Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 Hi , That would be me, S. What did you want to know? Save yourself reading the 842 page book and just see the HBO miniseries. It was very well done and covered the material. s, Lubbock, TX NSIP w/PF 12/2006 > > > > > > > > > > , > > > > > Boy you have been through the mill haven't you? > > > It's amazing what > > > > our bodies and spirits can tolerate and we still > > > keep popping up for > > > > more. > > > > > Congratulations on remaining so active and > > > taking good care of > > > > yourself. In the long run that will make a > > > tremendous difference in > > > > the quality of your life. I'm sure it does > > > already. > > > > > I have also suffered with that horrible dry > > > hacking relentless > > > > cough. My doctor put me on Advair 250/50 twice a > > > day to control it. > > > > (No I don't have asthma) It works for me but my > > > best suggestion would > > > > echo what Joyce said. Get yourself to a specialist > > > in interstitial > > > > lung disease. You don't say where you live but > > > there are university > > > > hospitals all over the country with specialists > > > you can contact. Your > > > > internist is probably a wonderful doctor but I > > > feel confident in > > > > saying it is unlikely he sees enough of this type > > > of lung disease to > > > > be able to help you properly. > > > > > Please let us know if there is anything we can > > > help you with. We're > > > > here and we " get it " . > > > > > > > > > > Beth > > > > > Age 48 Fibrotic NSIP 06/06 > > > > > > > > > > Change everything. Love and Forgive > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I am so sick of this > > > cough > > > > > > > > > > I am new to the this forum and have never posted > > > before. I am > > > > hoping > > > > > to see if my issues sound familiar and if others > > > are experiencing > > > > > what I am. I apologize up front for the coming > > > long post. > > > > > > > > > > 14 years ago (I know its been a long time) I was > > > diagnosed as > > > > having > > > > > Stage 4 T-cell Lymphoma. The bad thing was that > > > this wasn't > > > > > diagnosed until I was in the terminal stages > > > with all my organs > > > > > failing. I spent a month on life support and had > > > many many bad > > > > > things happen including a stroke, ARDS, septic > > > shock, etc.. The > > > > list > > > > > is long. > > > > > > > > > > Somehow I experienced a miracle and survived > > > this ordeal. Went thru > > > > > a traditional regiment of CHOP + Bleomycin for > > > several rounds. I > > > > > went into complete remission after my 5th round. > > > > > > > > > > A year after this I was told that I had to have > > > a Bone Marrow > > > > > Transplant to prevent my kind of lymphoma from > > > coming back. So I > > > > > went ahead with this. Part of my treatment was > > > total body > > > > > irradiation (TBI). > > > > > > > > > > So since then I have led a very normal life > > > except for a couple of > > > > > things. I don't have the long capacity that I > > > used to and I have > > > > > this incredible recurring cough. > > > > > > > > > > I was diagnosed about 7 year ago as having > > > moderate restrictive > > > > lung > > > > > disease. Not a lot was done then. Given what I > > > had gone through I > > > > > didn't pay much attention to this. > > > > > > > > > > The problems that I have is that A) when doing > > > anything aerobic I > > > > run > > > > > out of air fairly quickly. Cycling is a huge > > > sport where I live and > > > > > I have tried to ride at lunch with the > > > semi-serious group. I can > > > > > keep up well for 4-5 miles but I simply run out > > > of air. I have come > > > > > to live with this and move on at my own pace. > > > The more annoying > > > > > problem is this cough. I get this recurring dry > > > cough that can last > > > > > anywhere from 1 to 3 weeks. I am on week 3 of a > > > cough right now. I > > > > > went to my doc at the beginning of this cycle to > > > get the usual > > > > > narcotic cough syrup. I have since run out. I > > > didn't sleep at all > > > > > last night and right now doesn't look promising > > > for tonight. > > > > > > > > > > I am so sick of this cycle that I can scream. I > > > hate the normal > > > > > routine of cough syrup but hate the lack of > > > sleep even more. It > > > > > seems like I cough hard every 30 seconds or so. > > > I get > > > > > embarrassed going to the doc when this cycle > > > starts. Seems like > > > > > === message truncated === > > > > > > Sarcoid/PF 3/2006 California > > > > > > > > ______________________________________________________________________ ______________ > > Be a better friend, newshound, and > > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > > > > K > Central Il > Hubby ipf- 2006 > As for me and my house, we will serve the Lord > 14 > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
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