Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 Hi everyone, I haven't been posting much lately because I have been sick most of this month. I caught a terrible cold took my levaquin and felt better for a few days but now I have it back again. The real reason I am posting is because I saw the Rhuemitoligist on thursday she told me I have Scleroderma and that is what is attacking all my organs.I have had kidney, stomach, and heart problems for years so this kinda has upset me that my Dr hadn't sent me to a specialist years ago but any ways . She wants me to take cytoxan which is a chemotherapy drug and I am really torn. I want to live but the side effects are terrible. My question is has anybody on the board taken this drug and for how long? IPF 2/07 IL ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 ... I'm sorry to hear you have this latest dx....I know nothing about cytoxan but just want to wish you well. I read where you will be in Italy! Now that's a tough job but someone has to do it! I'm glad it's you. Do enjoy. Keep on keepin' on friend. Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! Cytoxan Hi everyone, I haven't been posting much latelybecause I have been sick most of this month. I caughta terrible cold took my levaquin and felt better for afew days but now I have it back again. The real reasonI am posting is because I saw the Rhuemitoligist onthursday she told me I have Scleroderma and that iswhat is attacking all my organs.I have had kidney,stomach, and heart problems for years so this kindahas upset me that my Dr hadn't sent me to a specialistyears ago but any ways . She wants me to take cytoxanwhich is a chemotherapy drug and I am really torn. Iwant to live but the side effects are terrible. Myquestion is has anybody on the board taken this drugand for how long? IPF 2/07 IL__________________________________________________________Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 Oh no . I know nothing about the drug. I hope you find out, Surely someone on this board can help. My prayers are with you. K Illinois (central)Sher Bauman wrote: ... I'm sorry to hear you have this latest dx....I know nothing about cytoxan but just want to wish you well. I read where you will be in Italy! Now that's a tough job but someone has to do it! I'm glad it's you. Do enjoy. Keep on keepin' on friend. Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! Cytoxan Hi everyone, I haven't been posting much latelybecause I have been sick most of this month. I caughta terrible cold took my levaquin and felt better for afew days but now I have it back again. The real reasonI am posting is because I saw the Rhuemitoligist onthursday she told me I have Scleroderma and that iswhat is attacking all my organs.I have had kidney,stomach, and heart problems for years so this kindahas upset me that my Dr hadn't sent me to a specialistyears ago but any ways . She wants me to take cytoxanwhich is a chemotherapy drug and I am really torn. Iwant to live but the side effects are terrible. Myquestion is has anybody on the board taken this drugand for how long? IPF 2/07 IL__________________________________________________________Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 , Scleroderma is NOT good news. When did they know this and how? It has twice been suggested that I take Cytoxan, but I have not wanted to go that route. It may still be something I will have to face down the road. For me, I would want more than one opinion before I began a chemo treatment. Did they offer alternatives? Good grief, I am so sorry that you are facing both the disease and the treatment. Be really careful if they put you on another round of Levaquin or another broad spectrum antibiotic. It can kill out the flora in your intestines and create havoc with vicious diarrhea. I think you have been way too busy and let yourself get run down. Your poor body needs to rest and recouperate. I hope you can do that without any more ABs. Take your time in deciding treatment. Don't be rushed into anything. I will be keeping you in my prayers. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 >> Hi everyone, I haven't been posting much lately> because I have been sick most of this month. I caught> a terrible cold took my levaquin and felt better for a> few days but now I have it back again. The real reason> I am posting is because I saw the Rhuemitoligist on> thursday she told me I have Scleroderma and that is> what is attacking all my organs.I have had kidney,> stomach, and heart problems for years so this kinda> has upset me that my Dr hadn't sent me to a specialist> years ago but any ways . She wants me to take cytoxan> which is a chemotherapy drug and I am really torn. I> want to live but the side effects are terrible. My> question is has anybody on the board taken this drug> and for how long?> IPF 2/07 IL> > > ____________________________________________________________________________________> Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2008 Report Share Posted April 28, 2008 Hi , My name is Deonesia, and I began having symptoms of Lupus in 2005 (which was not diagnosed until 2007). Towards the end of 2006, I was diagnosed with PF at 36 years of age. Because I was being hospitalized monthly from 2006 until now, I agreed to a six month Cytoxan treatment. As you see, it didn't help me much. For two days,I experienced the nausea and fatigue that chemo normally causes. After the two days, I felt pretty good but again the treatment had no affect on the disease. I hope this tidbit helps. God Bless,Joyce wrote: , Scleroderma is NOT good news. When did they know this and how? It has twice been suggested that I take Cytoxan, but I have not wanted to go that route. It may still be something I will have to face down the road. For me, I would want more than one opinion before I began a chemo treatment. Did they offer alternatives? Good grief, I am so sorry that you are facing both the disease and the treatment. Be really careful if they put you on another round of Levaquin or another broad spectrum antibiotic. It can kill out the flora in your intestines and create havoc with vicious diarrhea. I think you have been way too busy and let yourself get run down. Your poor body needs to rest and recouperate. I hope you can do that without any more ABs. Take your time in deciding treatment. Don't be rushed into anything. I will be keeping you in my prayers. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 >> Hi everyone, I haven't been posting much lately> because I have been sick most of this month. I caught> a terrible cold took my levaquin and felt better for a> few days but now I have it back again. The real reason> I am posting is because I saw the Rhuemitoligist on> thursday she told me I have Scleroderma and that is> what is attacking all my organs.I have had kidney,> stomach, and heart problems for years so this kinda> has upset me that my Dr hadn't sent me to a specialist> years ago but any ways . She wants me to take cytoxan> which is a chemotherapy drug and I am really torn. I> want to live but the side effects are terrible. My> question is has anybody on the board taken this drug> and for how long?> IPF 2/07 IL> > > ____________________________________________________________________________________> Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 , I'm way behind on reading posts so if you have had a lot of responses and mine is redundant please excuse. I know that you are much younger than I am. When I was in my late 40's one of my doctors discussed Cytoxan with me. His recommendation was that I not taken at that time because of my age. His fear was that if the cytoxan stabilized me and lengthened my life expectancy that I could develop cancer, of the bladder usually, from the medication. In my mid 50's I did take the Cytoxan but only for 6 weeks. It make me so sick, nauseua, headaches, utis, that I quit it and never went back. Having said that, I was not taking it for Scleroderma and for you the side effects may be different. My position is that if the immediate side effects (not counting the long term effects) change my quality of life for the worse I don't take 'em. Good luck with your decision. Kathie WA NSIP '96, '03 PH, '05 Bronchiectasis > > Hi everyone, I haven't been posting much lately > because I have been sick most of this month. I caught > a terrible cold took my levaquin and felt better for a > few days but now I have it back again. The real reason > I am posting is because I saw the Rhuemitoligist on > thursday she told me I have Scleroderma and that is > what is attacking all my organs.I have had kidney, > stomach, and heart problems for years so this kinda > has upset me that my Dr hadn't sent me to a specialist > years ago but any ways . She wants me to take cytoxan > which is a chemotherapy drug and I am really torn. I > want to live but the side effects are terrible. My > question is has anybody on the board taken this drug > and for how long? > IPF 2/07 IL > > > ______________________________________________________________________ ______________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > Quote Link to comment Share on other sites More sharing options...
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