Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 denise just as i thought, andy has forgotten about his blond streaks at the suggestion of getting a fake tan. he is delighted and looking forward to it. i keep teasing that it is only his knees that will show. he has told his workmates and enjoying the daily teasing from them. i'm glad i thought of it and suggested it so early as he is getting pleasure just anticipating it. may > > > > > > Diwala, > > > I have spent literally thousands of dollars on homeopathic > > treatments and the end result is I am still getting worse each > year. > > I have now gone to three different homeopathic doctors, the last > > recommended by a friend who was cured of cancer ( she has since > > died). I have taken expensive vitamins, envibe, xymogen, mona vie, > > ambresol,chinese lung formula,had my blood tested for food > allergies > > ( $600.00!) foot detoxes, and accupressure and tried several detox > > diets including the lemonade fast. The only things that have made a > > difference is giving up coffee ( sorry fellow coffee addicts) and > > sticking to an anti-inflammatory diet AND!!! prednisone. I too have > > active inflammation ( along with a lot of scarring) and the > > prednisone seems to keep it in check. I hate taking it but I don't > > cough near as much, my lung volume increases from 34% to 60 and the > > scarring progresses much slower. Every doctor said that coffee > > increases inflammation and since I have > > > stopped drinking it I notice an immediate difference if I have a > > cup. My chest is tighter and I get a dull ache in my lungs. The > > anti inflammtion diet ( no breads or processed foods) doesn't make > a > > big difference in how I feel but I don't get puffy from the > steroids > > or gain more weight. I think some people get PF and it never > > progresses while others of us keep getting worse no matter what we > > do. I do have a theory that it progresses quicker if we are too > > active. It seems like the younger people with this ( especially > > those who still work) get worse faster than those who are retired > and > > lead less active lives. I have no proof of this, but since I have > > quit work and greatly slowed my lifestyle down mine has not been > > progressing as quick as before. My big goal is to make it to 60. > > Hope this helps- > > > > > > > > > Sarcoid/PF 3/2006 California > > > > > > > > > > > > > > > Pred or No Pred; Thank you for > > responding; Homeopathic Treatment > > > > > > Thank you all for responding. Mama-Sher, your posts always put a > > > smile on my face. > > > Ok, The results are in; they vary btw " I will never take PRED " > > > to " PRED has been a life saver " > > > My biopsy reports states " chronic interstitial inflammation " . > The > > > nurse made it clear that there was a ton of inflammation but not > a > > > lot of fibrosis in my biopsy. The nurse was adamant (without > > > telling me what to do) that I get on PRED. Your responses have > made > > > the decision much easier for me. Beth, in particular, > > > wrote " Part of the disease process that we have is that the > > > inflammation eventually scars and becomes fibrotic " . Since PRED > can > > > reduce inflammation, I have no choice but to start taking it. Now > > > if it causes me to lose my hair, I would be really mad. > > > Another good suggestion was to participate in " Evaluation for > > > Transplant " . I don't have to commit to it while gaining valuable > > > information. > > > I was not able to complete the DLCO part of the PFT in Oct 07. I > > > would end up coughing. I was asked to attempt the DLCO when I > > > visited UCSF. At first I refused due to the phantom pain. When > the > > > nurse stressed how important it would be for the panel to know my > > > diffusion capacity, I gave it a shot. My diffusion capacity came > at > > > 38%. I think I can improve upon that number in a few months. This > > > is based on two main reasons. One, I will be ~6 months away from > > > smoking. I have not smoked since 2/2/08. Second, I'm hoping that > > > in a few months I will be free from this phantom pain and perhaps > > > give a better effort. > > > > > > Homeopathic Treatment: > > > > > > What is the consensus on homeopathic treatment? Is anyone being > > > treated by a homeopathic doctor? Has any one looked into it? > > > I have received a lot of calls from back home (Pakistan). Many > > > folks have recommended (with testaments) that I consider > > homeopathic > > > treatment. A family member, who is a medical doctor (MBBS), told > me > > > that his wife was diagnosed with interstitial lung disease > > > approximately fifteen years ago. She has been treated with both, > > > steroids and the homeopathic treatment. She has maintained her > > > stats over the years. He recommended that I speak with two > > > homeopathic doctors. I did. One of those doctors also has an MD. > > > He sounded very optimistic after reviewing my medical records, > > > family history, and current symptoms. He projected that with my > > > current condition I `should' live a fairly normal life for > another > > > 20+ yrs. I told him that my Pulmo is giving me " 6 mo – 2 yrs " > while > > > you are making it sound like I have a common cold. So, with a > grain > > > of salt, I would take his prescribed medicine as well. I will > > > receive the homeopathic medicine in a few days. Thus, I'm eager > to > > > find out if anyone else has already tried homeopathic treatment? > > > > > > Brett, my kids just turned thirteen. I have a twin boy/girl. My > > > son is a jock. He stars in baseball, basketball and football. My > > > daughter is the complete opposite. She is a Barbie doll. She > > > excels in academia. She has taken my illness very seriously. She > > > is internet savvy and there is a lot of depressing data out there > > > when it comes to UIP. I constantly assure her that I will do my > > > utmost to be around her for as long as I possibly can. My son, on > > > the other hand, does not show much emotion. He quietly went to > his > > > room when first told of my illness. It was the day I returned > from > > > the hospital. He did not say a word to me for a couple of days. > On > > > third day he comes up to me and says, and I quote " hey dad, I'm > > > getting tired of you sitting on this sofa; why don't you go walk > a > > > mile or something " , end quote. I don't think he loves me any less > > > than his sister. It is just hard for us guys to show emotions. I > > > think daughters in general are more caring. You have a beautiful > > > daughter. Here is hoping that you are around when she > > > celebrates her fiftieth birthday. > > > > > > Dilwala > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ __ > > > Quote Link to comment Share on other sites More sharing options...
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