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20-month Pirfenidone trial check up

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I just got back from my 20-month eval. in the Pirfenidone trial - and it was great! No changes. Yeah hoo! (Of course I don't know if I'm on placebo in all fairness).....but still, I was thrilled. I didn't walk quite as far on the six minute walk, but my ankles were killing me so I think that was why. I ended up in the hospital several extra days for some other health issues they found related to HPS. But, after the drama, I'm home now. Grin.

Hermansky-Pudlak Syndrome/PF 06

www.heatherkirkwood.blogspot.com

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