Re: chiari and burning sensation

[Guest guest]

l_down@... writes:

> I know for peripheral neuropathy,

> one is typically diabetic,

> HIV, abuse alcohol or drugs. I do not fall in any of these categories.

>

I have peripheral neuropathy and I do NOT fall in any of the above

categories. I since my surgery with Dr. Batzdorf it's gone. I had a large

cranietomy in 1990, and just in December I had a partial cranioplasty to make

the bone defect smaller. There is more to this but the important part is

that my neuropathy is GONE!!! (arms and legs)

Foxy

Foxy

[Guest guest]

I have had the tingling in the extremities for over a year and a half.

There are days that it turns into a burning pain. My neurologist diagnosed

me with Lhermitte's Phenomena. This was before he was sure I had the

Chiari.

Here are some excerpts from different websites on Lhermittes.

**funicular pain, characterized by central burning and stinging w/ or w/o

(Lhermitte's phenomenon - radiating

lightening like sensations down back w/ neck flexion) may also

be present w/ myelopathy;

**Lhermitte's sign refers to a sudden electrical sensation down the neck and

back triggered by neck flexion. This was originally described in a patient

with multiple sclerosis and dorsal column dysfunction. The conditions which

can produce a Lhermitte's sign are:

multiple sclerosis

cervical spondylosis

cervical disc herniation

cervical spinal cord tumor

Chiari I malformation

radiation myelopathy

subacute combined degeneration (caused by vitamin B12 deficiency)

**Lhermitte's sign is a symptom which has been described as a shock-like

sensation radiating down the spine, usually provoked by neck flexion

(bending forward). Shocks radiating UP the spine are sometimes referred to a

reverse Lhermitte's sign. These symptoms may be signs of pressure on the

spinal cord due to old fractured bone, bone spurs, herniated discs, as well

as many other possibilities. If a patient is experiencing Lhermitte's

symptoms, it is strongly recommended for that patient to seek the advice and

evaluation of a neurologist or neurosurgeon or orthopedic spine specialist.

There are a few websites that touch on Lhermitte's. I hope that this info

helps in some way.

Take Care,

Anne

p.s. You might want to try going to this website. It tells of Paresthesia

which describes your symptoms more than Lhermitte's does.

http://www.ninds.nih.gov/health_and_medical/disorders/paresthesia.htm

May the angels be with us all...

chiari and burning sensation

>

>

> Hi,

>

> I wondering if I could ask you all a question. I saw Dr. Weingart at

Hopkins

> yesterday and I am very

> discouraged. I am in a great deal of pain but I felt like Dr. Weingart

blew

> me off in his office. I told

> him that the focus of my pain is this burning pain in my extremities. Yes,

I

> have subocciptal headaches

> but not often. In fact it only just started last week. While I have had

> regular headaches on and off

> since this whole thing started. The main symptom I have had was numbness

and

> tingling in my

> extremities which now turned into a intense burning sensation. Dr.

Weingart

> didn't think it was due to

> the chiari b/c he never had a patient complain of intense burning pains.

Has

> anyone experienced this?

> Even if this is not a typical symptom, I still think it is the chiari. I

was

> perfectly fine before and had

> negative tests for just about everything but the chiari.

> I am very frustrated b/c I don't know where to go. This neursurgeon

doesn't

> seem to really care.

> Does anyone have any ideas for me? I called Dr. Frimm's and Dr. Milhorat's

> office but I can't see

> them for several months. The problem is if it is not chiari then I need to

> look at other possible

> alternatives, though I have know idea what. Another neurologist I saw said

> neuropathy, but that is

> pretty vague. And it doesn't make since, I know for peripheral neuropathy,

> one is typically diabetic,

> HIV, abuse alcohol or drugs. I do not fall in any of these categories.

> If anyone has had my symptoms could you please let me know. Or if anyone

has

> any ideas could you

> let me know?

>

> Gratefully,

> Ellie

>

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