Re: Liquid OX........................

May 7, 2008

Lou, I've only used the liquid OX and

I am pleased with the ease of use.

I have 2 mid-sized reservoirs in my home because I use 3 lpm and only

get delivery once a week.I also did not want to be dragging 100 ft of

tubing around.

My house is large and I'd need really long tubing,,,the 60 ft I use at

each tank is enough to trip up everyone else..not me. I choose not to

use the portable in the house...the puffing noise of the pulse is

annoying and the Helios gets heavy.

I have two of the smaller Helios units ( yes I have two) . I usually

fill them both up when I plan long a day out.They last about 4-4 1/2

hours each

but the fill up in the second one will disapate a bit so I won't get

that many hours out of it. But I can go out without

worrying about running out of O2...on longer days I take the ugly green

E tanks as back-up.

I just give

the Helios 15-30 minutes to set-up and begin to work. There have been

times when the Helios

has frozen up during usage and it doesn't deliver enough O2 for a few

moments. I can warm it up

(in the clay studio I use the hair dryers)( in the car I just put it

over one of the heating vents) or I just turn the flow down

and it warms up again. I don't care what other people think or say

anymore...I'm going out and doing what I want .

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna be

iron like a lion in Zion” Bob Marley

Sher Bauman wrote:

Lou....I'm just learning about liquid so there are others who can be of

more help. Bruce uses it and I think Joyce (?). I can't remember who

uses what type but I know they will respond........

Yes, I know

the reservoirs have to be filled every couple of weeks. I was told I

would have 2 of them. "Just in case".

I'm of the

opinion the little pack lasts longer than the cyl I've been using...........

Hmmmmm.

Well keep on

until you get what you need!

Mama-Sher, age 69.IPF 3/06, NSIP

4/08 OR.

Don't fret about tomorrow, God is already there!

-----

Original Message -----

From:

Lou

To:

Breathe-Support

Sent:

Wednesday, May 07, 2008 5:19 PM

Subject:

Re: Here is the NEW deal for me....................................

Hi Sher: Yes I think I did reply. I am so darn tired tonight I

don't know how far down the line the posting was. All I do know is

that the backpack I have been walking around with at (5)continuous is

not enough to last more than 2 1/2 hrs tonight. Know what? That is

crapola. Reason for crapola??? I am stuck in the house forever. The

humungous steel barrel keg that is taller than our dressers is filled

with 100% liquid oxygen that has to been filled at least every 2

wks. Also they only give you the one portable pak to use either in

the house or out. If I go out, I can not be gone very long. This is

also crapola. If we want to go visit my daughter (1 hr away, one

way) or Earl's kids at the beach (2 hr. one way) I will never be able

to go. They can only give you one reserve pak and you have to let

them know 2 days ahead. This is BUNK!!!!!!!!!!!!!

They are coming in the morning to bring me the Marathon pak. omg, I

am so stressed I am exhausted. The pak ran out on me from 4:30 today

when they left to 7pm when it ran out of oxy.

WHAT SAY YOU???????????????????

lOVE, mARY lOU

>

> Lou....I'm so glad you have the O2 stuff taken care of! Those

adjustments can be so tiring.

> I'm thinking seriously of going on liquid....the weight of the cyl

I now carry is really giving my arthritis fits!

> Thanks to Bruce, he gave me a sight to look at for correct

filling,

etc. so I will look carefully at that before I decide.

> Poor , the LinCare driver, pulled all that stuff up a flight

of

stairs and then I said, "I don't think so".......I told him today

when he was here I'm reconsidering.....he gave me a itty bitty

smile

and said, ok.

> Yeah, no noise from concentrator will be nice won't it.

> I replied to your touching post....did you see it???

> Take good care of you!

> hugs.

> Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR.

> Don't fret about tomorrow, God is already there!

>

> Here is the NEW deal for

me....................................

>

> The Home Medical Oxygen Company has been here ALL day

long

> testing my levels of oxygen and what they gave me yesterday IS

NOT

> doing the job good enough. They took out the concentrator all

> together, and I am now on 100% PURE LIQUID OXYGEN from the

humungous

> tank in my bedroom. #5 continuous, it goes to 10 too if I ever

need

> it. I use the backpack which has been changed to a "marathon"

which I

> carry around the house without tubing following me everywhere I

go. I

> am getting used to that. My oxy. level is now 97-98 and I am

amazed at

> the last 6 months that no one suggested to me what I needed, no

wonder

> I have become weak, and loss of breath when I eat and talk. If I

can't

> talk, forget it... hhheee

>

> Anyhow, that's what's going on in my world today and yesterday. I

feel

> that my health really was starting to deteriote fast this past

month

> with not getting enough. Therapist said I need at Least 5

continuous

> for right now. I won't miss that concentrator one single bit.

>

> Hope you all had a great day.

> Love, Lou

>

No virus found in this incoming message.

Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.9/1419 - Release Date: 5/7/2008 7:46 AM

May 8, 2008

Z...your post to Lou helps me too. I'm considering the liquid and your personal use is so much better than a 'brochure' or even what the Lincare driver says.

QUESTIONS: You say.....delivery once/week. (do you mean delivery or refill?)

..........if there is no tubing, how do you receive O2????

.........does the Helios make that "puffing noise" that does get annoying? (the one I use now, on top of the cyl, is quiet...no noise at all...it makes kind of a 'tick' with breathing. Very nice).

........Helios gets heavy?? I though it was light, one of the reasons I'm considering.

........first time I've ever heard we can just turn the flow down (if it freezes during usage) and it warms up. That is good info!!

I worry about the freezing part...filling or otherwise..

You've probably read my other posts that I'm back into volunteer work again. I know I will like it as I'm doing what I've done before.........advocating for seniors. Hence I want a lighter pack to carry.

I passed a greenware shop the other day and almost went in.....then changed my mind. I COULD just paint, but I don't even have a brush left from the 'good old days'. Do you ever do anything around your pottery you love? (loved?)

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

Here is the NEW deal for me....................................> > > The Home Medical Oxygen Company has been here ALL day long > testing my levels of oxygen and what they gave me yesterday IS NOT > doing the job good enough. They took out the concentrator all > together, and I am now on 100% PURE LIQUID OXYGEN from the humungous > tank in my bedroom. #5 continuous, it goes to 10 too if I ever need > it. I use the backpack which has been changed to a "marathon" which I > carry around the house without tubing following me everywhere I go. I > am getting used to that. My oxy. level is now 97-98 and I am amazed at > the last 6 months that no one suggested to me what I needed, no wonder > I have become weak, and loss of breath when I eat and talk. If I can't > talk, forget it... hhheee> > Anyhow, that's what's going on in my world today and yesterday. I feel > that my health really was starting to deteriote fast this past month > with not getting enough. Therapist said I need at Least 5 continuous > for right now. I won't miss that concentrator one single bit.> > Hope you all had a great day.> Love, Lou>

No virus found in this incoming message.

Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.9/1419 - Release Date: 5/7/2008 7:46 AM

May 8, 2008

Sher, I meant refill of the big

reservoirs...I do use tubing just not 100 ft of it if I only had one

tank. Just 60 instead.

The Helios does make the puffing sound and it's annoying as h---. The

helios is light in comparison to lugging around an e-tank.( about 4 lbs

filled)

In the house ( unless I have company that might get caught up on the

tubing) I just pull the stupid tubing sort of like a cowgirl and her

ropes!!!

About the Helois...you need to be very quiet and still if you need to

turn it down...the amount of O2 will be less...so just find a quiet

spot for a few moments.

About the clay......Never will I give that up...

I have never left the pottery!!!!I use a huge ugly repirator mask in

the studio..it's annoying and my glasses fog up but I will not give up

the clay work!!!

I just finished another session of the ezperiences potters workshop

and will start the next one after the summer break.

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna be

iron like a lion in Zion” Bob Marley

Sher Bauman wrote:

Z...your post to Lou helps me too. I'm considering the

liquid and your personal use is so much better than a 'brochure' or

even what the Lincare driver says.

QUESTIONS: You

say.....delivery once/week. (do you mean delivery or refill?)

..........if

there is no tubing, how do you receive O2????

.........does

the Helios make that "puffing noise" that does get annoying? (the one I

use now, on top of the cyl, is quiet...no noise at all...it makes kind

of a 'tick' with breathing. Very nice).

........Helios

gets heavy?? I though it was light, one of the reasons I'm considering.

........first

time I've ever heard we can just turn the flow down (if it freezes

during usage) and it warms up. That is good info!!

I worry

about the freezing part...filling or otherwise..

You've

probably read my other posts that I'm back into volunteer work again. I

know I will like it as I'm doing what I've done before.........advocating

for seniors. Hence I want a lighter pack to carry.

I passed a

greenware shop the other day and almost went in.....then changed my

mind. I COULD just paint, but I don't even have a brush left from the

'good old days'. Do you ever do anything around your pottery you love?

(loved?)

Mama-Sher, age 69.IPF 3/06, NSIP

4/08 OR.

Don't fret about tomorrow, God is already there!

-----

Original Message -----

From:

Zion

To:

Breathe-Support

Sent:

Wednesday, May 07, 2008 9:00 PM

Subject:

Re: Liquid OX........................

Lou, I've only used the liquid

OX and I am pleased with the ease of use.

I have 2 mid-sized reservoirs in my home because I use 3 lpm and only

get delivery once a week.I also did not want to be dragging 100 ft of

tubing around.

My house is large and I'd need really long tubing,,,the 60 ft I use at

each tank is enough to trip up everyone else..not me. I choose not to

use the portable in the house...the puffing noise of the pulse is

annoying and the Helios gets heavy.

I have two of the smaller Helios units ( yes I have two) . I usually

fill them both up when I plan long a day out.They last about 4-4 1/2

hours each

but the fill up in the second one will disapate a bit so I won't get

that many hours out of it. But I can go out without

worrying about running out of O2...on longer days I take the ugly green

E tanks as back-up.

I just give

the Helios 15-30 minutes to set-up and begin to work. There have been

times when the Helios

has frozen up during usage and it doesn't deliver enough O2 for a few

moments. I can warm it up

(in the clay studio I use the hair dryers)( in the car I just put it

over one of the heating vents) or I just turn the flow down

and it warms up again. I don't care what other people think or say

anymore...I'm going out and doing what I want .

Z

64, fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah

and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

<!--[if

!supportEmptyParas]-->

Sher Bauman wrote:

Lou....I'm just learning about liquid so there are others who can be of

more help. Bruce uses it and I think Joyce (?). I can't remember who

uses what type but I know they will respond........

Yes, I

know the reservoirs have to be filled every couple of weeks. I was told

I would have 2 of them. "Just in case".

I'm of

the opinion the little pack lasts longer than the cyl I've been

using...........

Hmmmmm.

Well

keep on until you get what you need!

Mama-Sher, age 69.IPF 3/06,

NSIP 4/08 OR.

Don't fret about tomorrow, God is already there!

-----

Original Message -----

From:

Lou

To:

Breathe-Support

Sent:

Wednesday, May 07, 2008 5:19 PM

Subject:

Re: Here is the NEW deal for me....................................

Hi Sher: Yes I think I did reply. I am so darn tired tonight

I