Re:Jim/ Kathie

[Guest guest]

Jim,

I think you are right but I would rather think it is my head instead of the

" deterioration " of

my lungs the doc keeps talking about.

I did fly to AZ with no problems, I have an Inogen POC. However there were many

problems with my return flight, 13 hours from walking into PHX airport and

arriving at

SeaTac. There weren't always wheelchairs available when we had to change gates 3

or 4

times. We were quite a distance from restrooms and places to purchase food or

beverages, I ran out of O2 several times. What made it worse was I was flying

home by

myself. Anyway, I was home 5 days, started getting sick. Went to doc 2 days

later, Xray

and dx pneumonia. This was 3rd time in 7 months. Finished up 14 days Levaquin

upped

pred to 60, back down to 10. I checked with Dr. last week, she listened and we

did a short

little walk up and down the hall and she said sats too low (I actually knew this

but was still

hoping). Anyway my 5 lpm POC isn't fitting the bill anymore. The question is

whether this

may be a temporary set back due to the infections or it is permanent due to the

condition

worsening with additional scarring from the infections.

Next week I see Dr. Raghu at U of W medical center and then I see my local lung

doc 2

weeks later. Between the 2 of them I'll have the full set of pfts, 6 minute

walk, etc. So I'm

hoping head and body will both be better.

I loved the long days, not so crazy about the short ones!

Kathie WA

> > > > >

> > > > > Gwynnie....yes, I went on the interview this morning to

> > return to

> > > > volunteer work I have done previously. They were really glad to

> > have me

> > > > back so I guess I'll be doing something more productive with my

> > time.

> > > > > I will be an advocate for seniors...those in long-term care,

> > either in

> > > > facilities or still in their own home and also advocating thru'

> > letter

> > > > writing to legislature for funding and public speaking for

> > clarification

> > > > as to what seniors need/why.

> > > > > My own condition has really renewed my passion for long-term

> > care that

> > > > those who need it, get it! If I can just nail one damn

> > thoughtless dr

> > > > all the hours I volunteer are worth it. Now I know first hand

> > what I

> > > > only knew before word-of-mouth.

> > > > > I won't be on board as much but I bet I'll find time! lol.

> > > > > Nice to read about you and you family.

> > > > > warm hug.

> > > > > Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR.

> > > > > Don't fret about tomorrow, God is already there!

> > > > >

> > > > > Sher,

> > > > >

> > > > >

> > > > > Mama Sher,

> > > > > Volunteer work? More info, please m'aam. I'm soooo

> > > > > pleased that you're inspired to do this with your newfound

> > > > > energy level on 02. I'm so proud of you

> > > > >

> > > > > ,

> > > > > I'm delighted for Ahli. I've always loved horses, & always

> > > > > wanted one as a girl. The highlight of many family

> > > > > vacations to Colorado guest ranches in the hot Texas

> > > > > summers was riding horses. On my 16th birthday my

> > > > > parents let me take 2 friends to a place called Salado,

> > > > > Texas where we rode horses. There's not much else to

> > > > > do there, or wasn't way back then, anyway. Now I think

> > > > > it's become quite a quaint little community of shops and

> > > > > galleries.

> > > > >

> > > > > My dad and brother left this afternoon after spending

> > > > > the night. I wish I had a photo of my dad's face, seeing

> > > > > me for the first time since surgery, with no hose up the

> > > > > nose. It made him tear up. Then he took a 30-minute walk

> > > > > outside with me. He's got a bad ankle, and we walk at

> > > > > about the same pace. What got him was that I was able

> > > > > to walk and carry on a conversation at the same time.

> > > > > Bless his heart, there are so many blessings in my

> > > > > family going on now - really ever since I decided to

> > > > > double-list in San . He also got to see Kate and

> > > > > her to congratulate them on their engagement.

> > > > > Then MY arrived and had lunch with us.

> > > > > Today was shift change day for him and Kate. :-)

> > > > > Many smiles and hugs were in abundance.

> > > > >

> > > > > Have you read Traveling Mercies: Thoughts on Faith

> > > > > by Anne LaMott? ( I read her Grace, Eventually and liked

> > > > > it.) That's going to be the first book I'll read on my new

> > > > > gadget - the Amazon kindle, which I think is sooo cool.

> > > > >

> > > > > So Irene's back at the hospital? This has to be torture.

> > > > > Surely one of the wildest medical experiences I've heard

> > > > > of. Hope you're having a terrific day.

> > > > >

> > > > > Hugs and blessings,

> > > > > Gwynne 57 Single-lung Transplant 4-3-08 at

> > > > > UTHSC San , TX

> > > > >

> > > >

> > >

> >

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it

now.

>