Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 Sher I really like my van a lot more than I thought I would. I haven't really used the chair, just tested it, but its just nice to know I'm set up to be as mobile as possible. I head down the road with music playing, my liquid reservoir belted in the second row of seats and the chair in the back on its lift. I'm going to have the sensitivity on the control of the chair reduced a bit as I'm not as experienced as the previous owner. The headrest doesn't do much for your head but does make the perfect place to hang the oxygen bag. I was amazed on the trip to Snyder and back that the long drive just didn't seem as bad as I anticipated. I'm still going to do some tweaking and things to add any further conveniences for the road. I've purchased a few additional CD's at half price books. Everything isn't perfect and there is a time that would have annoyed me to know end, but fortunately I'm able to accept it better now and understand that my travel set up is quite good, my van is very comfortable, and I'm fortunate to be set up for today and prepared for reduced mobility. > > > > Gwynnie....yes, I went on the interview this morning to return to > volunteer work I have done previously. They were really glad to have me > back so I guess I'll be doing something more productive with my time. > > I will be an advocate for seniors...those in long-term care, either in > facilities or still in their own home and also advocating thru' letter > writing to legislature for funding and public speaking for clarification > as to what seniors need/why. > > My own condition has really renewed my passion for long-term care that > those who need it, get it! If I can just nail one damn thoughtless dr > all the hours I volunteer are worth it. Now I know first hand what I > only knew before word-of-mouth. > > I won't be on board as much but I bet I'll find time! lol. > > Nice to read about you and you family. > > warm hug. > > Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. > > Don't fret about tomorrow, God is already there! > > > > Sher, > > > > > > Mama Sher, > > Volunteer work? More info, please m'aam. I'm soooo > > pleased that you're inspired to do this with your newfound > > energy level on 02. I'm so proud of you > > > > , > > I'm delighted for Ahli. I've always loved horses, & always > > wanted one as a girl. The highlight of many family > > vacations to Colorado guest ranches in the hot Texas > > summers was riding horses. On my 16th birthday my > > parents let me take 2 friends to a place called Salado, > > Texas where we rode horses. There's not much else to > > do there, or wasn't way back then, anyway. Now I think > > it's become quite a quaint little community of shops and > > galleries. > > > > My dad and brother left this afternoon after spending > > the night. I wish I had a photo of my dad's face, seeing > > me for the first time since surgery, with no hose up the > > nose. It made him tear up. Then he took a 30-minute walk > > outside with me. He's got a bad ankle, and we walk at > > about the same pace. What got him was that I was able > > to walk and carry on a conversation at the same time. > > Bless his heart, there are so many blessings in my > > family going on now - really ever since I decided to > > double-list in San . He also got to see Kate and > > her to congratulate them on their engagement. > > Then MY arrived and had lunch with us. > > Today was shift change day for him and Kate. :-) > > Many smiles and hugs were in abundance. > > > > Have you read Traveling Mercies: Thoughts on Faith > > by Anne LaMott? ( I read her Grace, Eventually and liked > > it.) That's going to be the first book I'll read on my new > > gadget - the Amazon kindle, which I think is sooo cool. > > > > So Irene's back at the hospital? This has to be torture. > > Surely one of the wildest medical experiences I've heard > > of. Hope you're having a terrific day. > > > > Hugs and blessings, > > Gwynne 57 Single-lung Transplant 4-3-08 at > > UTHSC San , TX > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 > > > > Gwynnie....yes, I went on the interview this morning to return to > volunteer work I have done previously. They were really glad to have me > back so I guess I'll be doing something more productive with my time. > > I will be an advocate for seniors...those in long-term care, either in > facilities or still in their own home and also advocating thru' letter > writing to legislature for funding and public speaking for clarification > as to what seniors need/why. > > My own condition has really renewed my passion for long-term care that > those who need it, get it! If I can just nail one damn thoughtless dr > all the hours I volunteer are worth it. Now I know first hand what I > only knew before word-of-mouth. > > I won't be on board as much but I bet I'll find time! lol. > > Nice to read about you and you family. > > warm hug. > > Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. > > Don't fret about tomorrow, God is already there! > > > > Sher, > > > > > > Mama Sher, > > Volunteer work? More info, please m'aam. I'm soooo > > pleased that you're inspired to do this with your newfound > > energy level on 02. I'm so proud of you > > > > , > > I'm delighted for Ahli. I've always loved horses, & always > > wanted one as a girl. The highlight of many family > > vacations to Colorado guest ranches in the hot Texas > > summers was riding horses. On my 16th birthday my > > parents let me take 2 friends to a place called Salado, > > Texas where we rode horses. There's not much else to > > do there, or wasn't way back then, anyway. Now I think > > it's become quite a quaint little community of shops and > > galleries. > > > > My dad and brother left this afternoon after spending > > the night. I wish I had a photo of my dad's face, seeing > > me for the first time since surgery, with no hose up the > > nose. It made him tear up. Then he took a 30-minute walk > > outside with me. He's got a bad ankle, and we walk at > > about the same pace. What got him was that I was able > > to walk and carry on a conversation at the same time. > > Bless his heart, there are so many blessings in my > > family going on now - really ever since I decided to > > double-list in San . He also got to see Kate and > > her to congratulate them on their engagement. > > Then MY arrived and had lunch with us. > > Today was shift change day for him and Kate. :-) > > Many smiles and hugs were in abundance. > > > > Have you read Traveling Mercies: Thoughts on Faith > > by Anne LaMott? ( I read her Grace, Eventually and liked > > it.) That's going to be the first book I'll read on my new > > gadget - the Amazon kindle, which I think is sooo cool. > > > > So Irene's back at the hospital? This has to be torture. > > Surely one of the wildest medical experiences I've heard > > of. Hope you're having a terrific day. > > > > Hugs and blessings, > > Gwynne 57 Single-lung Transplant 4-3-08 at > > UTHSC San , TX > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 Sher, I'm so proud of you for deciding to go out and give of yourself to others. Seniors are so needy and they are so grateful for visits. Some have no one to call on for help. For you to do this in your state of health speaks volumes. Please be careful not to overdo. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16> >> > Gwynnie....yes, I went on the interview this morning to return to> volunteer work I have done previously. They were really glad to have me> back so I guess I'll be doing something more productive with my time.> > I will be an advocate for seniors...those in long-term care, either in> facilities or still in their own home and also advocating thru' letter> writing to legislature for funding and public speaking for clarification> as to what seniors need/why.> > My own condition has really renewed my passion for long-term care that> those who need it, get it! If I can just nail one damn thoughtless dr> all the hours I volunteer are worth it. Now I know first hand what I> only knew before word-of-mouth.> > I won't be on board as much but I bet I'll find time! lol.> > Nice to read about you and you family.> > warm hug.> > Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR.> > Don't fret about tomorrow, God is already there!> >> > Sher, > >> >> > Mama Sher,> > Volunteer work? More info, please m'aam. I'm soooo> > pleased that you're inspired to do this with your newfound> > energy level on 02. I'm so proud of you> >> > ,> > I'm delighted for Ahli. I've always loved horses, & always> > wanted one as a girl. The highlight of many family> > vacations to Colorado guest ranches in the hot Texas> > summers was riding horses. On my 16th birthday my> > parents let me take 2 friends to a place called Salado,> > Texas where we rode horses. There's not much else to> > do there, or wasn't way back then, anyway. Now I think> > it's become quite a quaint little community of shops and> > galleries.> >> > My dad and brother left this afternoon after spending> > the night. I wish I had a photo of my dad's face, seeing> > me for the first time since surgery, with no hose up the> > nose. It made him tear up. Then he took a 30-minute walk> > outside with me. He's got a bad ankle, and we walk at> > about the same pace. What got him was that I was able> > to walk and carry on a conversation at the same time.> > Bless his heart, there are so many blessings in my> > family going on now - really ever since I decided to> > double-list in San . He also got to see Kate and> > her to congratulate them on their engagement.> > Then MY arrived and had lunch with us.> > Today was shift change day for him and Kate. :-)> > Many smiles and hugs were in abundance.> >> > Have you read Traveling Mercies: Thoughts on Faith> > by Anne LaMott? ( I read her Grace, Eventually and liked> > it.) That's going to be the first book I'll read on my new> > gadget - the Amazon kindle, which I think is sooo cool.> >> > So Irene's back at the hospital? This has to be torture.> > Surely one of the wildest medical experiences I've heard> > of. Hope you're having a terrific day.> >> > Hugs and blessings,> > Gwynne 57 Single-lung Transplant 4-3-08 at> > UTHSC San , TX> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 Sher Yes, you are nosy....lol and I haven't traveled together but my traveling has really just started. We wanted to go to Disneyworld together in March during her spring break but it was everyone's spring break and would have been the worst week possible. We have talked about going in October, but don't know if she'll be able to work it out. I'm sure we would both enjoy it together. > > > > > > Gwynnie....yes, I went on the interview this morning to return to > > volunteer work I have done previously. They were really glad to have > me > > back so I guess I'll be doing something more productive with my time. > > > I will be an advocate for seniors...those in long-term care, either > in > > facilities or still in their own home and also advocating thru' letter > > writing to legislature for funding and public speaking for > clarification > > as to what seniors need/why. > > > My own condition has really renewed my passion for long-term care > that > > those who need it, get it! If I can just nail one damn thoughtless dr > > all the hours I volunteer are worth it. Now I know first hand what I > > only knew before word-of-mouth. > > > I won't be on board as much but I bet I'll find time! lol. > > > Nice to read about you and you family. > > > warm hug. > > > Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. > > > Don't fret about tomorrow, God is already there! > > > > > > Sher, > > > > > > > > > Mama Sher, > > > Volunteer work? More info, please m'aam. I'm soooo > > > pleased that you're inspired to do this with your newfound > > > energy level on 02. I'm so proud of you > > > > > > , > > > I'm delighted for Ahli. I've always loved horses, & always > > > wanted one as a girl. The highlight of many family > > > vacations to Colorado guest ranches in the hot Texas > > > summers was riding horses. On my 16th birthday my > > > parents let me take 2 friends to a place called Salado, > > > Texas where we rode horses. There's not much else to > > > do there, or wasn't way back then, anyway. Now I think > > > it's become quite a quaint little community of shops and > > > galleries. > > > > > > My dad and brother left this afternoon after spending > > > the night. I wish I had a photo of my dad's face, seeing > > > me for the first time since surgery, with no hose up the > > > nose. It made him tear up. Then he took a 30-minute walk > > > outside with me. He's got a bad ankle, and we walk at > > > about the same pace. What got him was that I was able > > > to walk and carry on a conversation at the same time. > > > Bless his heart, there are so many blessings in my > > > family going on now - really ever since I decided to > > > double-list in San . He also got to see Kate and > > > her to congratulate them on their engagement. > > > Then MY arrived and had lunch with us. > > > Today was shift change day for him and Kate. :-) > > > Many smiles and hugs were in abundance. > > > > > > Have you read Traveling Mercies: Thoughts on Faith > > > by Anne LaMott? ( I read her Grace, Eventually and liked > > > it.) That's going to be the first book I'll read on my new > > > gadget - the Amazon kindle, which I think is sooo cool. > > > > > > So Irene's back at the hospital? This has to be torture. > > > Surely one of the wildest medical experiences I've heard > > > of. Hope you're having a terrific day. > > > > > > Hugs and blessings, > > > Gwynne 57 Single-lung Transplant 4-3-08 at > > > UTHSC San , TX > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2008 Report Share Posted April 29, 2008 Sher Yes, she teaches....she's a good bit younger than me and of course I'm still working age if not for disability. Glad you have your glasses....so now you can see without them or really really see with them. > > > > > > > > Gwynnie....yes, I went on the interview this morning to return to > > > volunteer work I have done previously. They were really glad to have > > me > > > back so I guess I'll be doing something more productive with my > time. > > > > I will be an advocate for seniors...those in long-term care, > either > > in > > > facilities or still in their own home and also advocating thru' > letter > > > writing to legislature for funding and public speaking for > > clarification > > > as to what seniors need/why. > > > > My own condition has really renewed my passion for long-term care > > that > > > those who need it, get it! If I can just nail one damn thoughtless > dr > > > all the hours I volunteer are worth it. Now I know first hand what I > > > only knew before word-of-mouth. > > > > I won't be on board as much but I bet I'll find time! lol. > > > > Nice to read about you and you family. > > > > warm hug. > > > > Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. > > > > Don't fret about tomorrow, God is already there! > > > > > > > > Sher, > > > > > > > > > > > > Mama Sher, > > > > Volunteer work? More info, please m'aam. I'm soooo > > > > pleased that you're inspired to do this with your newfound > > > > energy level on 02. I'm so proud of you > > > > > > > > , > > > > I'm delighted for Ahli. I've always loved horses, & always > > > > wanted one as a girl. The highlight of many family > > > > vacations to Colorado guest ranches in the hot Texas > > > > summers was riding horses. On my 16th birthday my > > > > parents let me take 2 friends to a place called Salado, > > > > Texas where we rode horses. There's not much else to > > > > do there, or wasn't way back then, anyway. Now I think > > > > it's become quite a quaint little community of shops and > > > > galleries. > > > > > > > > My dad and brother left this afternoon after spending > > > > the night. I wish I had a photo of my dad's face, seeing > > > > me for the first time since surgery, with no hose up the > > > > nose. It made him tear up. Then he took a 30-minute walk > > > > outside with me. He's got a bad ankle, and we walk at > > > > about the same pace. What got him was that I was able > > > > to walk and carry on a conversation at the same time. > > > > Bless his heart, there are so many blessings in my > > > > family going on now - really ever since I decided to > > > > double-list in San . He also got to see Kate and > > > > her to congratulate them on their engagement. > > > > Then MY arrived and had lunch with us. > > > > Today was shift change day for him and Kate. :-) > > > > Many smiles and hugs were in abundance. > > > > > > > > Have you read Traveling Mercies: Thoughts on Faith > > > > by Anne LaMott? ( I read her Grace, Eventually and liked > > > > it.) That's going to be the first book I'll read on my new > > > > gadget - the Amazon kindle, which I think is sooo cool. > > > > > > > > So Irene's back at the hospital? This has to be torture. > > > > Surely one of the wildest medical experiences I've heard > > > > of. Hope you're having a terrific day. > > > > > > > > Hugs and blessings, > > > > Gwynne 57 Single-lung Transplant 4-3-08 at > > > > UTHSC San , TX > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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