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Re:JOYCE More problems

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Joyce, I'm way behind in reading and responding to posts but I have to jump in

here

without reading further to tell you how sorry I am. You must be discouraged. I

know of

others that have experienced the same issue with surgeons. I was told that it

is because

(at least in part) that the amount the surgeon receives includes treatment after

the

surgery so if you went to another dr. he would be doing something the first dr.

had

already been paid for. I suppose most doctors aren't anxious to take over

patients with

problems resulting from a surgery by another doc, either. My gosh, it seems to

me like

you have been dealing with nose bleeding for months. It is a wonder you have

any blood

left and of course you are severely anemic and that makes you even more tired

and that

makes you angry and sad and discouraged! By the time you read this all your

issues may

have addressed by others and you have a solution re your doctor but just know,

Joyce,you

are always in my prayers. Our journey has been similar and started about the

same time I

depend on you, here on this board. You always have the time and strength to

respond to

others, to welcome newbies, to give advice and make us smile at the same time

and to

share your story. I have laughed with you and cried with you and sometimes I

have even

shared with you, but you are ALWAYS in my prayers.

Kathie

>

>

> I am having problems with the Hickman Catheter that was inserted into my

> heart on the 19th of April. If you remember, this was the surgery that

> was so painful, where I was wide awake when I was supposed to be asleep.

> The surgeon and I had words the next day. He said a few smart remarks

> and I said a few smart remarks and he left the room.

>

> Well, this thing has never stopped bleeding. I am on Coumadin and

> everything is bleeding. My nose particularly. I am tested every week

> and meds are adjusted, but they evidently can get out of whack between

> sticks. Today my stick showed that I am severely anemic. I have been

> so very tired. My IRN, the measure of clotting, was way too high. So,

> adjustments have been made. Doc put me on Ferrous Sulfate for six

> months.

>

> Not only is this catheter still bleeding, there are lesions on my skin

> out from the site. My primary told me that I should see the surgeon

> about all this. I told him that I would not go back to see this creep.

> He said that another surgeon would not touch the original surgeons work.

> What is this? The brotherhood?

>

> I called my primary later in the day and asked what I could do about the

> lesions. He told me to get Betadine and clean them twice a day.

> Bloodwork showed no actual infection going on, so this is what I will

> do.

>

> I am just astounded that in order to ever get anything done to or about

> this stupid catheter will have to involve that inept doc. I am going to

> look into that. Good grief!

>

> Sometimes I wish I had never started all this complicated mess. I am

> getting so tired of all the hospital time and labs and doctor visits. I

> am thankful for prayers answered. Think I am just so beaten up right

> now.

>

> O.K., enough of being angry.....back to pouting!

>

> Hugs, Joyce D.

>

> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension

> 2008

> Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected

> for Transplant 2006

> .....I will not forget you. Behold, I have engraved you on the palm of

> my hands. Isaiah 49: 15-16

>

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