Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Beth, At the moment I'm having trusting issues with my dr's and I don't know if I will be able to recover from that. Irene ---- Original Message ---- To: Breathe-Support Sent: Sat, 26 Apr 2008 9:54 am Subject: Irene Irene, I am so sorry that you have not gotten any relief. This must be a huge disappointment for you. Do you know exactly why the surgeon decided not to proceed with your surgery? Did he not give you any explanation? You are entitled to one. I hope that you recover swiftly from this and that they are able to get you some relief from all you are suffering. Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Irene, I just wanted to send you some hugs. I am praying that you can work through these difficult circumstances, whatever they may be, involving your episode at the hospital this past week. I have had many issues in the past involving doctors. The worse one was when the doctor told my family that I was brain dead, blind, and deaf and that they should just let him turn off the vent and let me go in peace. Eddie, absolutely, in a forceful way, told that doctor that I was still there. In the end, it was discovered that I was way beyond this doctor's capabilities. My family had me transferred to Emory in Atlanta and 4 years later, here I am! Emory is very well-known and is a lot larger than the little podunk hospital in my hometown. Irene, this surgeon may have known he was inadequate in helping you. But why wait until you are under anesthesia and already cut open! You certainly deserve a meeting with him to ask him "Why?" Make him admit it. And if you have lost trust in your primary doctor, i would advise you to change because that trust can never be regained. I have changed doctors many times and it was always for the best for me. As you know, I went to Emory yesterday to have tests for a study. I changed pulmos last year at Emory and I dearly love the new one. My ex-doctor was there yesterday when I was there. You know what he did, he waved to me as Eddie & I left. I barely gave him a wave. He always made me feel very lowly, etc. and he would not let me ask questions. So I changed and now I am better though I still have IPF. Even with that, when one feels better, it helps us to be more stable. Love & Toodles to you, Irene Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl Quote Link to comment Share on other sites More sharing options...
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