great experience with them. jim IPF 05 alaska Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 K. do try to get him on chat next time! I know he can hold the phone. No, we are surely not success stories as to beating the damn disease, only learning how to live with it. Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! $.02 worth Once again I've been reading about dead beat doctors who, for whatever reasons, aren't meeting the needs of folks on the Board here. First, I have to say that there are genuine healers out there that are, unfortunately in my opinion, in the minority. In my case, in my pre- IPF days I had 2 oncologists. One of them I still see every 3-6 months. First he wants a CT scan to check that the cancer has not returned. After that the time is mine and much of it is spent discussing my lungs. He is damn busy, but he makes time to "treat" me. He has even researched pulmo questions to help me find answers. Anyway, that's not why I'm writing........I'm writing about Respiratory Therapists. I've only had contact with 2 so my experience is limited, but both are EXCELLENT sources of information, One does my periodic PFT, and the other runs the small company that rents me all my O2 equipment. This guy is available 24/7. I'm not able to do pulmo rehab because I choose to live 350 miles from Anchorage so this guy makes himself available by phone. I'm making this way too long and drawn out. In my experience, both of these RTs provide me with as much or more info than any MD. Like anything else, there are bound to be duds, but I've had great experience with them. jim IPF 05 alaska Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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