Re: Re: I am so sick of this cough/

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, My husband has had the kind of cough that you describe. Every 30 seconds and all throuugh the nights. It is horrible I know. Very typically he would cough for two nights and then the 3 night his body would say, "cough or no cough you have to sleep". I haven't walked in your shoes but my husband has. In March he lost his voice and the doc let it go on for 4 weeks. Then he sent him to an Ear Nose and Throat doc. She looked down his throat and found that his voice was gone because of acid reflux. We said that was impossible because he already was on previcid. She put him on a pretty severe regiment for acid reflux and his voice is better (not back and raspy yet- but better) and the cough is a lot better. It certainly isn't gone but better where he can sleep at least through the night. Now, many of the people on this board with ipf do have acid reflux.

It might not be what is causing your problems, but it might be worth a question to the doc. Good luck and I'm sorry you have to be going through this and had to find us. K Hubby ipf 2006 Illinois denise randel wrote: ,My aunt loves books about the Austalian Outback. Her favorite is Sara 's From Strength toStrength about Bullo Ranch. I know you are a readerand wonder if you've ever read

Sara's autobiographiesand know of any similar books. Thanks---- <gina.francisbigpond> wrote:> > Hi ,> > What a long tough road you've been> travelling...my> solution to the nasty dry cough is a BIT unorthodox> & very intoxicating> BUT it works for me.....Stone's Green Ginger> Wine.....> > Good luck with your upcoming> visit to JewishNational> ....> > I live in Australia & we're> often a bit unorthodox> Downunder....goes with the Territory as they say!> > in Oz> > > > > >> > > ,> > > Boy you have been through the mill haven't you?> It's amazing what> > our bodies and spirits can tolerate and we still> keep popping up for> > more.> > > Congratulations on remaining so active and> taking good

care of> > yourself. In the long run that will make a> tremendous difference in> > the quality of your life. I'm sure it does> already.> > > I have also suffered with that horrible dry> hacking relentless> > cough. My doctor put me on Advair 250/50 twice a> day to control it.> > (No I don't have asthma) It works for me but my> best suggestion would> > echo what Joyce said. Get yourself to a specialist> in interstitial> > lung disease. You don't say where you live but> there are university> > hospitals all over the country with specialists> you can contact. Your> > internist is probably a wonderful doctor but I> feel confident in> > saying it is unlikely he sees enough of this type> of lung disease to> > be able to help you properly.> > > Please let us know if there is anything we

can> help you with. We're> > here and we "get it".> > >> > > Beth> > > Age 48 Fibrotic NSIP 06/06> > >> > > Change everything. Love and Forgive> > >> > >> > >> > >> > >> > > I am so sick of this> cough> > >> > > I am new to the this forum and have never posted> before. I am> > hoping> > > to see if my issues sound familiar and if others> are experiencing> > > what I am. I apologize up front for the coming> long post.> >

>> > > 14 years ago (I know its been a long time) I was> diagnosed as> > having> > > Stage 4 T-cell Lymphoma. The bad thing was that> this wasn't> > > diagnosed until I was in the terminal stages> with all my organs> > > failing. I spent a month on life support and had> many many bad> > > things happen including a stroke, ARDS, septic> shock, etc.. The> > list> > > is long.> > >> > > Somehow I experienced a miracle and survived> this ordeal. Went thru> > > a traditional regiment of CHOP + Bleomycin for> several rounds. I> > > went into complete remission after my 5th round.> > >> > > A year after this I was told that I had to have> a Bone Marrow> > > Transplant to prevent my kind of lymphoma from> coming back. So I>

> > went ahead with this. Part of my treatment was> total body> > > irradiation (TBI).> > >> > > So since then I have led a very normal life> except for a couple of> > > things. I don't have the long capacity that I> used to and I have> > > this incredible recurring cough.> > >> > > I was diagnosed about 7 year ago as having> moderate restrictive> > lung> > > disease. Not a lot was done then. Given what I> had gone through I> > > didn't pay much attention to this.> > >> > > The problems that I have is that A) when doing> anything aerobic I> > run> > > out of air fairly quickly. Cycling is a huge> sport where I live and> > > I have tried to ride at lunch with the> semi-serious group. I can> > > keep up well for 4-5

miles but I simply run out> of air. I have come> > > to live with this and move on at my own pace.> The more annoying> > > problem is this cough. I get this recurring dry> cough that can last> > > anywhere from 1 to 3 weeks. I am on week 3 of a> cough right now. I> > > went to my doc at the beginning of this cycle to> get the usual> > > narcotic cough syrup. I have since run out. I> didn't sleep at all> > > last night and right now doesn't look promising> for tonight.> > >> > > I am so sick of this cycle that I can scream. I> hate the normal> > > routine of cough syrup but hate the lack of> sleep even more. It> > > seems like I cough hard every 30 seconds or so.> I get> > > embarrassed going to the doc when this cycle> starts. Seems like> ===

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