Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 Yes, I certainly feel the brother/sisterhood of all of this. I thank you so much for allowing me in your fold. I think there are some who are are of the opinion that I shouldn't be here since I'm not a patient, but Don really relies on you guys and I read many of the posts to him. I guess I might say that I am Don's voice. I can't just sit here and do nothing and you guys have given me so much. (I think at one of the chats someone said that Don is on the website in spirit. He is now down to 10mg of prednisone starting today and his cough is returning. Not as bad as before but it is returning. Sigh! We will soon be off to rehab for him and I'm going to the Y to walk and swim. That should perk me up. LInda K Central IlGwynne Keyland wrote: ,Congratulations on getting listed. I hope you get thecall very soon and can stop putting your life on hold.For me, it has been one month since transplant and ithas been a miracle.,I'm so sorry you keep getting hit while you're down.I hope they figure out the right combination of medsto get you feeling better and some better answers soon.Your attitude is admirable, as always. Have fun on yourtrip - be safe.Joyce,I'm not believin your catheter is being such a bugger.You can stay in anger mode as long as you like, alongwith pout mode. I'm sorry about the anemia and foryou feeling so wiped out. And yes, it IS like a brotherhoodin my experience. You'd think after the way you've beentreated that they'd be doing cartwheels to accommodateyou (in a perfect world only, I guess). As always, you arein my prayers.Hugs and blessings,Gwynnie 57 Single-lung Transplant on 4-3-09 atUTHSC San , TX K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 , I don't think there is a soul on this board that thinks you shouldn't be here. We have had many caregivers, especially spouses, in our group. I love your being here. I have so enjoyed getting to know you and Don. I admire you for your loyalty to him and your love for him. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16> ,> Congratulations on getting listed. I hope you get the> call very soon and can stop putting your life on hold.> For me, it has been one month since transplant and it> has been a miracle.> > ,> I'm so sorry you keep getting hit while you're down.> I hope they figure out the right combination of meds> to get you feeling better and some better answers soon.> Your attitude is admirable, as always. Have fun on your> trip - be safe.> > Joyce,> I'm not believin your catheter is being such a bugger.> You can stay in anger mode as long as you like, along> with pout mode. I'm sorry about the anemia and for> you feeling so wiped out. And yes, it IS like a brotherhood> in my experience. You'd think after the way you've been> treated that they'd be doing cartwheels to accommodate> you (in a perfect world only, I guess). As always, you are> in my prayers.> > Hugs and blessings,> Gwynnie 57 Single-lung Transplant on 4-3-09 at> UTHSC San , TX> > > > > > K> Central Il> Hubby ipf- 2006> As for me and my house, we will serve the Lord> 14> > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 Thanks Joyce. Love ya!!!!!!!! K IllinoisJoyce wrote: , I don't think there is a soul on this board that thinks you shouldn't be here. We have had many caregivers, especially spouses, in our group. I love your being here. I have so enjoyed getting to know you and Don. I admire you for your loyalty to him and your love for him. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16> ,> Congratulations on getting listed. I hope you get the> call very soon and can stop putting your life on hold.> For me, it has been one month since transplant and it> has been a miracle.> > ,> I'm so sorry you keep getting hit while you're down.> I hope they figure out the right combination of meds> to get you feeling better and some better answers soon.> Your attitude is admirable, as always. Have fun on your> trip - be safe.> > Joyce,> I'm not believin your catheter is being such a bugger.> You can stay in anger mode as long as you like, along> with pout mode. I'm sorry about the anemia and for> you feeling so wiped out. And yes, it IS like a brotherhood> in my experience. You'd think after the way you've been> treated that they'd be doing cartwheels to accommodate> you (in a perfect world only, I guess). As always, you are> in my prayers.> > Hugs and blessings,> Gwynnie 57 Single-lung Transplant on 4-3-09 at> UTHSC San , TX> > > > > > K> Central Il> Hubby ipf- 2006> As for me and my house, we will serve the Lord> 14> > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.