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It should be ME

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There are times when I really hate this disease. I hate what it takes away from me.

It's stopping me from doing things with my daughter, and that is unforgivable.

She has had a wonderful afternoon swimming with my friend. I've been watching. Now I know I'm fortunate that I have a wonderful friend that is more than happy to take Lili swimming, I know that Lili is also fortunate in that same friend. She has been such a rock while she has been going through her own troubles.

But it should be ME. I'm the one that should be taking my daughter swimming. I should be able to take her to the park to run round with her, to carry her upstairs when she's fallen asleep on the sofa.

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