Re: Re: JaneSher

[Guest guest]

Jane.....your email here answers questions on private...........

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

Mama-Sher> > >> > >> > >> > > Mama-Sher, I don't want you to have a lung bio. There are many> trials> > that are ongoing at the present time and surely, they will find some> > relief for all of us! CT scans are good detectors of scarring,> > especially if you have an HRCT. Have you had a scan? Kerry did not> have> > a lung bio and she doesn't have to. Judy had a lung TX and she did not> > have to have one either. I am sure different medical facilities have> > their own requirements. In the STEP Trial, part of the protoccol is to> > examine the biopsy slides and I have no idea what they want to look> for> > in connection with the trial. That in addition to HRCT, echo, EKG,> lots> > of blood to give them, PFTs, 6MW(at MY rate of speed) I am going this> > Friday for all of the above. Except I will be signing for them to get> my> > biopsy slides. (I think they should just keep them, I have taken them> > there TWICE!)> > >> > > came home last Thursday because she had a doc appointment on> > Friday. We made a decision this weekend. is going to move back> > home. Eddie & I cannot afford to have two households. Her doctor> brought> > this up because I had said it was getting hard for us. is to> find> > a temporary job until she can find a graphic design job. She has a hot> > prospect in Chattanooga at the Times/Free Press newspaper. My brother> is> > calling someone he knows there and his best friend is calling someone> > else. Also, his son-in-law is in charge of the design department.> > > has put in applications at two stores in the Outlet Mall at I-75 and> has> > been to the temp agency that helped my niece. She also applied at a> > hotel next to I-75. 's lease is over at the end of June. We have> to> > pay rent for for May & June. This is going to be tricky because> > Eddie & I are going to San . Since we are paying rent to the> end> > of the lease, we don't really have to rush and move her back to> Dalton.> > The past weekend has been hard & upsetting. A lot of me wants > > close around to be with me. But I want her to have a job. Eddie wants> to> > cut back on the hours of his second job because he is absolutely> pooped!> > >> > > My sister's father-in-law finally passed away. Yes, I said finally> > because he has been so pitiful. Last August, he had a stroke, and put> on> > hospice. He went to the nursing home. He started doing better at the> > nursing home, taking care of himself somewhat and then he falls out of> > the bed. At first, he is ok, then they find him unconscious. He's back> > in the hospital. He rallies around, seeming alert, but then he goes> into> > a coma. The hospital wants him to leave now and he's still living. He> > goes back to the nursing home last Monday, and he died this morning.> The> > funeral is Wednesday afternoon and that is my exercise day. I really> > don't want to give up my exercise day because I am going to Emory on> > Friday. Well, maybe I will. If I don't exercise, I can't stay stable.> I> > will quit agonizing and then it will all work out. The agony that this> > man went through really got to me. My sister told me that he would cry> > (while he was in a coma) and then they would give him morphine. It> took> > him a very long time to die.> > >> > > Tomorrow I have a doctor appointment at my rehab doctor in> > Chattanooga, Siskin Rehab Hospital.> > >> > > Toodles!> > >> > > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> > >> >>