Re: re; poor photoderm candidates

[Guest guest]

I developed lupus symptoms when taking minocycline. The symptoms went

away went I discontinued use of the drug, but I wonder if my

susceptability makes me a poor candidate for photoderm. I have a

photoderm appt scheduled for Monday, so I would really like any

information that anyone can give me.

I'm also worried about long term effects of photoderm. Has anyone on

the list had the procedure done more than six months ago? How are the

results holding up? Any adverse side effects?

One more thing...my derm really thinks I should use Avita (a form of

retin a). Obviously, I wouldn't do this during any photoderm period,

but I am interested in correcting bad skin texture and acne bumps. She

thinks Avita would be great for me. Any feedback?

Please help me make these two important decisions.

Thanks,

Fayrn wrote:

>

> Noreen - I've checked this out a bit and as far as I can tell the only

> patients that should avoid this proceedure, and may be told that they

> absolutely cannot have it, are those who have mixed collagen vascular

> diseases like lupus, sclerderma, rheumatoid arthritis and a few others.

> Not sure why - its certainly true that these folks have extreme

> capillary fragility and may have an unpredictable reaction to the

> trauma of photoderm. Its also true that many people with these

> disorders have a unpredictable and potentially dangerous (thats fatal)

> reactions to sunlight - it can trigger a severe flare up of the

> disease. My 21 year old cousin with bad lupus died of acute kidney

> failure after a rebellious day at the beach. I think its a risky

> population and they just don'y have enough information to know how this

> group will react. Hopefully they'll find that they can do it - just

> small areas at a time in patients in good remission. If you don't have

> one of these conditions you should be ok. good luck. Faye

>

>

>

>

>

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[Guest guest]

Hi --

Tell your photoderm doc about your problems with

minocycline--I'm betting that drug-induced lupus and

naturally occurring lupus are really two different

things, and your experience with the former may not

rule you out as a candidate for the procedure. But

you'll need to find out for sure from someone who

knows. If your doc is unsure, have him/her consult

with Dr. Bitter, who's probably seen it all and

treated it all.

I started treatment almost six months ago, but I'm

still in the midst of it so I can't really give you

any feedback about long-term side effects or benefits.

I can only tell you that Dr. Bitter has followed

patients out for 2-3 years post-treatment and has 1)

not found any long-term adverse effects and 2) found

that most patients will need some follow-up after

about 6months following the final treatment in the

series and then yearly-ish after that. Of course, with

this being such a new procedure, real long-term data

won't be available for a while--we can really only

project. I think it's worth a shot, though. I'm quite

pleased with the way my treatment is going.

As for your concern about your skin texture:

Microdermabrasion is available for this, if you're

interested and can spare the extra $$$. You can have

it done while you're doing photoderm. Might be an

decent alternative to the retin-a. There are people in

this group who have had the microderm done and could

probably give you some feedback.

Good luck at your consultation...

--- " D. Curley "

wrote:

> I developed lupus symptoms when taking minocycline.

> The symptoms went

> away went I discontinued use of the drug, but I

> wonder if my

> susceptability makes me a poor candidate for

> photoderm. I have a

> photoderm appt scheduled for Monday, so I would

> really like any

> information that anyone can give me.

>

> I'm also worried about long term effects of

> photoderm. Has anyone on

> the list had the procedure done more than six months

> ago? How are the

> results holding up? Any adverse side effects?

>

> One more thing...my derm really thinks I should use

> Avita (a form of

> retin a). Obviously, I wouldn't do this during any

> photoderm period,

> but I am interested in correcting bad skin texture

> and acne bumps. She

> thinks Avita would be great for me. Any feedback?

>

> Please help me make these two important decisions.

>

> Thanks,

>

>

> Fayrn wrote:

> >

> > Noreen - I've checked this out a bit and as far as

> I can tell the only

> > patients that should avoid this proceedure, and

> may be told that they

> > absolutely cannot have it, are those who have

> mixed collagen vascular

> > diseases like lupus, sclerderma, rheumatoid

> arthritis and a few others.

> > Not sure why - its certainly true that these

> folks have extreme

> > capillary fragility and may have an unpredictable

> reaction to the

> > trauma of photoderm. Its also true that many

> people with these

> > disorders have a unpredictable and potentially

> dangerous (thats fatal)

> > reactions to sunlight - it can trigger a severe

> flare up of the

> > disease. My 21 year old cousin with bad lupus

> died of acute kidney

> > failure after a rebellious day at the beach. I

> think its a risky

> > population and they just don'y have enough

> information to know how this

> > group will react. Hopefully they'll find that

> they can do it - just

> > small areas at a time in patients in good

> remission. If you don't have

> > one of these conditions you should be ok. good

> luck. Faye

> >

> >

> >

> >

> >

> >

>

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> > Please read the list highlights thoroughly before

> posting to the whole group. see

> http://ii.net/~dp/rosacea/toc.html

> >

> > To leave the list send an email to

> rosacea-support-unsubscribeegroups

> >

> >

>

------------------------------------------------------------------------

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> > --

>

/ChatPage?listName=rosacea-support & m=1

>

>

> -----

> Please read the list highlights thoroughly before

> posting to the whole group. see

> http://ii.net/~dp/rosacea/toc.html

>

> To leave the list send an email to

> rosacea-support-unsubscribeegroups

>

>

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