Irene & Sher

[Guest guest]

Sorry, Irene, but I say " screw it " to anyone's suggestion

that you not upset your medical " team. " What they've

done to you is inexcusable, and they just want you to

keep quiet and take it as if it were no big deal. They

aren't being accountable for their actions, and few

things made me hotter under the collar, although it's

a common malady in our society. grrrrr. I hope your

pain subsides daily and you stay away from any hint

of infection. Hugs to you.

Mama Sher,

I haven't had much of a talk yet with Dr. Angel about

the exact workings of the good and bad lungs in there

together. I've wanted to focus on the positive for the

moment. All the talk about possible rejection, as well

as viral, bacterial, or fungal infections are somewhat

daunting as it is. Obviously, my right lung still sucks,

and they saw some pleural adhesions to the ribs on

the left lung that they transplanted. yuk. Bottom line,

I was deteriorating very quickly - I was dying - and got

the call in just the nick of time according to my doctors.

They still have me on Advair for treatment of the bad

lung. But supposedly, having a single healthy, strong

lung is all I need to stay healthy enough for a long time

to come if all goes well. On my 6mw last Thursday I

never dipped below 95%, which blew my mind. I'm

thinking that, like all areas of IPF including transplant,

there are some questions that have no answers as yet.

I'm probably somewhat of a living guinea pig. But right

now I'm a little piggy with a big grin on my face.

My dad and brother got here today, and were thrilled to

see Kate and her fiancee, Chris. Yes, my son is a

, too, and they're the same age (28). Dad is

in awe of seeing me move around and walk. He didn't

understand that I'd had a thoracotomy, so he's even more

stunned at how well I'm doing, and so thrilled to see me

move without added 02. Apparently my whole support

system was on pins and needles for quite some time as

they helplessly watched me dying (I thought I hid it better

than I did), so there's a communal sigh of relief and blessing

for all of us.

I'm so proud of you for all your shakin and bakin. Girls just

wanna have fun!!

Hugs and blessings,

Gwynne 57 Single-lung Transplant on 4-3-08 at

UTHSC San , TX

[Guest guest]

Gwynnie....I did not know the condition of your right lung, pre or post/op. I'm glad to hear one lung can work well for a long time! So apparently, the right lung does not require O2 for you to function....that's good so far. As you can tell, I know nothing about pre/post transplant. Thanks for letting me in on a little information.

I guess your dad is in a bit of shock to see you w/o O2 and doing so much better. What a wonderful gift for him as well as the rest of the family.

I check out the other site and read the posts from your friends. You are so lucky Gwynnie to have so many.

Keep on going.

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

Irene & Sher

Sorry, Irene, but I say "screw it" to anyone's suggestionthat you not upset your medical "team." What they'vedone to you is inexcusable, and they just want you tokeep quiet and take it as if it were no big deal. Theyaren't being accountable for their actions, and fewthings made me hotter under the collar, although it'sa common malady in our society. grrrrr. I hope yourpain subsides daily and you stay away from any hintof infection. Hugs to you.Mama Sher,I haven't had much of a talk yet with Dr. Angel aboutthe exact workings of the good and bad lungs in theretogether. I've wanted to focus on the positive for themoment. All the talk about possible rejection, as wellas viral, bacterial, or fungal infections are somewhatdaunting as it is. Obviously, my right lung still sucks,and they saw some pleural adhesions to the ribs onthe left lung that they transplanted. yuk. Bottom line,I was deteriorating very quickly - I was dying - and gotthe call in just the nick of time according to my doctors.They still have me on Advair for treatment of the badlung. But supposedly, having a single healthy, stronglung is all I need to stay healthy enough for a long timeto come if all goes well. On my 6mw last Thursday Inever dipped below 95%, which blew my mind. I'mthinking that, like all areas of IPF including transplant,there are some questions that have no answers as yet.I'm probably somewhat of a living guinea pig. But rightnow I'm a little piggy with a big grin on my face.My dad and brother got here today, and were thrilled tosee Kate and her fiancee, Chris. Yes, my son is a, too, and they're the same age (28). Dad isin awe of seeing me move around and walk. He didn'tunderstand that I'd had a thoracotomy, so he's even morestunned at how well I'm doing, and so thrilled to see memove without added 02. Apparently my whole supportsystem was on pins and needles for quite some time asthey helplessly watched me dying (I thought I hid it betterthan I did), so there's a communal sigh of relief and blessingfor all of us.I'm so proud of you for all your shakin and bakin. Girls justwanna have fun!!Hugs and blessings,Gwynne 57 Single-lung Transplant on 4-3-08 atUTHSC San , TX