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[Guest guest]

This explains it all.. That's my story and I am sticking to it.

Sarcoid/PF 3/2006 California

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[Guest guest]

Hi ,

I am a new member of the board and have been gathering

much wanted information from all of you. I noticed on

your post today that you have Sarcoid and this is what

I'd like to discuss.

I was originally diagnosed with PF in Aug 2006 after a

chest xray. An additional visit with a pulmonologist,

a CT scan and PFT confirmed this with an additional

diagnosis of asthma.

In March of this year, I began having a horrible cough

that could not be quelled. I had since moved and

found another pulmo who has put me through the ringer.

2 PFTs, HRCT, 6 min walk, gallium scan and 2 weeks

ago a bronchoscopy biopsy of the lung. I've been on

Prevacid, Advair and proventil trying to tame the

cough. I got the results of the biopsy

yesterday---sarcoid. I've been given a prescription

for prednesone for 4 weeks and plaquenil for 3 months

after which I'll have another CT scan, gallium scan

and PFT to see if there is any improvement.

I guess I'm confused more than anything else. The

pulmo told me and from what I've read, there is no

improving what is already done (PF) and there is also

no cure for Sarcoid; so, what are we hoping to

improve? If sarcoid is an inflamation and is treated,

does it go away?

Can you tell me what to expect?

Roxanne age 58 SC

--- denise randel wrote:

> This explains it all..

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> That's my story and I am sticking to it.

>

> ________________________________

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>     Sarcoid/PF  3/2006   California

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know-it-all with Yahoo! Mobile. Try it now.

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