Ros

[Guest guest]

Dear Rene

Rp can cause problems with eyes but so can Prednisolone.The Rp gave me

iritis and Pred is used to control that. The Pred gave me cataracts. I also

have glaucoma and damage to my retina. All these problems have arrived since

RP. I think it would be wise to have your eyes checked. Believe me it is

very scary to contemplate life without your sight.

Ros

Re: Ros

> In a message dated 8/7/00 7:12:58 AM Eastern Daylight Time,

> susuw@... writes:

>

> << I am in danger of loosing it

> altogether and this gets me down often. But I am getting help from

> the low vision clinic now and they have been terrific. >>

>

>

> Ros Rene here,

>

> I'm sorry for asking, but I didn't have a chance to read any of your post.

> What happen to your vision? Was it cause by RP? I'm starting to have

blurred

> vision. I don't know if it is from the Plaquenial or RP.

>

>

> Love and a belated welcome aboard

>

> Rene'

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Dear Lu

I was born and breed here in Australia. I live in Bendigo in the state of

, which is at the bottom of mainland Australia. It is about a 12

hour drive from here to Sydney where the Olympics are being held. The

distance and my health means I won't be attending but watching on TV.

Australia is beautiful and diverse and if anyone wants to come over I have a

spare room.

Ros

Re: Ros

> Hi Ros,

> This is Lu, I bet it is beautiful in the land downunder. I have always

wanted

> to go to Australia. Do you live there now, I missed out on the other

> e-mails????

> take care,

> Lu

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Ros,

I remember you telling us how bad and quickly the RP had attacked you, but

thanks for reminding me again what a very brave soul you really are.

I can't begin to imagine what you went through and I'm really not too sure I

would not have just given up completely if it had been me. I do admire your

courage and strength Ros. Really!!!!

I'm glad we got that all cleared up too. I'd never do anything to hurt or

upset anyone on this list. You are all part of my extended family and I

think the world of all of you. (Even Roy!!! LOL)

Now, explain to me one thing girl. Why do you have your reminder thingy to

count your blessings in the bathroom???? LOL

Love ya Ros,

BTW-Shari, Ros's case is the exception to the RP rule, not the norm. I'm

sure she'll tell you this too. So please don't get scared or upset over what

she's said here. RP seems to attack everyone differently. Some have only

mild cases of it forever, some even go into complete remission. Just don't

let this scare you. Like everyone else's has said, knowledge is power

especially concerning RP.

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Hi , Ros here. I just wanted to say I was not offended by your

opinions the other day. I just jumped in and gave mine. It is so hard

with the email not to offend people. There is no voice, body language

or smiles to help with communication. I thought it might help you to

understand where some of my comments come from. To do that I need to

give you a little of my history.

day 1 Sore back

day 3 can not get out of bed do not go to work ever again

3 weeks later, Rp is raging through my entire body, I am in agonising

pain, can not sit up or hold a cup of coffee.

I remained in this condition for 10 months while the doctors tried to

work out what is wrong.

10 months after the back pain began I had a tracheostomy, stents,

spinal deformity, hearing loss, joint damage etc, etc, etc.

The centre I attend for rehab offers pain management, stressss

managment and trauma councilling. I have trauma councilling as my

life was wipped out over night. (I have never had a red swollen ear.)

I hope this helps you understand me a little better. I am a very

positive person as a rule and I do count the blessings in my life

daily. ( it says to on the back of my toilet door, so I can't miss it)

Ros