Re: HI SHER............ sorry ....... spelled ozymizer wrong, see below

[Guest guest]

ML.....DAMNIT, DAMNIT, DAMNIT! my heart is hurting for you right now. Oh what we go through with this damned disease!!!

I pray for you ML. I wish there was something I could do for you that would bring you relief of some kind. I felt like that when Joyce was going through so much...well she still is...but I'm so powerless to help! Does all this folderol help you breathe better?

I love you this day too~

Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there!

BRUCE......missed you on Chat tonight> > > THE past 2 days are totally different than today now. Since you were > not on CHAT tonight, I am going to tell you the Home Medical > Oxy. Co sent over their respirtory therapist for 4 hrs. yesterday and > today is a different story. Everything they gave me yesterday is now > gone except the liq tank refiller. Respirtory therapist tested me > for 4 more hours today with sats, machines, etc, you name it, I was > so tired from being low on sats, I almost screamed with anxiety. > > The long story short is: have the liq. oxy huge tank for refills on > one helios plus 550 and marathon continuous #6-10. Also provided me > with an OXIMETER for my neck and the new cannulas for the (new > concentrator) 1-10 is ONLY or continuous use. So when I am home, > supposed to use the concentrator continuous no lower than 6 (my sats > last night were horrible) #5 was not enough, when I go out, to use > the marathon #6 continuous only and the other spare. I say my life > now with the liq. oxy is terribly limited for travel. They said no > company in America will give you more than 1 spare of liq oxy. > backpack. But you know what? I don't plan on going anywhere anyhow.> > Tonights chat was great and I will be praying very hard for all of > you and you will all be in my daily thoughts hoping your days will be > great, cause good is not enough, right?> > The oximeter on my neck is very noisy but guess what? It sounds like > the ocean waves, but not as wonderful. Have to wear it 24/7.> > Hope you all have a great weekend too.> lOVE, mlp>

[Guest guest]

Lou,

They told me not to use the water bottle humidifier with the oxymizer....or to take a shower with it on. I use it sometimes, but I, like you, hate the noise. I keep my 02 on 8 - 10L. If I use the oxymizer, I can go to 6. The 02 company like for you to use the oxymizer because you use less liquid. Also, it is better not to have so much air blow up your nose. Those big old nasal prongs are soooo big!

Peace,

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16> >> > Lou....sounds like you really went through a tiring day. But > how good you rec'd that much attention! I'm thinking you must have > the best that can be done for right now. (?)> > I've not heard of an oximeter on the neck... what is that for and > does it replace the one on your finger?> > One day at a time friend!> > > > Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR.> > Don't fret about tomorrow, God is already there!> > > > BRUCE......missed you on Chat tonight> > > > > > THE past 2 days are totally different than today now. Since you > were > > not on CHAT tonight, I am going to tell you the Home > Medical > > Oxy. Co sent over their respirtory therapist for 4 hrs. yesterday > and > > today is a different story. Everything they gave me yesterday is > now > > gone except the liq tank refiller. Respirtory therapist tested me > > for 4 more hours today with sats, machines, etc, you name it, I > was > > so tired from being low on sats, I almost screamed with anxiety. > > > > The long story short is: have the liq. oxy huge tank for refills > on > > one helios plus 550 and marathon continuous #6-10. Also provided > me > > with an OXIMETER for my neck and the new cannulas for the (new > > concentrator) 1-10 is ONLY or continuous use. So when I am home, > > supposed to use the concentrator continuous no lower than 6 (my > sats > > last night were horrible) #5 was not enough, when I go out, to > use > > the marathon #6 continuous only and the other spare. I say my > life > > now with the liq. oxy is terribly limited for travel. They said > no > > company in America will give you more than 1 spare of liq oxy. > > backpack. But you know what? I don't plan on going anywhere > anyhow.> > > > Tonights chat was great and I will be praying very hard for all > of > > you and you will all be in my daily thoughts hoping your days > will be > > great, cause good is not enough, right?> > > > The oximeter on my neck is very noisy but guess what? It sounds > like > > the ocean waves, but not as wonderful. Have to wear it 24/7.> > > > Hope you all have a great weekend too.> > lOVE, mlp> >>

[Guest guest]

Lou

I think there is some confusion. You've got a Sequal Integra for indoors

and night and using the oxymizer with it. It is not liquid oxygen. It is

a concentrator. It also is not 100%, but in the range of 90%.

Now the oxymizer serves three purposes and the first does not apply in

your case. It can conserve oxygen and would be used with a liquid

reservoir. But theres no reason to conserve from a concentrator. The

second is to allow you to use lower flow and it less harsh on your nose.

That doesn't appear to be working well from your description but might

be as the regular flow you would require without it would be greater and

could be worse. The third reason is a lousy one as it is to use a lower

flow concentrator so they don't have to supply a high flow one.

Now, I also don't like the " filled too often " part. You need what works

for you. They can supply multiple reservoirs or fill more often. Do not

compromise unless you're happy with what you've got. It is not your

place to save them money and their cost is a reason they might be

discouraging you using a liquid reservoir.

> >

> > Lou....sounds like you really went through a tiring day. But

> how good you rec'd that much attention! I'm thinking you must have

> the best that can be done for right now. (?)

> > I've not heard of an oximeter on the neck... what is that for and

> does it replace the one on your finger?

> > One day at a time friend!

> >

> > Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR.

> > Don't fret about tomorrow, God is already there!

> >

> > BRUCE......missed you on Chat tonight

> >

> >

> > THE past 2 days are totally different than today now. Since you

> were

> > not on CHAT tonight, I am going to tell you the Home

> Medical

> > Oxy. Co sent over their respirtory therapist for 4 hrs. yesterday

> and

> > today is a different story. Everything they gave me yesterday is

> now

> > gone except the liq tank refiller. Respirtory therapist tested me

> > for 4 more hours today with sats, machines, etc, you name it, I

> was

> > so tired from being low on sats, I almost screamed with anxiety.

> >

> > The long story short is: have the liq. oxy huge tank for refills

> on

> > one helios plus 550 and marathon continuous #6-10. Also provided

> me

> > with an OXIMETER for my neck and the new cannulas for the (new

> > concentrator) 1-10 is ONLY or continuous use. So when I am home,

> > supposed to use the concentrator continuous no lower than 6 (my

> sats

> > last night were horrible) #5 was not enough, when I go out, to

> use

> > the marathon #6 continuous only and the other spare. I say my

> life

> > now with the liq. oxy is terribly limited for travel. They said

> no

> > company in America will give you more than 1 spare of liq oxy.

> > backpack. But you know what? I don't plan on going anywhere

> anyhow.

> >

> > Tonights chat was great and I will be praying very hard for all

> of

> > you and you will all be in my daily thoughts hoping your days

> will be

> > great, cause good is not enough, right?

> >

> > The oximeter on my neck is very noisy but guess what? It sounds

> like

> > the ocean waves, but not as wonderful. Have to wear it 24/7.

> >

> > Hope you all have a great weekend too.

> > lOVE, mlp

> >

>