Guest guest Posted May 9, 2008 Report Share Posted May 9, 2008 Roxanne...I want to welcome you to our family! Keep coming back. I'll leave you in the capable hands of ........just a "hi" from me. Mama-Sher, age 69.IPF 3/06, NSIP 4/08 OR. Don't fret about tomorrow, God is already there! Re: Weight Loss Hi ,I am a new member of the board and have been gatheringmuch wanted information from all of you. I noticed onyour post today that you have Sarcoid and this is whatI'd like to discuss.I was originally diagnosed with PF in Aug 2006 after achest xray. An additional visit with a pulmonologist,a CT scan and PFT confirmed this with an additionaldiagnosis of asthma.In March of this year, I began having a horrible coughthat could not be quelled. I had since moved andfound another pulmo who has put me through the ringer.2 PFTs, HRCT, 6 min walk, gallium scan and 2 weeksago a bronchoscopy biopsy of the lung. I've been onPrevacid, Advair and proventil trying to tame thecough. I got the results of the biopsyyesterday--- sarcoid. I've been given a prescriptionfor prednesone for 4 weeks and plaquenil for 3 monthsafter which I'll have another CT scan, gallium scanand PFT to see if there is any improvement.I guess I'm confused more than anything else. Thepulmo told me and from what I've read, there is noimproving what is already done (PF) and there is alsono cure for Sarcoid; so, what are we hoping toimprove? If sarcoid is an inflamation and is treated,does it go away?Can you tell me what to expect?Roxanne age 58 SC--- denise randel <dnsrndlyahoo (DOT) com> wrote:> This explains it all..> > > > > That's my story and I am sticking to it.> > ____________ _________ _________ __> > > Sarcoid/PF 3/2006 California> > > > >____________ _________ _________ _________ _________ _________ _> Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ____________ _________ _________ _________ _________ _________ _Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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