Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Terry, I'm thinking of you and hoping that today finds your spirits lifted a bit. Those down days are part and parcel of the disease, but they are sometimes harder to tolerate than others. They can be nearly debilitating. We just have to work through them and not stay stuck in the blahs for too long. I'm pulling for you, my new friend. , Please take extra care of yourself during the move. What a tremendous undertaking. I hope you're getting lots and lots of help, and that you'll be very happy nearer those wonderful Carlsbad beaches. I would be. I certainly hope to visit that area again one day before TOO long, without oxygen. My first travel will probably be to Austin to see my kids, and then hopefully to get doctors' approval to visit the Colorado Rockies. It makes me cry to think I'll get to do that again... a big chunk of my heart is there from many years back. Re. Irene, What's up with this no surgery thing!? Is is possible that everyone is just too afraid to operate on the girl due to the multitude of ailments that afflict her?...liability and all. I don't get it, it doesn't make any sense at all to me how she keeps getting left hanging and in pain. Wally, Syder-sized hail sounds like a poor idea. I'll be hoping that won't happen for your special event, which I think is just terrific that you're doing. I'm having trouble imagining Bruce as either a cowboy or a cajun, though. Wishing you MUCH success on the entire endeavor. Bruce, I've had a couple of episodes of dizziness the past few days - no fainting, just dizzy. I'm supposed to avoid bending over or making rapid movements. I've got clinic day as always on Tuesday. My tremors are still terrible (meds) but I'm taking VERY little pain med and sleeping well at night. Amazing! They think I'm still just weak and recovering from the thoracotomy, and aren't too worried as long as my b.p. doesn't get any lower or I develop over a 100 degree fever. For anyone who doesn't know, for single lung transplant, they don't go in from the front or the sternum. They go in from the back and wrap around the side. They cut through muscle, nerves, and saw through bones. It's supposed to be the most painful incision of any heart or lung surgery performed. Unfortunately, I very well may NOT be able to get together with the group next weekend, :-( based both on doctor recommendation and my degree of weakness. Thursday will mark just one month out. I have to avoid groups and crowds and lots of stairs, especially for the first three months, and no buffets ever again. Oh, I wanted to tell you I DID get a call last night from Dr. Rosenblatt (my Dallas doctor) - finally. That made me feel much better! He wants me to keep him posted once a week or so. He's very pleased, and he informed me that my donor was local, which I suspected but wasn't sure of. He said that's a real advantage in several respects. Hey Gang, I have some wonderful news! Yesterday afternoon Kate's boyfriend drove in for the weekend, and last night he PROPOSED to her!!!! I had an omelet here and told the two of them to go out alone for dinner. He came early while she was working out, to ask my blessing and to show me the beautiful ring, which was his grandmother's. I'm so excited for them. Their happiness is tangible and contageous, and when THIS one of my kids gets married I won't be on oxygen. It damned near killed me planning the other wedding two years ago, but I did it, so I should be much more up to the challenge this time. ugh, but hooray. They, too, want an untraditional outdoor wedding, in Austin (like did) - neither could make it simpler and do the deed in Fort Worth! :-) It's so obvious how much of all of our (and your) lives were/are on hold and affected by the shadow of the monster. I hate it for everyone, and Joyce, I do take a deep breaths EVERY day specifically for YOU and my air family. I know what you mean about praying - we have to pray remembering that God has already answered our prayers. He is faithful, even when the plan doesn't appear to fit what we would have imagined or in our timeline. I'm not so certain there is A single plan, but I know he loves us and works for good for us, and I know he is gracious. We have to remain aware, in whatever our state of health, of the small blessings and miracles all around us. Thank God for your fighting spirit (and mine, and all our Air Family) - you gotta have it!! Never give up! May, Any dress yet???? , I never received mail from Australia before - how exciting! Thank you for the sweet thoughts and prayers, dear one. How's school coming along for Ahli? Have you seen her lately? Sher, I'm sooo glad to hear you went out putzin. It's one of the things I look forward to the most. How liberating just to get out of the house. L, Thank you so very much for the sweet card. I haven't heard you mention much about yourself lately. I'm thinking of you and wishing you good days and hugs. Z, I'm delighted that you get to spend quality MomMom time with the little darlins. Someone needs to figure out how to bottle that intoxicating baby smell - I think it's what peace, love, and innocence smell like. I hope the disequilibrium is improving steadily - I hate that for you. Thanks for the dear card and your loyal support. Quote Link to comment Share on other sites More sharing options...
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